Hiiii, im 25 years old and was diagnosed with DCIS last september following an operation to remove some tissue, i have had a lymph node biopsy and is awaiting results on friday…nervous. I have got to have a masectomy soon, still waiting for my appointment, I have spoken to my plastic surgeon, who have told me more in depth of what I will be having done, but i am so very worried, i dont know any one around my age who has experienced this, i feel horribe, worthless, very emotional, i have a very supportive partner which does help, i havnt really spoke to any one who has been in them same boat as me i just could really do with some conversation of people who have been through it too…xx
Hi, so sorry to hear of ur diagnosis. I was also very young when diagnosed, only 23! I fortunataly didnt need a masectomy, only a lumpectomy, but i have seen reconstruction and it is very good!! So try not to worry about it too much (easier said than done, i know!) Do you know what treatment you are going to need? I was diagnosed in July 2009, had chemo, radio and i am now on tamoxifen and zoladex, so if you ever want to chat about any of them treatments, let me know! Would be good to chat with someone my own age about what we are unfortunatelly having to go through!!! ![]()
Sorry to hear that. While I cannot help you directly, I would like to say make sure your partner gets support. It can be very difficult supporting someone when all the thoughts are bouncing around your own head.
Paul.
Hiya, sorry to hear your news ![]()
there’s a thread for girls in their twenties on here which you may find helpful. There’s quite a few girls on it. At 36 I’m an oap it seems…
Take care and good luck with your treatment
vickie
xxxxxx
Hi, Thank you, yes it is very daunting experience, it was just such a shock, im having a mesectomy and immediate reconstruction with implant and latissimus dorsi flap (muscle from the back)i have read a few stories about people with DCIS and most of them have had treatment after but No one has spoken to me regarding this, is it advisable that i mention this when i go in for my results, just so many questions you think of when your not in the hospital!! i should write everthing down and take it with me, i lost my home around same time too and a good friend passed away so it has all been a bit hectic, and my emotiona are all over the place xx
Paul,
Thank you yes he says he is fine but i know he is very concerned,
Thanks Vickie xxx
Vickie;
What a terrible shock for you. I’m ancient compared to you, so my experience and thoughts won’t really help EXCEPT to say that I had mastectomy and LD flap reconstruction together - and though the recovery was uncomfortable and worrying at the time, and although losing a breast is a shock - after a year has passed it looks really good. I haven’t had the nipple done, but it ‘feels’ like my breast and the skin is still my skin and I can feel touch. It takes a while for everything to settle, but it does. My cleavage looks NO DIFFERENT and I can wear my underwired T-shirt bras. I prided myself in having a good, fit body - and now I do have again. Even without a bra, my breasts sit at the same level with the same weight and I actually have forgotten that I’ve lost a breast - the new one is part of me.
However, it really really takes time - so don’t panic.
love Annie
Hi i was only 22 when diagnosed last oct. I had a masectomy in nov but had no reconstruction as of yet. I was very nervous about the operation but is wasnt as abad as i thought. I wasnt in any pain and was only in hospital the day before and came out the day after the op. The worse part of the op was the drain i hated it but you can come home with it in mine was in 5 days. I am now having chemo having my third one next week. I have a great bc nurse and any problems i have i ring her. Are you having recon at the same time?
Keep a positive attitude and always look towards the next step to recovery.
michelle xx
Vickie, of course he says he’s fine - we are taught to say that!
He will probably be feeling the need to support you right now, and is unlikely to admit to what he will be feeling. Some of the thoughts he has had will probably be pretty scary - they are normal.
There are quite a few partners on here - it may be worth pointing him along.
P.
Hi, i’m in the same boat as you!!!
I’m 17years old and was diagnosed 3 days ago, mastectomy booked for the end of march! i’m absolutely terrified and i don’t know how i am going to deal with it. i am still in school and having to leave so it’s very hard! although i’ve told all of my friends about the cancer i’m too scared to tell them about the mastectomy. although i have alot of people supporting me and i’m very lucky for that… i just need to talk to someone who is going through the same thing i am!
Get in touch if you’d like to talk about how scared you are because i completely understand and am going through the same thing!
I wish you all the best and i hope all goes well!
ellie x
25 yr old and Ellie
my heart goes out to you both. i’m a grandmother compared to you two. I’m 51 and had my mx middle of Feb. I really can only imagine how you both are feeling, I know how scared i was. The op was fine and easier than i thought, recovery is a bit different and I feel as though I have reached a plateau, however I know it’s still early days for me. I did’nt have recon and don’t regret that decision.
Ellie, it may be easier to exlain to a close friend about the mastectomy, at least that way you’ll have someone to really talk to afterwards, I’m sure all of your friends would want to help as much as they can.
Sending you both all the love in the world
Wendy xxxxx
hi i was 22 when had a mastectomy in nov. Like u i was very scared but i it wasnt as bad as i thought wasnt in much pain at all and came out of hospital the next day.I looked at my wound very often when the dressing was on to try and get use to it and as soon as the stitches came out i sat for ages looking at myself in the mirror and i did this everyday which i think helped me deal with it as now im pround of my scar! Im now having chemo only got 2 left and that also asnt been as bad thank god. if u would like to no anything else or just want a chat feel free xx
Hello to all you beautiful and lovely YOUNG ladies out there, i feel for you all. i am just 48 and had WLE 2 days ago awaiting the results…now before i go i will tell you i had mx recon 14 yrs ago and had been well, i had zolodex and like a lot of you learned to love my new breast, the best was despite it all and chemo too, i went on to get married and have 2 beatiful children and fed them both myself with 1 boob, i have been diagnosed with DCIS in the other breast and hoping thats all it is this time, keep up with your check ups. best wishes to you all xxI
Hello to all you beautiful and lovely YOUNG ladies out there, i feel for you all. i am just 48 and had WLE 2 days ago awaiting the results…now before i go i will tell you i had mx recon 14 yrs ago and had been well, i had zolodex and like a lot of you learned to love my new breast, the best was despite it all and chemo too, i went on to get married and have 2 beatiful children and fed them both myself with 1 boob, i have been diagnosed with DCIS in the other breast and hoping thats all it is this time, keep up with your check ups. best wishes to you all xxI
hi thank you everyone for your comments, i have had my masectomy and immediate reconstruction, the drains wasnt pleasent but i was out in 6 nights and the staff there was amazing, had so much support, it was three weeks ago now, im still very sore and bruised but get better each day, went for my results last week and they found 2 lots of DCIS in the removed breast and Grade 2 Cancer , and they are now suggesting Chemo and Tamoxifen!! Thought it would be all over after, i just hope i dnt lose me hair!! they also talked about me freezing my eggs?? would that delay the treatment quite a bit not too sure?? Sam xxxxx
Its me again, they did speak to me at the time of mx, about freezing eggs, I was too old???at 34 I had the ovarian suppressant zoladex and tamoxifen for two years I had chemo too and that seemed to be the risk factor for infertility? and so was in a clinical menapause, ie no periods ect, when I stopped taking them 2 years later My system kicked back in and periods restarted and I went on to have two children born when I was 39 & almost 41!!! I am not sure if the freezing of eggs will delay treatment, but it’s worth considering as a safety net if you want a family later on. I remember being very upset when they told me I was too old!! p.s my two are beautiful and worth all the hassle XXX