1st chemo tomorrow!

Hi All

Thank you for your posts. I decided to stick it out at home as I couldnt face the hospital and all its needles! Temp is still going a little crazy but not as bad as yesterday which I hope is a good sign. I still have pains in my tum but again I am thinking this is a side effect of Tax. It is a real effort to do anything, if I go upstairs I have to lie down to recover. I so want this to be all over, I want to feel well again and this Tax is certainly making me feel rough. I am day 8 now post chemo so will my blood count of dropped by now or have I still got that to come? Basically what I am saying is, am I out of my low immune period yet? Does anybody else feel like they are living on a knifes edge just waiting for the next thing to hit them?
So sorry for the negative post but so fed up of chemo and all its nasty side effects.
Loocie, hope you are ok and your side effects are not too bad for you this time.
Thank you again for your advice, means a lot.
Loads of love
Karen xxx

Hi karen,

I do sympathise with you - I had my final Tax two days ago and I too seem to feel that I have got a lead weight in my stomach and a lumpy/blocked feeling in my throat which I think might be mega indigestion despite taking the Lansoprazole!

They told me that the cells can drop anywhere between day 2 to day 10. On my first Tax when I was still feeling fluey, with temp etc on day 9 she said that they should pick up around day 10. I think they eventually did on day 11 when I felt better. So if you are day 8 you may still be a bit on the low side cell wise but should pick up soon.

Hope this helps - and hope you feel better really soon.
Lynn xx

Hi Ladies, Sorry for those of you suffering and all the best to those who have finished. You have all been very helpful with all the info at the start and saved me from having a nervous breakdown Trumpet1,Loocie, Helen, karen, Hazel,LynB, Jane thank you all, sorry if I’ve missed anyone. I had my 3rd EPI Monday had a amended dose due to adverse reaction last time, I also have 4 CMF chemos next, is anyone out there on the same regime? I know we’re on different chemo but if anyone is the same or knows were I can get more info I’d be very grateful. Marli I know you on a similar time scale to me how are your SE’s? Will pop in later to see how you’re all doing.
Love Kath

Hi!

Really sorry for everyone having a bad time with SE’s, criky, we have been through so much! Well done!!And what a relief to those who have finished. Not really had the courage to re-read our stuff from september yet, but think will be quite emotional to read at some point.
Had a bit of a shock recently, one of my best friends (42) who has been great with me during all this was diagnosed with breast cancer. She has had a mastectomy and now needs chemo. I find it unbelivable, that so many women are getting this and so many young ones too! What is causing it??
Don’t know if anyone with cold cap can help, but my last treatment was a month ago and my hair is still falling out and getting very thin, i am worried that it will all go now, after all that pain!! Anyone know when it should stop falling out?

P.S Ment to be going to Lanzarote on Sunday for the celebratory holiday as none of us had a summer last year! But the snow is worrying me, will be well hacked off if it gets cancelled!!!Keep your fingers crossed. The good thing is i wont need to worry about the bikini line!

Lots of love

Thanks xx

Hi girls,
Karen sorry to hear you are having problems again, I know we both had our TAX on the same day even the same time if I remember rightly. Mine has been so easy compared to you others, I had mild fluey aches for about 2 days and the blotchy hands have returned but that is about it. I do wonder if the antibiotics I have to take make any difference. I start them on day 5 and take them for 5 days. I think it may have been them that gave me the oral thrush last time so have already started on the difflam and nystan but can honestly say I feel pretty ok. I guess I am really lucky, I also know something could hit me at any time so I’m not saying any more!!!
Congratulations to those who have had their last cocktail you must be soo pleased. I know there are a few of us with one left and a few with a few more but I can’t believe how quickly the time has passed. All of us on here will soon be moving on to the next stage.
Loocie I hope you are feeling a bit better.
Trumpet, I do hope you get away on your holiday, I am sure the airports will be better by then. Sorry to hear about your friend, as you say, so many are affected by this, its pretty frightening how many new diagnosis there are. Why, we are all so different on here but I really do think there will be a major breakthrough soon, they seem to be chipping away at it all the time.
Sorry Kath, can’t help with your regime, mine was FEC and TAX.
I hope you are all surviving the snow, it looks so pretty when you don’t have to go out in it!!!
Take care, keep smiling,
Love to you all,
Jane xx

Hello all my darling fellow chemo queens

omg Loocie did not know you could get reaction to neulasta - still got one to go - hope you keep being the sleeping beauty and slep of all the crap. Did they give u anything to offset the reaction?

