Advice on Taxotere

Hi all,

Hope you are all continuing to do well. Have my next Tax on Tuesday and then will like so many of you only have one left hoorah!
Vitamin C and chemo? Well my research indicates Vit C MAY be a better treatment than chemo itself… actual improvement in prognosis by taking chemo is not huge but hey we all want to take every chance we can get. My approach to this is to drop all supplements for approx 3-4 days on chemo day and the following few days then re-introduce them. Exception is Life Mel honey which i take on chemo day and the next 4 days. My oncologist is quite happy about all supplements i take. The only one he asked me not to take was Milk thistle…However i openly admit i was a nutrition student in early 70s and deeply impresssed by work of Linus Pauling on Vit C.

Hello EVERYBODY :slight_smile:

Update from Istanbul

The last time i wrote i was going for a small seaside break , which i did and had 5 lovely days by the beach… came back for my 5th chemo on the 4th my blood results were so and so wbc ok but sgot and sget liver enzymes elevated so as on of the t. markers went to 41 from 33
My onco says its the cumulating effect of TAC and t. markers are not reliable and the liver was affected from some previous infection most probably ( i got fever on my 2 an 3 rd rounds i remember ) this 5 chemo is quite challenging believe me, some days i cant move i am so tired with very elevated pulse and i feel my stomach also so heavy that i dont want to eat even a cereal… Today i feel a bit better so i am able to sit on my pc…and had some scrambled eggs and toast. Until now i never did neupogen injections and i hope i will finish my chemo without having them, their SE scares me. One other thing is that i am using a very high concentrate of grape seed extract since the beginning of my chemo and never had any problems up to now. I did not have the extract for the last 25 days because the product was not available on the market ( imported ) and curiously i had all this problems, maybe its juts a coincidence but i am looking forward to have it back…

And only one left, i hope i will make it…

I wish everbody a nice weekend
Hugs and Carings
Seda

PS : i am having my last treatments from my feet and its a very good change, my arms veins are not painfull anymore and no cord veins. ( had 3 of them on my hand .it was very hard )

Hi All, I was given chemo before surgery to reduce the size of the lump (otherwise surgery would have been v. difficult). Had 4 ec and 4 tax. Side effects pretty much as people have said on this thread. It’s now 8 weeks since last chemo and 4 weeks since surgery and I’m feeling better each day. The chemo had shrunk the lump from 5.5 cm to 2cm and there was no sign of bc in the lymph nodes. Just wanted to let you ladies know that there is light at the end of the tunnel and the chemo does work.

Hugs to all.

Clare

Hi,Clare that is sooo good …thank you for the post so we all can be reasured that chemo does the job…all the best to you…

HI all

well ive been to dr’s today and ive got high blood pressure now. its being monitored and go again on monday. feeling as though if the big c dosent get me my heart will…but apparently its quiet normal to get this while having chemo.

will just have to wait til i see onc on tuesday to find out if i can still have my last chemo on friday.

anyone else had this

was feeling happy about nearly coming to an end of the chemo journey now feel really fed up.

hope evceryone who had swamp juice again are ok and not suffering too much

Sally xx

hi everyone, just a quick one letting you know i have had a lovely day shopping and babysitting my baby neice today, after tax yesterday. have to make the most of the good days don’t we. might be a different story tomorrow.

Have a great weekend everyone, enjoy the sunshine, luv Pauline xxx

Hold on in there Sally - you still have only one to go. Soon this will be behind you. You have so much inner strength and have supported so many of us. Now we are all heer rooting for you.Stay calm…Love C

Seda was thinking of you the other day when i saw flash floods on the news in istanbul hope you r ok! Glad u had a gd break, i only have one to go now and we will make it!!!

Feeling a bit grotty very achy but stomach ok at the moment! thank God for imodium!!!

hope everyone is ok, Rachel and Pauline hope you miss the bus!!!

love to all Debs xxxx

Well I managed on 4 hrs sleep - heart racing (steroids me thinks), I was looking for chums at 4.50 bloody typical you were all asleep. I’m going to nod off in the sun this pm and then hopefully have a bbq with the kids. Still feel ok just a bit wobbly but thats not unsual to quote that fabulous welshe man sir Tom Jones ( he can have my knickers ant time lol)
it amazing the advice on supplements isn’t it? I have been taking vit c for yrs to support my wilting immune system (i have a chronic lung condition that means i do get very very nasty infections which nearly always need hosp admission doh!) wot time does the bus arrive girls?
Hope you are all OK.
Usk is manic at the mo - we have a large agricultural show going on and i think most of the welsh vallies have turned up!
Seda I just love Turkey, it is one of my all time favourite places and the food … hummmmmm…
Clare thank you for inspirational note - i needed that today my love thank you so much!
Pauline try not to snore to loud tonight OK
love to all rachel xxxxxx

rachel, we could have had a coffee and chat at 4.00am this morning, i was awake too. never mind hopefully more sleep tonight with no steroids today, get your ear plugs ready. Just starting to feel a bit sick now and no taste.Bus hit me around 7.00pm day 3 (today) last time but debs seems to have gone a day longer this time before it hit her.
Bet your enjoying your new note book, thats what i use, just right for sitting on knee and watching tv over the top arn’t they.
Hope your not going topless again this afternoon, too many strangers in the village by the sounds of it. Gas men are used to it though.

