Following my 2nd excision for lobular cancer (I’m 62 and told initially stage 1 grade 2 - no lymph node involvement or lymphovascular involvement), I was advised to have an oncotype dx test carried out - which I did. .
Once the result was received, I had my oncologist appointment and radiographer appointment to inform me of next steps. The score was 14 so no chemotherapy was required. I was advised I would receive 5 radiotherapy sessions and continue with Letrozole. I felt relieved and prepared for the radiotherapy sessions.
However, 2 weeks before the sessions were to begin, I received a telephone call from the radiographer who apologised and said that at mdt meeting they had misread the pathology report regarding clear margins. They read it as 1mm - but it was actually 0.1mm! This affected the choice of treatment to now include 5 booster sessions of radiotherapy. I was taken aback and just wanted to get off the phone to process what I’d heard.
My radiotherapy began last week and I have 6 sessions left. Today I am feeling quite low and frightened that, what started as a ‘very positive prognosis’ may not be, due to the close margins. Looking for reassurance that it’s not as bad as I’m imagining it to be.
Thanks
