Repeated delays to starting chemo

Just wanted to say how sorry I am that you’re facing these delays. I also had the misery of being diagnosed and initially treated within the Welsh NHS, and it was a tough experience. I’m 2 years on now and still dealing with the trauma caused by being left adrift with a life threatening illness. It was not how I imagined cancer treatment would go!

One of the problems with the Welsh system is there aren’t any targets beyond the 2 week wait for diagnosis. After that, they can take as long as they’d like to start you on treatment. At least in England they’re encouraged to keep people moving through the system once a decision to treat has been made.

If you don’t have access to a good BCN I highly recommend calling the Breast Cancer Now nurses. They helped me so much through that time, answering my questions, providing reassurance and just generally being amazingly supportive.

I had to wait 3 months after surgery to begin chemo and I moved my care to a hospital in England to get it started in the end. Hopefully you won’t have to do anything as drastic as that, but sometimes you just have to advocate for yourself - sadly no-one cares more about your life than you. It’s easy to fall between the cracks and it seems like no-one will notice unless you keep alerting them that you’re there :pensive: