The interminable wait for treatment plan

I feel your pain, my 5 year old is the same and very hair obsessed so it’s been very important to me that I keep things as normal as possible. I decided to tell only a few people as a way of “damage control” and not getting sympathetic looks all the time, I know people mean well but I don’t feel ill and don’t need sympathy :joy: so I decided to only tell my Mum, Mother in law and husband. Then after my 1st chemo (4 months after being diagnosed :sweat_smile:) I finally told my Dad, Brother and sister in law and a friend who had been diagnosed to as I figured we could support each other and I’d probably bump into her at hospital at some point and have to own up :sweat_smile:, they were so shocked!

I’ve chose to cold cap and so far still have a full head of hair. So to the outside world/school Mums/friends/playgroup Mums I look fairly normal and I’ve been able to keep things normal for my children. It’s such a hard decision to make but I’m glad I didn’t jump the gun, if my hair does fall out I have a wig/hairpieces etc at the ready that look very like my natural hair, eyebrow pens/tattoos so I’m hoping I can get through the next few months without them knowing!
Its a hard one with work when you don’t know how you will feel, I’m self employed so I kind of had to carry on but I did slow down and call in extra help (IE unpaid family members haha).

You will find your feet with this whole crazy journey though and figure things out with lots of support from this amazing group along the way xx