Hi there
Diagnosed aged 52 agressive gr3 back in 2013.
13 nodes positive and some growth beyond the nodes. I think 16 removed so majority positive.
Chemo and radio.
3 yrs tamox
Was supposed to be 7 Letrazole but I fought the UK system and am remaining on it.
I live life to the full travelling and riding horses. Yes i have scares still tho. Just had clear mammo. Good luck.
T
Thank you for your response itās reassuring that youāve managed to be clear for so long. Iām only 41 so Iām hoping the same for me.
Hi Chantelle just been reading your post and not sure how old it is? Are you still doing ok? I had 26 lymph nodes removed 23 cancerous a 46 mmm grade 3 tumour removed started chemo but think my days are numbered so scared itās spread 
@jules8 i wish you luck. I hope it hadnāt spread anywhere else.
Hello @jules8 im doing ok thank you! Only just seen this message as I turned off notifications, sorry. How are you? xx
Hi Chantelle thanks for your message lovely to hear off you. I have also been off the forum for a number of reasons. How are you doing ? Really hope everything is going well and not sure how far or if youāve finished your treatment? Iām just half way through. Started my 1st docetaxel Wednesday just gone took them 5 attempts to get cannula in 
. So far no real side effects just the normal fatigue. Hair, eyebrows and eyelashes neatly all gone and find that hard and upsetting but make up is a wonderful thing. I had a lift a few weeks ago as my Ct scan 6 months from my last was clearā:grinning:. Please let me know how youāre doing ? 
Hello again Julesšso youāre half way through chemošš¼well doneā¦.you somehow get into a flow & know what to expect & before you know it youāre done!
Sorry to hear you had a tricky cannula fitting 
I had a picc line fitted & having it fitted initially was a nightmare it was a godsend!
Ok, so Iām 14 months on immunotherapy (ambeciclib), letrozole & zoledex. All good, just achy joints mainly fingers & feetā¦I can put up with that!
I had my 3rd year mammogram last Friday & my 6 month CT scan Tuesday - just awaiting results for bothā:pray:t3:
I feel good & hoping for good results x
Thank you for messaging me & apologies for not replying for so long. Letās keep in touch.
X
Hi Chantelle ā¦ yes getting there but been a rollercoaster everyone initially were telling me how high risk I was for recurrence and really messed with my mental state. Throwing everything at me radiotherapy for a week after chemo and then also going on ambeciclib and zometa and something else. So youāre 14 months in front and quite comforting to hear youāre coping with the achy joints think I could cope with that. Really hope your results from CT scan Tuesday and mammogram come back with good results everything 
will be thinking of you. Please let me know. Did you lose your hair and if so is it now coming back ?
Would love to keep in touch. I have not reached out for any counselling as thought I could deal with it. Have a great family, lovely husband and daughter and beautiful 20 mth old granddaughter who I need to be around for. Sending love and hugs thanks for replying
Hi @jules8 message me & we can chat on WhatsApp or something a bit more private? xx
Hi - I am new here. Just had lumpectomy and LICAP Flap repair 1.5 weeks ago. The pathology indicates that 3 of 3 lymph nodes have macrostatic cancer and one extra (outside the node) slightly; this was from Sentinal Node Biopsies/extraction.
As a result now they want to do Axillary Lymph Node Dissection. Iām still unsure what specfic lymph nodes this entails. From everything Iāve read this second surgery has sort of high risk of lymphedema and the outcomes not too much different than radiating that area. So Iām not sure whether to have that surgery. Trying to arm myself with as much info as possible before my follow up this week.
My cancer is Lobular invasive, not ductal. Donāt know much but chemo maybe not that effective. I donāt do well with drugs so I donāt like what Iām reading in here about drug side effects either.
Any thoughts on ALND or not? Thanks in advance and good luck to you all.
Did you have chemo?
Iām confused about it and about to add a topic related.
@kaq yes I did
Bless you. Stay strong x