sal will be thinking about your in the morning.
wish you were able to come to cp but your just need to come to the next one ;0)
good luck and hope the op goes well… and we are here for you when you dont how you feel.
love and hugs
Lxx
Hi girlies
Sally has asked me to update you all. The anaesthetic made her really sick and she has been sleeping on and off a lot. She is very sore but says she will be fine - what a trooper!!
She send her love to everyone.
Lulu, Al and I will try and keep in touch from CP this weekend, I’m hoping someone is taking a laptop!!
Lots of love
Shenagh xx
Good old Sal - thanks for updating us She. I’m bringing my iPhone so we’ll have some Internet as long as the forest gets network coverage!!
Al xx
That’s fab Al!! Think we’d all be lost without our technology!!
See you tomorrow xxx
sal, another hurdle over, rest up and take care. thinkin of you.
al, she, lulu - see you tom
J
Jayney…She mentioned that you had your Herceptin yesterday? How are you doing hun?
My drain came out today…and Im feeling fab !! Ha I have really amazed myself how I’ve dealt with this whole mx thing…feel like I can take on anything now…hmmm bar chemo again…no thank you!
Hope you have all gotten over your fabulous weekend girlies and are all feeling well xxx
Sal you wont remember me but i posted on here back in the summer. I’ve just come back from CP with the girls where you were toasted and spoken of frequently. So i really hope you will make the next one us girls are planning, hopefully september time.
Hope your feeling ok. Take care
Gina xx
Gina I was gutted when they confirmed my surgery date was the day before CP !! Looks like you had an amazing weekend with friendships formed that will never be broken !! It amazes me that although I wasnt there the lovely girlies still remembered to toast me…the girls on here never cease to amaze me and I couldnt get through this crap without them !!
So although I missed out on the opportunity to meet you all and have a real good laugh…wild horses wont stop me from coming next time !!
Hope your doing well xxx
Sal - I know I’ve already posted on fb, but wanted to say that I’m so proud of you. I know how scared and down you were before your op, but look at you now, you’ve bounced right back - like I knew you would. You have a fab positive attitude and will really look forward to meeting you in person when we next all get together.
Love
Al
xx
sal im so pleased your recovering well… it would have been brill to have you at cp but its even better to hear how great your doing… and we will be dragging you along to the next one no matter what.
love and hugs
Lxx
hi all
you looked like you were having a blast at centre parcs!!! i adore that place please put me down for your next trip.
i finished my chemo on the 14th jan, same day as sals mx. wow a week ago doesnt time fly when you feel pants!!! i felt very strange post chemo i set myself up for fanfares, chocs, flowers, a page spread in the times, anything really but forgot i would feel rubbish for a bit!!!
i cant believe the chemo journey. i feel a totally diffrent person to the one who initially sat in the chair holding my arm out for the drugs but my head was screaming NO. i cant believe ive done it!!! arnt we strong women to deal with all this??
radio next for a month not that i care cant touch me now ive done chemo.
love to you all. im off to google myself a certificate of achievement!!! hx
well done Bright eyes - strange feelin isn’t it. I can look back now and admit how cr*p I felt at times, because I feel so much better now. If I admitted it back then I suppose I feared I may not have survived 8. I start my rads on 1st Feb, so you won’t be far behind.
Rest up
xx
Helen have you managed to find yourself a certificate for finishing chemo yet? Hope your feeling better now and can start to truly enjoy that feeling of finishing chemo !!
Al and Lulu thank you so much for your lovely comments !! I’ve kind of lost track with whats going on with everyone else at the moment…Ill have to have a read of the CP thread and catch up with everything I think…
Lulu and Jayney Ill be quizzing you both on the rads…Ive got to have a couple of weeks to let my body recovery from the surgery and then Ill start rads…they’ve told me to keep March free for that !!
Hope your all doing well and the withdrawal syptoms from CP arent too bad !!
