Taking letrozole 2.5 ml a targeted breast Cancer treatment Vernizio 150 mg. For those her too positive I definitely recommend taking the letrozole Or the like such as anastrozole I did not take mine after my first bout of breast cancer in 2021. After receiving chemo /radiation and lumpectomy I only took it for a few months. My cancer returned now 4 years later. I believe the hormone blocker May have helped prevent this. Take your hormone blocker. It’s nothing compared to treatments for reoccurring breast cancer. 
. You can do it it’s not that bad and the symptoms do lessen if you have them at all.
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So sorry that’s happened . We can never know if or when cancer returns but I will never understand those who advocate not taking the hormone blockers , if they weren’t necessary we wouldn’t be advised to take them . Hope your treatment goes OK
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Sending my best wishes for your recovery, Vonnie1, and for replying. X
Hello,
Thanks to everyone who has contributed to this thread.
I will be on the next phase of the journey in 8 to 12 weeks, which is rad and hormone treatments. A letter to the oncologist should be on its way, but I was told her name.
I believe in listening to people in the know and doing what’s right for you, when you have the facts.
When the process of goodbye, we will send you an appointment for your yearly mammogram was taking place, and oh did I mention rad to you? With one foot out the door and leaflets in hand about you take responsibility for breast health, rad, and letrozole (and they are all the same, so read that), I was told that they do have side effects. I did say I knew, but no one asked me how I knew. I just found it all quite scripted, however, I appreciate the NHS and everything that has been done to help me, even though it’s not perfect.
So onto rad and hormone treatments.
I’m having 8 to 12 weeks off from cancer conversations (other than organising work, that has a heavy workload and is stressful, and I don’t know what to do about returning between treatments - ) however I’m glad to listen to your experience
Hi, I’ve had surgery and radiotherapy and now on tamoxifen. I’m 70 year old and taking my tamoxifen at night but not sleeping and having day and night sweats. I’ve also had episodes of feeling really cold and shivering. Has anyone else noticed this? Also having headaches. Don’t know if I should take my tamoxifen in morning.
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Hi
I’m no expert and I have yet to meet the oncologist (but that will be on 20th), however, ladies say changing the time you take it, and even brand (ask the pharmacist if this applies to tamoxifen as it does with aromatase inhibitors).
I hope that helps.
Kind regards
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Hi
I’m 73 also had surgery and radiotherapy 3 years ago I was dreading tamoxifen as I had such terrible hot flushes during menopause and for many years after. But thankfully I tolerate tamoxifen quite well . I do get a bit hot at night but always stick to Tilomed brand did t get on with others as well and have a very good pharmacist who always gets the brand I prefer.
I’m hoping I can’t stop after 5 years so only 2 to go!
Good luck
Love sparkle x
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Meant to also say I take mine in the morning ! Not sure if that makes. Difference ! X
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Thank you.
I took tamoxifen at night as it kept me awake with allsorts of symptoms. Tried it in the morning, but that backfired and was worse due to nausea, dizziness and a sapping of energy, cognitive slowdown, depression- plus the hot flushes, dry eyes etc. Understandably I think, I gave up on it. The risk was low, the side-effects bad, so was a no-brainer for me.
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Hello everyone. I’m 68 and 6 months into Letrozole. I hate it. I was more healthy during radiation than I am now. I do see my MO on Aug 20 and hoping to switch to exemestane.
We all respond differently so one pill doesn’t work for all. I’m low Oncotype 13. Stage 1B no lymph involvement.
I need the quality of my life back.
Fingers crossed I have success with a new AI.
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Well I’m off Letrozole and switching in a few weeks to anastrozole. Hopefully fewer side effects.
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Having educated myself on this subject, and met with the oncologist yesterday, she’s giving her blessing that I don’t take AIs.
This is because I have enough bone issues going on without adding to them, and I’m on a low risk pathway.
Yearly mammograms will, of course, take place for 5 years. After that I’m 68 and the oncologist said ask for mammograms after 70.
I do have 2 months to think about AIs, and I’m cracking on with radiotherapy, which will start next month.
I’d really made up my mind before I went to the meeting yesterday. I just wanted her agreement, and I received it. She could see I’d read around it.
If I could say anything to anyone about breast cancer (or any other conditions) is read around it from trusted healthcare so that you know what’s going on with your body.
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Hi, at age 69 I took letrozole on its own for four and a half months during which time I also had 19 radiotherapy sessions. I didn’t notice much from the letrozole apart from some hot flushes like I used to have pre and during menopause. Skin and nail issues from previous paclitaxel chemo and some burning and tiredness from the radiotherapy worked their way out during that time and I didn’t feel too bad at all.
I’ve now been taking abemaciclib alongside the letrozole for 16 months and I’m not feeling that great at all, really feeling ground down though no particular symptom is spectacularly intolerable and my blood tests are judged ok, though not as good as they were.
There are some symptoms that could be due to either drug and whilst I’m on both I haven’t tried hard to puzzle it out and haven’t paid much attention to which letrozole brand I get.
I’m taking the 150 mg dose of abemaciclib, but going to reduce to 100 mg in September I’ve decided. I was given the choice of reducing in early July, and I wish I’d opted for it!, but will do so in Sept and go into winter snd spring hopefully a bit more resilient than last year.
After completing the 2 years on abemaciclib I’m hoping to pick up further on the letrozole alone, monitor brands etc, possibly seeking a change to the AI I take!
All the very best to all who are working through this. xx
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