Hi, this is my first time joining this forum.
I have recently been diagnosed 3rd time BC.
2017 cancer left breast only need lumpectopy an radiation an Tomoxphin.
2018 right breast inflammatory bC treatment chemo first to shrink the cancer then had double mastectomy an full node clearance an radiation an been on Femara.
5years later 2023 1 month ago found lump in scar tissue/ axilar area had biopsy cancerous… having surgery on 20th of October to remove. Have no idea what happens next, anyone been there.?
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Oh my goodness you have had a rough time of it. I don’t have an answer for you but wish you all the best sending a big virtual hug and hope for a speedy recovery x
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I’ve had it back in 2022 previously diagnosed in 2003 with different kind, first was grade 1 no lymph nodes, 2022 was grade 2 of no special type oestrogen positive with metastatic intramammary lymph node. I had breast conservation left breast first time. Second time still left breast but had mastectomy and diep recon. Now on letrozole but thinking of giving it up as i don’t like side effects.
It’s so unpredictable. I have been sent an end of treatment letter that says the team intends to cure my cancer. Well good luck to them. I have the intention to live forever.
Seagulls
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Oh wow!! What a journey you have been on!! If there are any positives, its that you had the strength to get this far and will find the inner strength to deal with this xx
I was diagnosed Grade 2, lobular, E+ in 2021…spread to nodes, mastectomy and axillary clearance on one side. Still sometimes feel in a bit of a spin about it and have that constant niggle in my head that it will come back…especially as I am not liking the look of my remaining knocker…a bit off colour and a bit of pain, though I have had a normal mammogram recently and my breast surgeon dismissed my concerns.
I know mine hasn’t been the same journey…but I know of someone who has had a similar experience to you.
Are you on Instagram? There is a breast surgeon who has had breast cancer 3 times on there. Her name is Dr Liz O’Riordan and you may benefit from looking her up. She also only recently had her 3rd diagnosis and that was in her scar tissue.
I send you much love xxx
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Sending you a big hug, I am on second time around…it’s just not funny anymore. Be as strong and determined as you can. Xx
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Gosh you have had it rough . I have nothing to offer except wish you the very best 
OMG!! Everyone’s nightmare. I had my 1st episode Nov 1999 and had wide local excision and lumpectomy, followed by chemo and radiotherapy. Feb 22 mammogram found calcium in my affected breast and diagnosed with cancer again. Dr doesn’t know if it was a recurrence as tissue samples from previous not available. Had a mastectomy last April 22. I didn’t need chemo and obviously radiotherapy not suitable 2nd time. Prescribed Letrozole but for the extra 2% protection decided not to have. I’d taken it for about 4 weeks and then got Bell’s palsy. Don’t know if it was connected. Can’t offer any advice, just sending lots of hugs. When I had my mammogram recently, they didn’t check my scar site. Did you find your latest lump yourself?
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Hi, yes I did find it myself and went to my GP an he sent me for a ultrasound result from that was nothing.
I then was due for a checkup with my oncologist and she decided to do biopsy and thats when it was confirmed it was cancer.
Just playing that agonising waiting game now for surgery in 2 weeks time then wait at least another 2weeks for the results an the multidisciplinary team to decide on treat. I already no i won’t have radiation as that’s not an option.
No idea about any other treatment.
Thanku for taking the time to reply to my questions.
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that’s bad news. How old were you at your initial diagnosis? I was 47, then got diagnosed again and had surgery last year aged 67, found lump a few months earlier but wanted to have reconstruction so moved hospitals to get this. I have really bad pains in my wrists, legs and fingers due to letrozole and oestrogen depletion. I am thinking of stopping all the treatment as I am fed up with it all. Surgery is the most effective way to stop cancer from growing. adjuvant treatment has a marginal effect compared to surgery. I like oestrogen as it gives you strong bones. It’s also a lot less bother to live your life without loads of medications and visits to hospitals. They are now giving me appointments without bothering to check whether I can go. I work in various voluntary jobs and they send me all these private messages with appointments which I can’t reply to as they come from Caller ID Private numbers. I find this frustrating, particularly as they told me they were doing an end of treatment plan. How come this involves a lot more treatment including physio? I don’t need physio as I walk the dog three or four times a day, I belong to a gym and spend hours every day doing my garden including mowing, digging, and pruning trees. I am also losing weight. Something most nurses could do with. I fear they don’t practice what they preach. I don’t want to take tablets that cause heart disease, osteoporosis and arthritis so I can have a range of other unpleasant diseases in addition to breast cancer. What about my quality of life? Please leave me alone. Or consider my health as a whole, not just treat breast cancer as if it’s the only thing I can die of… Seagulls
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I agree with everything you say. I was first diagnosed 31 years ago, had lumpectomy node clearance, radiation and Tamoxifen. After 6 months on that drug I was like a mad woman. My consultant said my survival rate was 82 .5% or 82 without. I took my chances and have been cancer free for 31 years. This cancer is no worse just a bigger tumour, in the same breast, but a new primary. Very lucky again, not spread, in for a mastectomy Monday. At 67 I have decided to take my chance again and refuse any hormone medication, as you say it is quality of life, which I think becomes more important later in life.
I was 46 first diagnosed, in left breast had a lumpectopy and radiation am started on Tomoxphin.
2nd diagnosed @ 47 in right breast with with inflammatory breast cancer, had chemo first, then mastectomy an a conplete node clearance. Then 38 rounds of radiation.
Had a transflap done 2 years later.
Diagnosed again in right scar tissue 5 years later having surgery tomorrow. Can’t wait to find out what’s the team have planned for me next.
Wishing you all the best with your surgery.xx