Jane I have been given auto antbx too from day 5 and get sore mouth etc too stocked up with nystalin - you are lucky no other se’s good luck.

Trumpet those flights better not be cancelled you need that holiday, sorry can’t help with hair but should start growing again soon surely x And yet another young friend dx with bc it is too common - someone suggested about chlorine in water the other day - i cant remember where??? you have now got to support her too its surreal!

Kath start a new thread for EPI etc - you can still post here x

Lynn sweats are worse on tax and know that sleepless night hun x
i have forgotten to take lansro whatsit and tummy weight feeling not too bad this time my big se is the comedown from the streoids and the madness that ensues - still the mad woman - i have had massive screaming crying fits and rows with my Don and my son but think it is subsiding a little now - day 10 tomorrow should start lifting - doesn’t anyone else get this. I have had the chills and sweats too and they are less today so can see the light at the end of the tunnel.

Karen that knifes edge feeling is recognisable bless you hop your temp calms down x

Hayz love yer to pieces - keep posting on facebook you keep me going xxxxxx

Hurrah to all finished the swamping - rfeemie hi love - fantastic news - still need to rest and recover though - one more for me on 20th wooooooooooo maybe he will let me off !!!

I have probs forgotten to mention some of you but as I read your posts you are al in my heart if not my chemo damaged brain.

We are all either there or nearly there and the journey has been easier for knowing you all - thank you for being here and posting your moans groans and triumphs - we are surviving this admirably.

Off to Centre Parcs on 15th weather permitting and I am going to let down my hair (if i had any)and don my pink wig and silly clothes and rave for all of us - party at my villa if you are in the area - you’re all invited xxxxx Lyn b xxxxxx

Trumpet,

I had the cold cap, still have most of my hair and it is now 7 weeks since my last chemo and the hair is still falling out! It comes out mostly when I wash it, and has stayed steadily falling out like this ever since the first cycle. It’s got very thin, but I’m not too worried as I can see it’s growing back too. The completely bald patch I had over my ear now has 2cm of hair growth and I can see all the little hairs on the very thin bit on the top of my head. I think maybe it’s the hair that was zapped initially but held on it there just falling out when it gets pulled. I hope it stops sometime! I had my hair cut yesterday and the hairdresser said it’s in better condition than the last time which was just after my second cycle.

I had a bit of shock last night when I suddenly felt very ill and discovered I had a temperature of 38 - completely out of the blue. It set in panic for a bit till I remembered I wasn’t still having chemo and had no risk of sepsis and all I had to do was take some paracetamol and go to bed. The temps gone down this morning but I don’t feel good - a bit like the nasty bug infection in my hickman line I had while on chemo, but surely it can’t be that again. I wonder if I will panic every time I get ill from now on!

Swam another 30 lengths yesterday, I could have swum four weeks after my last chemo, but had a bad cold which still hasn’t really gone, so waited until now. Maybe I’ve picked up swine flu from the nasty bugs in the swimming pool! Unfortunately can’t swim while on rads so that will have to wait another few weeks or so. Shame as it was great to get back into the pool.

Loocie, hope you are doing well, you seem to be being hit by everything!

Trumpet, did you get travel insurance for your holiday or have you not bothered? I’m hoping to go snowboarding in March and need to get some insurance for that. Hope you have a great holiday.

Enjoy the snow,

Helen.

Hey Helen

I’ve just read on another thread that an insurance company ‘GetMy’ is good for BC ladies like us.

I’m hoping for a wee trip to New York between chemo & rads to celebrate my birthday…and the end of Chemo!!, so I’m gonna have a wee look around for insurance too. Think I’ll exclude BC cover, as it’ll make it way cheaper…fingers xd there shouldn’t be any BC emergencies that can’t wait till I get home!!

Hx

Hi folks, how’re you all doing?