Debs, sally, julie, krisid, hope your all doing ok after your swamp juice, we are nearly all there girls, enjoy the sunny weekend, luv Pauline xxx

Hi folks,

Those of you having problems sleeping due to the steroids; If you take your first lot with an early breakfast and your second lot after a latish lunch you should sleep okay. Don’t take them after 2pm. It worked for me. Also, I took a Piriton at bedtime and it helped me to sleep, much better than sleeping tablets.

Hope this helps,

E

Hello Everyone,
I just want to say, I don’t post very often, but I always read your posts. You always cheer me up, relieve anxiety and make me feel ‘normal’ again. You’re all wonderful!Big hugs. xx
I was delayed for a week before my 5th chemo (Tax). I had an abscess. After antibiotics it cleared up. I am due to have chemo tomorrow, but found another abscess last night!! I can’t believe it! Has anyone else had this? How many times can they delay chemo without reducing it’s efficiency?
Lots of love to you all.
Elaine. xx

Just posted on the other thread when i thought oh what the heck lets say hi to you lot too lol xxxx
I think re the delaying of the chemo that the risks of infection during chemo far outweigh the slightly reduced efficacy of missing the 3 weekly cycles. I always taught my students to understand that chemo takes the body as close to cell death as possible without killing the patient & only allowing the patient sufficient time between doses to keep alive - oh boy it feels like it doesn’t it???
caught the taxotere bus yesterday evening, now in pain pain pain!!!
Love my new toy but hate having to open my eyes, the weather is so beautiful but I can’t seem to sit comfy.
Pauline forget to say congrats on winning the insurance gamble! I was paid out last month and all i want to do is buy a rag top car - sod the mortagage.(i haven’t btw) Did you cry? I did cos I realised just how little money really makes up for the loss of so much time - oh careful I may be getting profound.
off for a nap xxxxxx

rach, sorry to hear your suffering. did you have 100%, i had mine reduced to 80% because of the bad side effects last time. They told me my quality of life was important and to remember we are only having this as a precaution and to mop up any stray cells, we are not trying to shrink anything so we could afford to reduce the last 2. Keep your pain killers topped up, i let mine slip once last time and god did i know about it so don’t try to drop them off before your ready.
When we won the claim, yes i was happy but also sad. It made me realise how serious this must be for them to agree to to pay out and today in the shower i realised that the payout must be what my lost boob must be worth, if you know what i mean. We are being sensible and paying mortgage off but we will have treats when hubby gets his redundancy in the next few weeks. Yes i have that to look forward too soon, him at home all day. will do my head in, hope he gets another job too.

fluffyduck, hope you get sorted soon, abscess …not nice. i had my 5th chemo delayed. not good after getting all siyked up is it. Hang in there.

Luv to you all, Pauline xxx

HI,Pauline i like your new photo …cant wait to see in miror MY real face cos this is CA face… i hate it! My hair is growing back 1/2 inch like old man hair…just as well start feeling cold with the weather change…counting 1cm a month growth so will take 4-5 months…Pains- this time i have taken the codeine wich made me sleepy all the time but pain not so bad …tomm is my last injection. as i have neupogen inj…Rachel i find the pain in my joints first TAX was horrible now it is different mild… i have taken only 2 tabl ibuprofen ,so may be for you will be same …Mumszy glad to hear that you are coming to the end as well …Debs how are you?..Sally last one is coming this week for you…take care everyone…

hello all
i too found that ahes were not as bad on second tax,and i also have injection two days after chemo
is it me or has it gone really cold,as anyone got there heating on yet,
elaine nice of you to join us, sorry about the abcess , is it in your mouth ?
e i am on sleeping pills at min, but when they finish if i have trouble will try piriton
well i really need to do some cleaning up-but do i have the energy, noooooooooooooooooo
hugs to all julie m x

Hi all,

aches still there, didnt have a good night last night and stomach started up again so hit the imodium!!! Still so tired, might try and get dressed today!!

julie it is getting cold especially in the evenings not put heating in yet though.

hope evryone is ok, the end is nigh girls!! dont think i could do more than 3 tax!! love Debs xxxx

HI all

well blood pressure still up so gp wants extra bloods doing colestral etc.im sure its the chemo thats causing it as never had any bother with it before, i see my onc tomorrw so maybe she can shed some light on it, got last chemo friday.

ive noticed since ive had the tax that i feel the cold more and thinking of wearing wolly hat in house LOL not putting heating on yet.

im gonna check out steriods to see if they can cause hight bp.

hope the aches and tummy stuff clear up soon debs.

hope your ok too pauline and anyone that ive missed off, chemo brain has really hit me recently lol

love to all Sally xx

morning ladies, just thought i would let you know, the 2nd tax doesn’t seem as bad as the last on, fingers crossed so far anyway. day 5 now and managing without the painkillers, day 5 last time i was drugged up in bed, i am up but not dressed so that is progress. Must add i only had 80% this time. Got no taste, shakey and tied but i am not complaining.

Debbie and rachel, sounds like your both still having the full side effects. Hang in there both of you, you should both start to come out of the other side soon.

Julie,forget the housework, it will still be there tomorrow

Sally, hope you sort your BP out this week, you don’t want any delays at the final hurdle girl

Krisid, know what you mean about CA face, thats all i see now, so obvious now, i hate it too. Managed to disguise it well up to now but its a bit hard when you have no eyelashes to make up and i refuse to add even more false things to my body, got enough to worry about with boob and wig without worrying false eylashes are still in place and not slipped and turned into a mustache

Take care everyone, luv Pauline xxx

Hi all again

just googled the steriods and guess what one of the side affects are… yep high blood pressure, what a surprise …not

love the new photo pauline ment to say earlier.

Sally x