hi Maria
that sounds very like me, my first one was hormone positive but my 2nd one was triple negative… as its triple negative there isnt really much other treatment options after surgery except chemo and rads.
like Bev i didnt need chemo with my hormone positive one, which i had in 2006 as i had no nodes and it was only 1.3cm
but the cancer i got in 2009 was 1.9cm plus areas of high grade DCIS, and lymphovascular invasion, although node negative i still needed chemo.
yours is small and its good there is no nodes, but triple negative cancers dont respond to hormone therapy so it pretty much means you would need chemo… i was on tamoxifen at the time i was diagnosed with my new primary, and im back on it now as i hadnt completed the 5 year course for the first cancer.
hope you are recovering well, and good luck with your onc appt.
Lulu x
ps there is a triple negative section in the forums too especially for us TNBC ladies.
Thank you Sandra and Lulu,
Sandra, you made me laugh, thanks. That’s just what I said to my Mum on the phone, very fast, appointment only about 10 days away. I’ll probably feel better after a nights sleep.
Lulu, I realized that we had a lot in common and sent you a private message. What is lympho vascular invasion ?
Love to you all
Maria
lymphovascular invasion you will sometimes see it written as LVI is when some cancer cells have been found close to the tumour but within the lymphatic vessels or the bloods vessels or sometimes both.
this means that somebody with LVI has a slightly increased chance of the cancer spreading to other parts of the body, its often not taken into account when deciding on chemo regimes but i think more and more oncologists are using it as a means of assessing the risk of recurrence or spread and helping the team decide on the best course of treatment.
the main route for recurrence or spread is through the nodes but with lymphatic invasion it hasnt quite made it to the nodes yet as its still in the vessel and likewise vascular invasion means its in the blood vessel at the site of the tumour… but what they cannot see is if microscopic particles break off as these could travel around the body within the blood or lymph fluid.
i hope that makes sense.
Lx
Hi Marial
Well… 1.1cms is tiny and no nodes is the best news! The fact that you’re triple neg now just means that hormone therapy won’t work this time so chemo may be the way forward, but they’ll take other things into account too before deciding on your course of treatment but it sounds like its been caught really early.
This is the reverse of what happened to me. I was triple neg in 2005 and had chemo and rads but this one last Sept was ER+ and as it was only 1.4cms, they said chemo wasnt really of any benefit this time.
So I can take Tamoxifen for this one.
Keep your chin up…try not to worry about the triple neg thing. I have 2 friends both triple neg…one is now 8 years since diagnosis, the other 10.
Love Bev xxx
Hello every one, I wish you a happy Sunday
Bev, Thank you for all your positive comments. The statisics do seem to be on my side so I don’t know why I am still shell shocked aout my triple neg results, but I suppose still not knowing what the next step will be, doesn’t help. Mind you a friend who was triple negative died a few weeks ago after a battle almost non stop since 2005.
Aqua, Thank you for your thoughts, my boys have been great and I’ve got some good friends too. But as one of then said, when you live on your own there is no-one to disturb you in your thoughts, and they do tend to get out of contol sometimes.
Sandra. Thank you for asking for my news, I was really touched. Yes I have been more quiet, but I am still here reading everyones posts and re-reading everyones messages on my posts.