I’m feeling more human now but still taking it easy - bit too easy if you ask me but hey ho, just going to go with the flow for a few more days. I just oxygen and piriton to reverse the reaction Lynn, the doc did think about steroids but am pleased she didn’t go there.

Helen, i’m in awe of you, well done! I’m so looking forward to getting back to my classes and on my spinning bike, will be wicked!

Got a couple of queries to raise…Has anyone considered chaning their diet in order to reduce the possibility of a recurrence? I read somewhere that a vegetarian/vegan diet is preferrable for ‘high risk’ people, which was supported by a consultant friend of mine when I asked his opinion. Got me thinking and wondered whether any of you have considered it?

Also…anyone got any thoughts about Tamoxifen? Just Reading the possible side effects has put me off. Four months of living with the side effects of drugs has been hard enough, but five years seems impossible! I know it provides us with protection against recurrence, but is there a cost (regards quality of life) involved? Ooooo so confusing! I’m going to ask if there is an alternative as I really don’t want to fill myself with more poison than necessary - but I guess that’s the point, it may be necessary!

Just a little food for thought on a Sunday morning!!!

Hope you’re all beating up your side effects?

Lotsalove xxx

Hi Loocie

yes, the thoughts about diets have concerned me. I have read a few books and really have come to no conclusion - a lot of the books contradict themselves and many are based on no scientific evidence.

I skim read through Jane Plant’s book and think that a lot of what she says is possibly true, but very scary. I don’t think I could stick to the type of diet and lifestyle which she suggests. I don’t think I can give up dairy products (no more cheese!) or give up meat entirely.

I already eat a balanced diet with loads of fruit and veg, small amounts of meat and quite a bit of fish and I still got breast cancer. I don’t eat ready meals or junk and try to keep processed food to a minimum. I’ve also eaten soya products for years after I lived in Malaysia and got to like them. I don’t eat them to excess, though, nor do I take supplements. I do, however like cake, sweets and all things bad for me!

The issue on soya really interests me as the medical profession is very split on it, my breast surgeon basically said don’t change what you eat - don’t eat more or less. One conclusion that I have come to is that supplements are bad - whatever they are (except basic minerals). Much better to eat the food that contains the good stuff in the first place than all these tablets and drugs which are sold as so called ‘health foods’ from places like Holland and Barrett - that shop is basically selling drugs, not health foods. The supplements which could really help me with the hot flushes are soy isoflavone supplements and things like black cohosh and I am just avoiding them - who knows what they could do.

Anyway, I’ve come to the conclusion that I will eat loads of veg and fruit, lots of fish, especially sardines which contain bones to help with calcium. I will cut back on dairy products and will supplement them with soya milk. I’ll eat tofu as I always have done and will try to eat more sprouted grains such as mung beans and fresh soya beans. I’ll eat more wholegrains such as porridge. But mostly I will lose weight and get fit and hope that helps - the biggest risk factor is being overweight (not that you seem to have a problem with that, Loocie). Giving up any foodgroup always causes further problems in missing minerals and essential elements - it’s important we eat enough calcium and vit D to avoid osteoporosis in later life.

I wish we knew what were the causes so we could avoid them, it’s quite scary knowing that I have an increased risk and having no idea what to do to minimise it. Bring on more research to find a cause and hopefully a cure. My cancer is slightly more unusual being lobular and I am taking part in research to find a possible genetic cause or predisposition to it which I find very interesting.

As for tamoxifen, I’ve read the side effects and also the tamoxifen threads and also feel pretty scared - five years of all that! I have discussed it with the docs and they say most people are ok with it, so it is worth a go. If the side effects are too bad, they can put us onto an aromatase inhibitor such as arimidex, which we probably will go onto after 2 years anyway, if we are menopausal. The side effects for that is different again. My plan is to start the tamoxifen and then see how it goes - best go into it with an open mind as it is the best drug developed against recurrence. My plan was to do chemo as a possible alternative to tamoxifen - and if I did the chemo then struggled with the tamox then I could give it up. Better four months of hell than five years! Not sure this plan was the best one with hindsight!

Remember that most people on these threads are here to moan and get support - we rarely hear about the people with no problems who are just getting on with life - let’s hope we are one of them!

