We are so sorry to hear this. It must be such a worrying time for both of you, and must be so difficult to content with.
I would really recommend reaching out to our nurses if you are feeling overwhelmed with it all, or if you have any questions. Sometimes it can just be helpful to talk things through. You can reach them on our free helpline 0808 800 6000.
I truly hope you are able to get some answers soon, and that you are able to find comfort and support in the meantime.
Thinking of you both,
Chloe