Hi Trumpet and Hayz
lol Hayz at giving people a piece of your mind down the phone - I really feel like doing that sometimes - probably not the most professional of attitudes, though.
My OH is dealing with his ex-wife’s niece who is currently living off benefits - she gets all the usual stuff plus £695 housing benefit to pay her rent which she has pocketed for the past year and has expected my OH to cough up her rent as he is guarantor (it’s not quite that that simple - there is a trust etc. involved). I get absolutely FURIOUS with her/him as she basically sponges off the rest of us, got pregnant, has a lovely flat, all the benefits you can get thrown at her, can’t be bothered to work and expects at age 22 for someone still to support her. And I get a measly £63 per week on ESA, am unemployable, no help with mortgage or council tax or anything else. It makes me so MAD and the OH has had to live with my rantings all weekend. I think he was glad to head off to work this morning lol.
I can’t believe you had such poor treatment with your diagnosis. Mine was different although no-one, including me, thought it was cancer - all the results came back normal - mammogram, core biopsy, ultrasound, the feel of it all said cyst apart from the first initial needle biospy where the pathologist said ‘suspicious’ (I could kiss him). Fortunately my surgeon and radiologist just said ‘sorry, don’t believe the results, we’ll have to operate to get it out and then find out what it is’ - so they did, two days later. It all happened so fast it was horrendous but at least they were persistent and my hospital has very good results because of this attitude. This was all on the NHS too, I have private healthcare, but despite continually asking they assured me it was quicker on the NHS, and the care the same (ok, so no private room, telly and room service, but so what?).
Three days to the next (second) lot of poison. I can’t believe these three weeks have gone so quickly. I have felt absolutely fine for the past 10 days. If it wasn’t for the hickman line I would be able to forget I am having chemo. Day 19 and my hair is starting to come out - nothing to notice on my head yet but I usually lose nothing and there are now hairs on my hairbrush and when I run my hands through it - let’s hope it holds out a bit longer, I’ll be using the cold cap again on Thursday.
My skin is not good - bit of acne, and I have permanently tender breasts and I think I have a cold - runny nose, anyway, although I feel ok. All the other SEs - mouth ulcers, lack of taste etc. disappeared at the start of last week. The stupid guinea pig bite got infected but fortunately has sorted itself out now, and I find when I go blackberrying that the scratches seem to get infected very quickly - I am slathering them with antiseptic cream in the hopes that will help. I shouldn’t probably do it, but I can’t bear to be locked up inside watching rubbish tv all day.
Don’t ever google or facebook breast cancer (although it did make me grateful that we live in a country where healthcare is free, and generally good - you don’t want to be living in some African country and get breast cancer)- you don’t want to go there! My bcn warned me not to and recommended this site and Macmillan. I tried it once - never again. Also I recommend you don’t go onto the secondaries bit of this site until you have to - there are some places not worth going unless they apply to you - otherwise you’ll freak yourself out - I certainly did.
Off this morning - cycling to the gym then bodybalance and a bit of weights - I’m putting on the pounds again and need to not do that - I literally won’t have anything to wear (I’m down to my fattest jeans) and can’t afford to buy any more. I hope I’ll continue to feel up to exercise in the next sessions.
good luck to all of us hitting the drugs again this week. May it be a positive and lovely experience for all of us!
Keep counting off those days to Christmas.
all the best
Helen.
