Not been on here much of late, been getting on with life as best I can since dx 16 months ago. 4 years of Tam and 9 more Zoladex left. For the last 2 months I’ve felt even more tired that usual but put it down to various viruses doing the rounds.
A few days ago I found a pea sized hard lump in the indent above my collar bone (same side as bc). Is this a supraclavicular lymph node I can feel? Is it something I should get checked out sooner rather than later? Has the bc spread? (I had swollen lymph glands in my neck/throat earlier this year but they turned out to be viral in cause so don’t want to go rushing back to GP with this).
I have an appt with my BCN in 3 weeks - should I hang on and wait to see her in case it disappears?
Personally, if it’s been there for a little while and not going away, I would ask to have the appointment with BCN brought forward if you are concerned, if only for your own piece of mind.
Certainly cannot hurt to see them next week instead of 3?
Thought I hadn’t seen your name around lately. I was also dx 16mths ago.
If I were you I would get it checked out sooner rather than later. If it is nothing you will know and if it is something you can crack on with treatment. I think your bcn would be the best person to speak to - can you phone her tomorrow to see if she thinks it’s something that is likely to need immediate attention?
Thanks for your thoughts - yes, I’ll ring my bcn tomorrow. Just the thought of going through all the bc stuff again is something I don’t want to even think about.
Hi Valkyrie
agree with others - best to get it sorted sooner rather than later. also wanted to send hugs and support and to say I’ll be thinking of you
Hope things work out [positively
Monica xxx
Well, don’t I feel a total wally. Called into the breast unit on my way home from work and saw the BCN who very kindly said my consultant was still in the unit from holding clinics so off she went to find him. To cut a long story short - he couldn’t feel anything except the normal elongated muscle/ligament thingy!!! I explained I’ve felt that too but the lump is next to that, but still he couldn’t find it and he wouldn’t refer me for an U/S because he couldn’t feel anything - catch 22. I can understand his predicament but I don’t feel reassured, esp as I can still feel the little b****r. I don’t know whether to laugh or cry now.
Anyway, my appt with the BCN on the 23rd is being swapped to a clinic appt with the consultant but I feel as though I’m going to be wasting his time. Heigh ho, onwards and upwards.
Hello from what is at last sunny Morecambe - just to say hope all turns out well. I’ve found they are very good at the unit in checking things out and not making you feel like you’re wasting their time and I would rather have all the available checks than sit at home worrying !
Actually we may have almost passed today as I had to go for a drip in oncology then to see the bcn as I’m struggling with the side effects of the hormone rubbish. She didn’t make me feel like I was being a drama queen and now I’ve got a note for a prescription for anti-depressents to hopefully help reduce the hot sweats and help me sleep better. Fingers crossed.
PS I had swelling/large lump above my collar bone that surgeon was worried about and ordered an U/S on but it was confirmed as the lymphoedema I was already getting treatment for.
We probably did pass in the street! Hope the hot flushes/insomnia reduce a bit for you. How are you getting on otherwise? Of all the side effects from the hormones I find the insomnia hardest to deal with - I’m shattered by the time I finish work and it gets harder as the week wears on. I take Nytol occasionally to help (on GP recommendation). It does help but you need to take it about 8 pm - any later and you feel like a zombie when it’s time to get up for work next morning lol
Not sunny at all here in Glasson - raining like I’ve never seen it before. Off to Morrisons/Aldi now to stock up on ‘provisions’ - going camping in Cornwall on Tues for a week or so - just hope the weather improves, otherwise might be finding a B&B for a few nights instead!!!
Enjoy Cornwall and hopefully you’ll get some sun…I must have been typing during the very brief 5 mins of sunshine yesterday as it all changed pretty quickly - wind and rain have been so bad haven’t they?
I’m ok really - not ill just the rubbish side effects from the zoladex in particular driving me nuts ! I felt I’d had enough the other week and had wondered about having a couple of months break but the onc said it wouldn’t be advisable as I am at such high risk of recurrence and faster spread. My bone mets have spread a tiny bit so can’t risk it. Hey ho !!
The last month has been very stressful as well as my dad went to Kendal for a hand op but ended up having a quadruple bypass in Blackpool, my other half was rushed from GPs to RLI with an angina attack (they think) so had a day in there and on the same day my aunt in Oxford was rushed from her GPs to hospital with heart failure…anyway it appears to be calming down now and all on the road to recovery !
We’re off to Mallorca in Oct so am looking forward to that and I’m still going to silver jewellery class at Cancercare - love that.
Anyway, have a fab trip away and take care. Do let us know how you get on with these checks and I’ll keep fingers crossed. I’m back at oncology clinic on 17th in afternoon and breast clinic and oncology drip on Oct 2nd so may pass in street one day !!