Advice on HRT needed...

Hello - it’s been ages since I posted here but wondered if anyone could help with this niggling question. I have BRCA1 gene and am preparing for an op to remove ovaries - since I am only 40 - they are very insistent about HRT for osteoporosis etc- but my cousin in Ireland who has gene and Breast cancer says that they would never give someone with BRCA1 gene HRT? I get conflicting information from everyone. Can anyone shed light on this please, please - it’s giving me sleepless nights thinking I could be doing myself more harm than good!
Love to all,
Grainne

Hi

BRCA1 also …

Anyone who has had oestrogen+ tumours should not have HRT. People with hormone negative tumours can opt for HRT as far as I know even if they have one of the BRCA mutations. I stand to be corrected though …

Had ovaries and tubes removed earlier this year - doddle.

Hi Grainne

You are welcome to send in your query to our team of specialist nurses via our ‘Ask the nurse’ service which you can find under the ‘Support for you’ tab at the top of this page, alternatively, you can call our helpline on 0808 800 6000 which opens Mon-Fri 9am-5pm and Sat 9am-2pm.

Best Wishes
Lucy

It would be really helpful if a specialist nurse could reply to posts in the forum rather than asking members to email your “Ask the nurse service”. Maybe more nurses and less moderators is the way forward. :slight_smile:

Hi RMW,

It might be of some help to you if we explain how our team works on the forums.
Currently I work as clinical nurse specialist on all aspects of the website, including the forums. Where it seems appropriate or I am alerted by the moderation and facilitation team I will put up posts on general issues of concern to people with breast cancer.

But we only put nurse posts on the site on general issues as it would be dangerous to diagnose online. Where our team determines that a personal approach is more appropriate we refer people to other services, often our helpline or ATN service, sometimes to other professional services outside of Breast Cancer Care.

The continued rise in use of the forums and the very high satisfaction rates from our regular surveys of people using the forums shows that we are on the right track with this approach and it gives people the widest possible choice of our services.
BW’s Tara
Clinical nurse Specialist - New Media

Thanks - I will look into this more.
Dahlia - did you have keyhole? They are unsure about whether this is possible for me since had c/section and appendectomy in June 2006 and there is the chance of adhesions!

Cheers,
Grainne