Rads tomorrow - quite looking forward to it really! I’ll let you know what it’s like, I’m expecting a complete anticlimax!

Snowing here again today, but also the ice is melting.

How many people are now finished with the chemo?

Helen.

Hi All,

Loocie - being a bit lazy today (what’s new!) - my legs feel like lead weights along with my stomach but no bone pain - hooray! So your Sunday morning/afternoon question time looked like a good thing to do.

I think the diet question and what to eat is an extremely difficult one. Like Helen says there is a lot of conflicting evidence. From my personal experience of reading up on the subject there just doesn’t seem to be a general consensus - except to cut the junk and eat more veg. Even reading on this site about what to eat during chemotherapy is conflicting - some are told that probiotics for topping up the good bacteria and helping stomach probs are fine and others are told absolutely no way.

I have read or in the process of reading various books to get an opinion on diets and keep an open mind eg Jane Plant Book, Philip Day’s Book, Information from Chris Woollams etc. I think the danger is that these books are very one-sided - advocating no dairy, no meat etc. Jane Plant says no dairy for instance whereas the Marsden says you must have some dairy in order to protect against osteoporosis - so where do we stand with that one? Philip day says that the reason for little scientific evidence is that the greedy pharmaceutical companies won’t put money into research as there is nothing in it consequently for them ie you can’t patent plants. This may be true but I would rather wait for more evidence. I am not sure or convinced that the Nutritionilists know very much - particularly at the hospital. They just say eat what you want and don’t bother with supplements. On the other hand Phillip Day would have you on a very strict diet, which would include mainly raw vegetables, juicing them with supplements of vit A E all the B’s mainly B17, Vit C with bioflavanoids, allicin capsules, Vit D, and the list goes on. Apart from not really knowing the interaction and side effects of these supplements, other issues like cost, and your life being consumed with this has a huge impact. Prior to all this my life was fairly busy with work and children etc and to even get a lunch break in my working day would be a bonus let alone thinking about what supplements I should be taking and have I prepared my Alfafa sprout salad?

I get so cross because I have read so much stuff that says that women with breast cancer are overweight with a BMI over 25 and that is one of the causes of breast cancer. RUBBISH - it may be a factor but reading the posts on this site, most of the women eat well, cook their own food, are within the BMI and exercise!!

Helen - I too eat healthily like you but also have a sweet tooth (which is difficult I’d admit to keep under control) - but after all the reading (which I find a bit consuming at the moment because everything in our lives at the moment is cancer related) I think I will probably opt for a happy medium with an emphasis on probably more veg ratio to meat. I am going to keep the dairy going but skimmed milk and a little cheese etc. Frankly of course I don’t want this awful thing to re-occur but I also want to enjoy my life (however long/short it may be). I will cut my alcohol intake for instance but not give it up. And I will exercise more.

What makes me cross is that we are probably all doing the right things and there is no answer to why we have this c**p disease. I believe that cancer is multi-faceted - and there are many things we have been exposed to that has brought it on. Even a nasty virus as a child could have weakened someone’s immune system which cancer thrives on. Who Knows? I have agonised over this again and again and really have got to stop as we will never know.

Might have to come back to the Tamoxifen question next time (might have my ovaries ablated??) - as I feel as though I have written a sermon! And on Sunday too! LOl
Love to all
Lynn xx

Hi Helen, Lynn thanks for your posts. You sum up so well the quandary about food. Like you I eat a well balanced diet with rare forays into the world of processed stuff - just the occasional pizza or crispy snack. Which suggests that diet is unlikely to have been a trigger. I have ordered a copy of Jane Plant’s book in the hope it will give me a starting point (albeit somewhat extreme) and will use what I eat now as an end point, in the hope of coming up with something in the middle ground! As you say Lynne it’s all so contadictory, made complicated by the fact that we don’t know the cause, so how can we possibly be expected to figure out what to do to prevent it coming back? Like you, I feel a bit of a slave to it and just want to change the record!

Your thoughts on Tamoxifen are helpful too. Going in with an open mind is a good approach - though I do want my onc to answer some questions I have about it first.

I think you’re the first to start rads - amazing land mark, well done you. Will be a wonderful feeling when all those that post to this thread have finished their rads and are living life to the full again.

