I’m on exemestane and have terrible hip pain. I’ve tried everything from Motrin, new mattress, stretching, etc. Has anyone else experienced this. It’s pain deep in hip. Pain happens when I lift leg to get into car, get up after sitting, laying on that side. Any tips are greatly appreciated.
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I had this on letrozole and had a 6 week break and swapped to Exemestane. The pain is still there. I also had some neck pain and had an MRI and it was two bulging discs a consequence of getting a bit older and need pain killers to keep at bay. I have had some hip pain over the years and wonder if my treatment has just exacerbated it. But then it could be spread as I’m HER2+ which can spread to the bones.
I’m debating now whether I should mention the hip pain, like you it affects my day and sleep. I had read that some cancer treatments can trigger immune diseases such as polymyagia rheumaticawhich affects hips, shoulders and neck.
I believe it’s a blood test to check so I think I will ask for that aswell when I speak to my oncologist this week.
It’s all such a worry, maybe cal, your breast care nurse and chat it through. You can call the BCN nurses on 08088006000 to chat about it.
Hi Jaye1971, I’m on tamoxifen and was suffering from terrible hip pain. I got a “body pillow” for bed. It’s basically a full length pillow that goes between your legs if you sleep on your side. This has helped me a lot.
I did have a scan to make sure there was nothing sinister causing the pain.
Hope you get some relief!
Hi, I’ve been on exemestane for 5 years. I suffered hip and leg pain and then terrible leg cramps at night. From reading posts on forums somebody suggested to note down the brand of exemestane I was taking and the side effects from it and to keep trying different brands to find one with the least side effects. The reason again somebody said was that different brands may have different fillersI eventually found 2 brands that give me little to no side effects and these are Glenmark and Kent. Quite often my local chemist does not have these brands so I just call around lots of chemists in my vicinity till I fond somebody with the brand.