I had my primary diagnosis exactly five years ago, multiple bone mets dx 3 weeks later, and multiple liver mets dx two years ago.
Great family day yesterday, country park and miniature railway with two of our children + spouses and our four grandchildren, the youngest now 2 months old, who at one time I thought I might not live to see… Even my capecitabine feet behaved well for the occasion!
Our stories are all very different, but I hope this gives hope and encouragement to some.
Thanks for sharing that Mrs Blue, it’s always such a “lift” to hear positive stories, I’m just over a year from bone met dx, so your story is encouraging. Look forward to your 10 year post!
Julie xx
I have just been told last week that I will be starting capecitabine. To read something like this gives me confidence and hope that it can work for me, too.
Hello Mrs Blue,
I have just been diagnosed with two secondaries on my Liver. It has come as quite a shock, as I was told I was in remission just last January.
I have been prescribed Capecitabine and have looked up all the main side effects that can appear after taking this drug. So I am now absolutely terrified! But from your comment that your ‘feet’ behaved - I wonder if you are also taking this same drug. If so, can I ask you how you manage from day to day, and what steps you take to try and have as normal a life as possible? I do hope you will be able to give me some advise for the future.
The Oncology people are marvellous at what they can do, but I have learned from experience the best advise comes from people who have actually had this nasty disease.
Regards - Claire