No better day for a sermon Lynn, least you didn’t send me off to sleep x

Keep perky chemo queens :0
xxx

Hey Ladies

Just reading all your posts about food etc with interest.

I’m not into reading anything that doesn’t resemble chick lit, so I’ve avoided the ‘cancer’ books like the plague! I wasn’t planning on changing my lifestyle much after my treatment is over, other than the more excercise, more fresh veg route that most of us plan…but that’s more for me to get back to my pre chemo weight than anything else!

In 2009 alone & within my circle of friends there was -

31 year old - testicular cancer
33 year old - cancer of the womb with secondaries
34 year old - skin cancer (now given the all clear after op)
34 year old - ovarian cancer with secondaries
35 year old - cervical cancer

& me - 35 year old with Breast Cancer!!

I also have 3 friends who were all treated for BC before they turned 35 & are now at various stages (mentally & physically) along the ‘after cancer’ journey…

Are we just an unlucky bunch?..or is there more to it?

There seem to be more & more young people diagnosed with cancer than ever before. We have a healthier lifestyle than our parents (none of whom, Thank God & touch wood have cancer), eat healthier, excercise more, we don’t drink much at all & generally can’t see any reason why we have been dealt this card!

I’m at a loss as to why cancer chose me and the only plan I have to fight back is to get as fit & healthy as I possibly can incase, God Forbid, I have to fight this fight again in the future!

Unfortunately, I don’t have the Tamoxifen decision to make…I’ll be coming out of rads & into the future on a wing & a prayer thanks to my triple negative status…fingers & toes crossed they direct some more research in that area & come up with something for us sooner rather than later!

Apologise for my rambling post! I think my view on the whole thing is that there is more to this cancer crap than what we eat & how far we walk each day. We all have friends/family etc who’s lifestyle is way unhealthier than ours & they have a far rosier hand of cards than us…very unfair!

Can you tell I’m having One of those days? LOL

Anyway…Good Luck to everyone lucky enough to me moving on to rads & also to anyone joining me in the Chemo Club this week…I’m having Number 7 of 8!! WOOHOO!!! All going to plan I’ll be finished Chemo 3 weeks on Thurday…I’m soooooo excited!! :o)

…and to the Girls lucky enough to be going to CP…have a blast! Hopefully it’ll be something you all decide to do again & I can tag along next time. ;o)

Love to All

Hxxx

Hmm, I’m beginning to think there’s some sort of cancer conspiracy going on. Since I was diagnosed last July I have had one neighbour (age 50ish) two doors down diagnosed with a brain tumour now undergoing chemo and another neighbour two doors up diagnosed just before Christmas with breast cancer - she’s about my age. And the doctor three doors down had cancer in his twenties, he’s now 40ish.

Is it something in the water? Could well be with the industrialised nature of our lives and its over processed food and lifestyles.

Not sure there is much we can do about it to be honest other than to live as well as we can. Moving to a desert island might do it but not sure that’s going to happen!

Hayz, your comment about triple negative puts those of us whingeing about tamoxifen in our places I think. We should be thankful that we have something that we can fight the cancer with that is known to work, in order to give us a good prognosis. I presume your extent of chemo is to cover all bases in the absence of any further treatment. Fingers crossed for you and for all of us. Lol - just thinking that crossing fingers is probably as good as a vegan diet the way I’m currently going!

Really tired (but not unpleasantly if you see what I mean) tonight and the zapped boob is very hot although not painful. Surely the side effects can’t be setting in after just one session of rads?

Rads is easy, the waiting for the appointment is the worst bit. Had a bit of a nightmare this morning when the car wouldn’t start and had to scrounge a lift off the father in law. Spent £100 on a new battery so it had better not do it again!

Bath and early night to bed for me tonight I think.

Night all, hope your SEs don’t keep you awake.

Helen.

p.s. the hot flushes might be getting less intense, but I don’t want to think or say it in case they all come back with a vengeance lol.

Just reading the lastest posts makes me feel that the incidence of cancer is now higher than the 1 in 3 that is quoted.
Again and I don’t know why but my direct family has been dealt the cancer card.
My Dad - Bowel and skin cancer
My Sister - Skin cancer, no spread
My Nephew - age 23, cancer in his neck (no spread)
Another Nephew - Non Hodgkins Lymphoma age 10 with 2 1/2 years of Chemo
Me - Breast Cancer
Genetic link?? Possibly.

