Thhankyou @carrie5 I agree with all that yoy wrote. 10yrs on and have been living with the high risk of reoccurence niggle. I was shocked am still clasified as such but no real follow up. I have to request the mammogram every 3yrs as I will be over 70. So very high risk and zero initiated monnitoring from the nhs? Doesnt make sense.
My local breast screening centre was chaotic at best and was reported as so bad as non functioning 3yrs ago plus breast cancer now say its not much better now in this years report!! Not actually inspiring confidence in them.
My plan is: my gp is really keen to refer me elsewhere for my screening. Still waiting on a promised letter from the consultant oncology surgeon I insisted on seeing for my results…nearly 3months on still waiting. GP said he cant refer on until he gets tbe letter. Once the letter comes (if it does…lol) Im going to book a private consult with consultant oncology surgeon I saw to gee things on, for advice. She works at the alternative hospital for screening. And ask her about a) risk level after 10yrs clear b) whether I shpuld be on nhs automatic recall system fot mammograms if indeed I am " very high risk."
Its so sad to see the decline of what was once a very good service. I rang the admin team about my letter. Feel for them as the lady there said they had lots of people off sick with stress or who had left and in all honesty it sounded like they were really struggling to cope at all. I asked if it was possible to see if my letter was in the queue to be done. But apparrantly she couldnt check without listening to all the tapes! I felt for her tbh.
Anyhow been checking the fat necrosis that Ive celebrated with great delight over…and it not any bigger…or smaller. So its my reminder that all can come good even when everything points the other way at first.
And I need to look at this high risk reoccurence thing. I did look at predict 2 for 15yrs and see the survival rate has improved…so maybe the high risk reoccurrence thing has too…they probably dont really know tbh. And after 10yrs of being very high risk but clear its running thin on me. I dont believe it tbh. Proof is in the pudding! Im clear…still am. Beyond that no one really knows! But an annual mammogram would be a helpful check. Maybe Ill just do that privately if the nhs wont! Bottom line nothing in life is a given for ever…and that works both ways. The point is am clear & thats a huge gift! I could be run over by a bus tomorrow…etc…and no one has predicted that!!. Excuse the long ramble!! 
