Evening everyone
Meant to post last week to give some reassurance and not too worry when issues, things should hopefully settle.
I started Ribo in December 2024, all was fine until mid cycle 2 and my ALT (liver enzyme) started to climb. By end of Cycle 3, had to pause dosing as too high. Had several breaks and dose was reduced to 200mg. Finally they decided to give me a 2 week break between doses. This now seems to be working, had 2 doses on this regime and ALT is about 40-50. That is still a little high but my liver now seems to be accepting Ribo! My white blood cell count and neutrophils were also normal (previously low).
I just wanted to let everyone know because it is worrying when there are issues and you don’t know if you are going to be able to restart. Just remember there are processes in place and stick with it, hopefully things will settle. If not, then you are no worse off and you tried. We are fortunate that the drug is to prevent recurrence, not first line treatment.
@lola25 just fyi if neutrophils are below 1, they would pause dosing.
Wishing everyone all the best