Hayz and anyone else having chemo this week - good luck, your’re almost there now, not long. Then we’ll all be joining Helen soon in Rad Land. Not sure if I’m looking forward to having this tatooing thing for Rads.
Lynn xx
ps The reg Onc said to try Evening Primrose Oil for hot flushes - never thought this worked. Has anyone tried it?

Hi

Re black cohash and Soya Isoflavines I tried those - seperately - for quite a while for menopausal hot flushes and did not work for me = then succombed to HRT which worked wonderfully on flushes after a nightmare year - then 18 months later discovered tumour!!!

I too think that cancer is becoming an epidemic the incidence of breast cancer amongst my colleagues and ex- colleagues (mostly under 40) in a company of approx 45 woman is very high. Me and 3 others and at least 3 ex employees!!!

It does not make sense. No one is spending enough on looking for the cause - more on the medical solution.

Will try to get fit and eat more veg - even though I do try to eat healthy most of the time it is hard to give up the cakes and sweets that chemo and Christmas has given me the excuse to cram down my throat lol - Tonight I made a fruit salad out of browning skin bananas and mandarins before they go mouldy - added a litle it of cherry liquer - watered down and with a little sugar in (to preserve banana lol) and covered it in my homemade yoghurt - it was delish and made me realise I enjoy fruit again rather than mince pies and heroes chocolate- just did not fancy it when it was sitting on the side in the kitchen - motivation and returning to Slimming World soon will help. xx Lynb xx

Wow, it is incredible how many of you know people close by that are affected by cancer. It is staggering! When I got my diagnosis, a cousin of a friend of mine started his chemo for a lymph cancer (now in remission thankfully), but other than that I knew no one that was being affected by cancer. How strange!

Like you Hazel I was going to steer clear of cancer books mainly because they seemed to blame lack of exercise, poor diet, smoking, drinking too much alcohol etc - the complete antithesies of my life, so was too p1ssed of by them to read them. However, I was pointed in Jane Plant’s direction and am pleased I have read it, simply because it has given me the questions I want to ask about radtiotherapy, that I didn’t know I wanted to ask. And, because it has given me the confidence to raise my complex menstrual history with the the radiologist, which is something I probably wouldn’t have done.

Interestingly she blames diet, in so far as the chemical / hormonal content of food in the western world is concerned, which makes scary reading. I wonder how many other emminent people would agree with her, or would be able to blow her theories out of the water? It certainly would go some way to explain the widespread incidences of cancer that you have all encountered, as it seems to be totally indescriminate in the way it ‘attacks’ all and sundry? Lynn your family must be bewildered by your personal experiences of cancer?

Helen, I’ll join you on your desert island - sounds lush - oooo I wonder if Trumpet got away? Hope so, bless her! And you’re right, I should be more grateful that I have the opportunity to have tamoxifen or other to help prevent recurrences, cos like Hayz I would be devastated should I ever have to fight this battle again. I’ve been able to do it once…but again, ooooof doesn’t bear thinking about!

Been an interesting exchange and certainly food for thought, but sorry if I made the thread a bit heavy for a while! Tomorrow I shall be posting about far more important stuff, such as the threat of in growing hairs in tricky places. Crikey it is bad enough on the legs after a good waxing, but there are more ‘difficult places to get to’ (such as the back of the head ladies), which presents a far more difficult challenge in the prevention of hair wot wants to grow in the wrong direction.

Lotsahairylove to you all
Loo
xxx

hi Loo, sorry to jump in, just wanted to ask (as i havent read the jane plant book) what questions to ask the radiographer? My main concern has been that i will be having rads to left chest wall and i am concerned about damage to heart and lungs.
I agree with you too about lack of exercise ever being a problem, if i had of exercised more i would have been doing it in my sleep. I think maybe i drank too much red wine though.
take care
anna

Hey Loocie…

…now I want to read the book too!

