Can I just ask, did you book privately without having to go via your GP?
I’m planning on doing the same as you as my routine mammogram didn’t spot my lump.
I’m not used to how going the private route works. Thanks.x
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I booked to see a breast surgeon at our local spire hospital then had a private ultrasound. Self funded as I don’t have private healthcare. You have to see the consultant first. The main cost is the scan. My GP has referred me for a chest CT so that’s NHS but to check my lungs. Had to wait about 8 weeks for it.
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Thanks for letting me know.
I’ve been told that the ‘Pathway’ requires me to have a mammogram first as an ultrasound can only look at one place, not the whole breast. Am looking at other options! Thanks again.x
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I had 2 x tumours and full axillary clearance in one arm. Both were primary tumours one invasive lobular and the other ductal. I was told by my breast surgeon that as invasive lobular can be hard to detect on mammograms, moving forward I will always have an ultrasound after my yearly mammograms. I hope you manage to get it all sorted out. X
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Hi your description could be me - diagnosed in Nov 23 invasive lobular no lumps not seen on mammogram but I had a very thorough consultant who spotted something and the biopsy showed cancer. Left side Smx after 2 WLE, 3/15 nodes involved. Had chemo, radiotherapy now on letrozole, and abemaciclib and bisulphate infusions. Just had my 1st check only a mammogram and then a piece of paper saying results in upto 4 weeks, no BCN or anyone to talk to at the time. Anxiety through the roof but my letter said all ok . My requests for further checks refused similar reasons to others but I’m pushing on. I want to feel ok but I’m not - I’m worry about recurrence, secondary with every ache, etc - just wanted to join the chat - thank you
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I’ve honestly given up on NHS with regards to reoccurrence prevention which I say with upmost respect and gratitude to them because the care I’ve been given up until this point has been nothing short of outstanding.
In my opinion, the current system is simply not aimed at prevention, it’s aimed solely at treatment of the existing symptoms. We could talk all day long about how it’s not right, but personally, I just want to find a way to make myself feel better and more in control.
So far, I’ve not found anything better than seeking a consultation with a private oncologist with the aim to get a referral for a private PET CT scan once a year. I cannot tell you how much this isn’t in my budget, but I’m going to find a way to make it work, I just have to for my own sanity.
Sending us all lots of love 
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It’s rubbish isn’t it! I hope you are ok. How are you finding all the drugs? I’m very nervous about the Abemaclib x
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Hi I’d just started to work out how, when etc the abemaciclib affected my body when I had to stop for radiotherapy so I’m starting again in November. Last time I had diahorrea quite quickly after eating so really had to plan my days and work etc. I tended to not eat much during the day and drank lots of water. I did carry my Imodium with my just in case too especially when I was travelling at work. Hang in there is my moto at the moment 
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