Evening all, due to start my first round of Kadcyla tomorrow, will see how I react.
One thing thats bothering me is all along this journey since diagnosed last june it was implied I would be needing radiotherapy after my chemo and operations.
My treatment plan was also adjusted for this and had an expander put in instead of implant due to the breast changes involved with radiotherapy.
My chat on Monday went complete opposite which has thrown me.
Basically they have advised that I am borderline for needing it and they recommend me not having it as dont feel i will benefit massively from it. They are saying a new study has shown it is not that beneficial in all cases. But i am still being allowed the choice if i have it or not.
I am Her2+ and oestrogen possitive had 4 tumors and one possitive lymph node. Ended up having an extra op to remove all lymoh nodes in the arm after the intial sample showed a possitive node. Full. Clearance showed no more cancer in them nodes. Thus them saying that the remaining lymph nodes in neck where radiotherapy would target would very unlikely contain cancer and therefore feel not necessary.
We have done everything so far to limit reoccurrance so seems strange not to have this but at same time feel like doctor should know best. The side affects of afecting heart an lungs also plays on my mind as I enjoy running and sont want risk if the organs being weakened so just dont want to say i would have it either. Feel like such a catch 22 situation and would much prefer not having a choice x