The waiting and wondering is so hard – I do so feel for you. I hope the outcome isn’t as bad as you’re thinking it will be although I do remember as a sort of protection mechanism trying to prepare myself just in case and I still do. Once you know your treatment plan, this helps a lot and it’s a relief to get started as like you I wanted to get it sorted and get it out of me asap! I had lymph node involvement and I’m doing ok thankfully.
It’s such a stressful situation. I found I did get irritated with friends/family as although they most likely tried, there was no way they could understand how hard what you are going through is for you.
Thinking of you and sending you positive vibes for the scan results. Come here whenever you want to let off steam!
30years old hi i was only diagnosed a few days ago im have invasive ductal carcinoma im grade 3 stage 2 im having a bone scan this wednesday coming and hopfully thats comes back ok within a week or two will start chemotherpy to reduce the size of the tumour i was feelimg so alone in all this my head every where i feel sick i feel so very low
On this site you will never be alone. This illness is terrible and so scarey. Waiting for test results I found the worst bit as scared of spread. However, it does get easier and its great to vent your feelings on this site as everyone understands.
thank you julia you have been a big help to me your right waiting you your results is the worst not sleeping to well a min very scared thinking has it spread and keep on worrying about every little pain its been 6 days now that i was diagnosed im having a lot of pain in my left breast i just want this thing out of me. what stage are you at julia ? again thank you for all the kind words it dose feel good to have a little vent or two
I still remember those early days after diagnosis, even though it’s over a year ago now. It’s terrifying! I also had chemo first and it shrank the tumour by a huge amount. It’s such a shock but I think that once you start your treatment you will feel a little better because then you are actively doing something to get rid of the little blighter.
As Julia says there is always someone on this forum to give you support. Keep going honey and try to take it a day at a time.
Hi Billiegirl. Im the same started chemo last week (first one)to try reduce the lump before surgery. I dont feel too bad the now just terrible heartburn! I agree the waiting on test results is the worst i had a bone scan and a ct scan
, what a relief when i was told they were ok. Im sure you’ll be fine this site is invaluable when your looking for information, or just need a good blah!!
take care
Annex
Hi,i know just how you feel.I’m 34 and was diagnosed in feb Just had my 2nd cycle of chemo (having 6 months of chemo follwed by surgery)I have 2 young children and still feel a bit shell shocked. Found this site really useful.Famlily and friends have been great but the ladies on here can really understand what you are going through both physically and mentally. Hope everything goes well for you,chemo has not been as bad as i’d thought(no sickness),losing my hair was the worse thing but even that i’m getting my head around. Good luck x
thank you ladys having better day today had a call from my breast nurse today she said i might have to wait a week or so for my chemo she dided say why so now im worrying that my tests have come back with bad news im back at guys this tuesday i just want this lump out of me like yesterday ((hugs and loves to you all)) wish me luck x
I hope your chemo is going ok. I haven’t been on here for while as I just haven’t had the energy. I know exactly how you feel. This whole thing is just so horrible, from the moment they diagnosed me. I have been having nightmares all the time and can’t sleep some nights. Sadness consumes me in big dark heavy waves when I least expect it. I had a moderate radical mastectomy 2 weeks ago which was my biggest fear for some reason above and beyond it spreading and being secondary was loosing my breast. I am due to start my chemo next week for 4 months followed by radiotherapy. I have lost my breast and some days I am ok about it as I have my 2 little boys and my life and I now know that it hasn’t spread and wasn’t in my nodes! So this is all dealable. I am now questioning whether to safeguard my fertility for the future but think that I won’t and I am going to concentrate on getting through this and reconstruction and what will be will be with the fertility.
I really hope you are feeling stronger, I don’t understand why your breast care nurse would say why are your worrying, its all you do is worry about the results what a weird response that would so annoy me. Good luck I hope they come back with the right news.
I hope you are both ok and coming to terms with everything. It does take a while and you will have up and down days.
I was diagnosed in Dec 09 and I am 29 with 3 children aged 2, 5 and 7. I have found the hardest thing is not being able to do very much with them, especially whilst recovering from my bilateral mastectomy and also the week or so after chemo. Make sure you make use of any offers of help!
Hi Ruth,
Your title struck a chord with me as I was 34 when I was diagnosed in October 2008. I had a lumpectomy, IVF as I haven’t had children yet, chemo, radio and now I’m on tamoxifen. I know exactly how you’re feeling. I wondered if I’d ever stop crying but actually I’ve proved how strong I am and cancer has made me so much stronger as a person. I’m now 1 year on since finishing all my treatment and I’m back teaching full-time and considering if I might have children in future. It does get better. Just keep talking. xx
Hi everyone
just wanted to bump up this thread again. Im 41 with three children and like a few of you ladies am having my treatment first followed by surgery. could i ask if anyone decided to have a bilateral mx because of the risk of recurrance or just the affected breast? I am thinking strongly about this at the minute as i want to ask the surgeon when my appointment comes up next month and am trying to determine how she will react or what she will advise as they picked up spread to a few of my nodes during the tests. I just dont want to be back at this point again if i can do anything to avoid it!
Sorry to hear you a feeling very anxious about what lies ahead. I must say I felt the same about post op and how i would look etc as it is difficult losing a breast at a young age and to me unexpected. I am now booked for my surgery on the 19th May for a mastectomy and in hind sight I want to cure the cancer and the rest will follow. Like my nurse specialist said I am work in progress. I have opted for reconstruction with tissue expansion. I am a little unsure of what follows after but taking it one step at a time is helping as its best not to fill your head with too much in one go. The last few weeks have been a bit of a whirlwind from finding the lump to being diagnosed with stage 2 invasive DCIS BC. I am hoping all goes well and hope that this helps? There is lots of support out there and I have made many freinds over the last 3 weeks. I wish you all the best.
I’m 43 and was diagnosed 2 weeks ago with DCIS and also Invasive Carcinoma, I’ve asked for a bilateral mastectomy as my mum had this blasted disease twice and died from it - that so ain’t going to happen to me and therefore I want them off!!! I’m divorced and bringing up my two beautiful boys by myself - they have got a strong mum who is going to fight this!!! Sending you and everyone on here lots of hugs xxxxxx
Good luck everyone with you surgery. Its really scarey having your breast(s) removed. I know. Its true what everyone is saying it does get easier once its done. I also recommend bio oil and aloe vero gel for the scar once its started to heal its made mine much better. If your having the mx and reconstruction at the same time it looks great. A breast buddy friend showed me her’s and its fab. Unfortunately i have to wait for my reconstruction as i have to have rads after my chemo. So I am living with one boob and a a 12 inch scar flat thing. I look it and it does make me sad I happened to really like my breasts before all this happened so I do get sad. But I am trying to see it as temporary. Work in progress! I am now 2 chemo sessions in and all my hair is falling out all over the place. now I am almost finding that harder than the mx!. i only had one breast removed but am going to have the brac gene test before reconstruction and if i have it then i am going to have the other breast removed. its just not worth it is it! Sending you all love and strength. Ruth xxx