Hello to all the other strong girls too xxxx
sal
iv now had 11 rads and boobie is a bit pink and tender but not too bad… i was due to start my rads 3 weeks after my ladst chemo but it was delayed due to another scare before christmas so was actually much better as still felt really chemofied when i was due to start but now im feel more able to cope with it… they do make me tired and i fall asleep during the day almost every day (and then ping awake as per norm LOL).
def having CP withdrawals… this time last week we were having an absolute hoot… pinked up to the nines… cant wait till next time.
i got my genetic test results yesterday and am brca2 positive so now having lots of new decisions to make… my head is kinda spinning about it all but at teh same time i feel kinda relieved that there was a reason why i got it twice… but now sis and kids also have a 50% chance of having and and either mum or dad have the gene too… so mum is being tested first as shes had BC too… also means we have more decisions to make regarding another baby as it too would have 50% chance of getting the gene… although as some others have posted by the time they would be at risk and old enough to get tested would be another 20 years and sooooo much could be changed in that time… i just have so many questions yet again!
hi to all you other BC babes.
Lulu xx
Lulu - have posted on “May” thread…
Did you get the cabbage for boobie or was it lettuce??? My rads start on Monday and I am dreading it. How strange, you would think after chemo it’s a doddle, but I think perhaps its the thought of 4 weeks of treatment. Having a bone scan on Wed so now worrying about that …
Sal - hope you are recovering well and restin up…
Helen - did you get your certificate. Are you coming out of the chemo haze yet???
Where are the rest of your loverly ladies???
love to all
Jayney
xxxx
yep feel fine post chemo now!!! alas no certificate but im dead proud of myself.
lulu wow re your results!!! i would remove everything. even though my results were negative i still want risk reducing surgery on other bood i.e. mx and recon even prior to getting recon on current side. i would even get overies out and anything i dont need just to reduce my risk. i think over the next few yrs i will do all these things. just to live is enough and at least you know so you can help your family. that part was very black and white for me my thoughts are with you its all so bloody hard!!!
love to you all hx
just been reading back some of our old posts on here… cos despite all my positive thoughts about trying for a baby my oncologist has scuppered it saying shes pretty sure iv gone through the menopause… i just thought cos i still felt young that everything would be preserved.
i just happened to mention my joint pains and insomnia and didnt think they were related…
think im just feeling sorry for myself at the mo… i mean how many knocks can 1 person take… 2 lots of BC, triple negative, grade 3, chemo, bloody brca 2 gene, possible further surgery and now the friggin menopause… deep joy!
anyway im off to bed to brood some more about it…
although i know loads of folk are worse off than me so i shouldnt really grumble… but i will.
love from pretty peed off lulubelle :o(
xxxxxxxxxxxx
dear lulu
you’re certainly allowed to feel sorry for your self!! bc is rubbish!
& the fact that people are worse off doesn’t make anything easier for you! so share your feelings!
i’m certainly not a ‘younger woman’ but just want to send you some love jk x
Hello Ladies,
Well I can finally join the majority of you and say IVE FINISHED MY CHEMO!!!
The last one has been really tough as got an infected seroma under my arm thrown in too which was agony, but finally coming out the other side now, not sure if rads will be going ahead on 15th with me having had this infection but I just want to get started asap!!
Did anyone have any side effects to their first herceptin as have mine on Monday and a bit scared about it as its the un known.
I hope your all doing okay and sorry not posted for so long but havent even been able to sit at PC with my arm, keeping up to date on Facebook mostly,
Just read your post Lulu and hope your okay?
Lots of love to you all and Thank you for being their during the last hellish four months!!
Nicki X
Lulu - you have every right to feel angry, you have had so much to contend with and still have some tough decisions to make. I know how you feel about the baby thing, cos I feel the same. I feel robbed as my Onc pretty convinced that my ovaries have been fried too from the chemo. He’s giving me 12 months for my periods to return… You know where I am, anytime… Big hugs
Nicky - well done you - sorry you have had a horrid time and a seroma to contend with as well. Check the Biggleswade thread, have suggested a meet up… Where are your rads??? I’m having mine at Addenbrokes and just completed No 3 today!
I had my first 2 herceptins with my last 2 chemos and no issues. I am due to have No 6 on Monday. They give me a piriton and 2 paracetemol tabs before the infusion, runs through in about half hour with a couple of flushes. I have been getting a bit of bone/muscle ache which could be the herceptin, but could also be results of chemo. All in all, no real issues and drive myself there and back. Good luck with your first one.
Hope all you other ladies are ok???
love to all
Jayney
xxxx