Have ordered it from amazon & will read it with an open mind…not convinced I could live the rest of my life without milk, plus, my cancer only score 3/8 for hormone receptors, but it gets rave reviews & I’m interested to see what she has to say.

What kind of stuff does she suggest you ask re rads? I didn’t have any questions other than making sure that I don’t have to have one of those masks & have my head bolted to the table! I so don’t think I could cope with that…am freaking out in case I need an MRI scan in the future!!..Mrs Claustrophibia! LOL

Don’t apologise for making the thread heavy…I think it’s interesting to see things from different perspectives & after all we all want the same thing…to get thru the rest of our lives cancer free & if we can share info that helps us with that goal…fab! ;o)

I hope that my triple negative comment wasn’t taken as me having a go at the ladies who are in a dilemma about Tamoxifen. That wasn’t my intention. I plan to ask (beg) my onc for Tamoxifen! If there’s a chance it’ll have even a small benefit to me I want to take it. As I said, my cancer scored 3/8 for hormones, so surely there would be some benefit to me taking it?

I should be seeing my onc in the next couple of weeks to discuss rads, so I’ll get her take on the whole Tamoxifen thing then.

…anyway…a far more important question! With TAX did anyone elses hair continue to grow back in, but seem to kinda have bits falling out too? My hair is over 1cm long (WOOHOO!) now & I really don’t want to loose it again with only 3 weeks of Chemo left!

Take Care Ladies :o)

Hxx

Anna, ask the radiographer/oncologist anything you want. Don’t remember the Jane Plant book saying anything about rads but I looked at it a few months ago and didn’t read it all so maybe I missed it.

My oncologist was at my planning session, I didn’t realise oncologists did the radiotherapy as well as the chemo - it’s good that they have a continuity to the treatment.

As for asking odd questions I read on this forum back in the summer when I was still making decisions about treatment that having radiotherapy would prevent me ever again diving due to potential lung damage. I asked the question of my breast surgeon, who said she’d never heard of it, but said ask the oncologist (and she even put it in her letter to him, so she didn’t treat me as though I was mad). Anyway, I brought it up at the consultation before my rads planning and at the planning session he came out with the xray of my boob and showed me where all the radiation would go, and how it would miss my chest by so many millimetres which would guarantee no lung damage and that I could continue to dive. I was pleased that my concerns had been treated with respect and listened to and taken into consideration.

Having said that, today none of the radiotherapists, the on call nurse nor the doc they asked had ever heard of the dermatix which I am putting on my SNB scar (recommended by bcn and prescribed by my GP) and they’ve said I can’t continue to use it, even though it’s only silicon and won’t do any damage.

And they also laughed at me (nicely) when I asked if the radiotherapy would make my boob hot as I thought it was today. They said it shouldn’t do, so I’m probably imagining it lol.

I found a great book today in the Macmillan library. Called Lifestyle after Cancer by Robert Thomas - all about the myths and facts over diet and complementary therapies etc. It even had a bit in there about putting magnets in your knickers which made me laugh out loud in the waiting room for rads. (that one is definitely consigned to the quackery bin). I am very sceptical about all these diet and lifestyle books but this one is written by an actual doctor not some so called nutritionist (such as the fake Gillian McKeith) and it seems to be very good and readable.

Loocie, I find Jane Plant’s theories about industrialisation and hormone pollution very scarily possible. How do we deal with that one? Not sure it’s realistically possible if we are to remain in mainstream life.

Lynn, for hot flushes I am currently taking:
Venlofaxine (antidepressant)
oil of evening primrose
starflower oil
sage tablets
magnesium, zinc and vit B6 tablets
some unknown Chinese herb stuff from my acupuncturist.

My onc said stay away from all phyto-oestrogens such as black cohosh or soy isoflavones as they may perpetuate hormone sensitive cancer. The evening primrose/starflower are the same thing basically and are supposed to work but take 3 months plus to have an effect. I’ve had hot flushes non stop since Nov 23rd and they are starting to ease in their viciousness now, I can get a reasonable night sleep again. Not sure if this is just because it’s so cold outside or if I am acclimatising, but I’m happy that I am getting to cope with them a bit better. I hope tamox doesn’t make them too much worse.

Anyway, just typing about hot flushes has brought one on - typical!

Helen.