How difficult for both of you.
Nothing has an effect you want - just adds to the problems!
Has any doctor suggested CBD?
Hi Kerryb, just an update on how I am getting on with Tamoxifen: I have been taking it since November and not had any bone pain. My mood has lifted and I feel normal again. Insomnia has improved greatly. I am post menopausal so Tamoxifen improves bone density. It also lowers cholesterol (cancer cells use cholesterol as a pathway through the body). I still get hot flushes but they are not so intense and claustrophobic.
I would definitely not go back on Anastrozole.
Did you make any decisions on what to do regarding taking another AI? I hope you are feeling ok. Good luck
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@jcoll21 this is really positive to hear, I’m meeting with my oncologist for the first time today - its still unclear if I’ll have chemo first, waiting for some genomic results to see if its worth it, and then it would be the AI. However, all I’m reading our hideous side effects so it really helps to hear that you are managing on Tamoxifen.
Hope all goes well today 
and you find a treatment that suits you. Best wishes, Jane xx
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Hello,
I am new to the forum and just read your post from last March regarding all the side effects your wife was enduring. I am curious to know if you/she has found any resolutions and if she is still suffering from these issues. I feel terrible for her and you as I know what it is like. Her symptoms sound very much like what I went through in 2009 while in the peak of menopause. I won’t go into all the details just yet because if you have found a solution, there is no need to rehash it all (hopefully you have!). If you have not found any solutions, I am happy to share what did help me.
I write this because I have just finished radiation for my second bout with BC and I am about to go on Anastrozole and I am petrified of going through all those symptoms again. I chose not to take it the first time because I had DCIS, stage 0, had surgery and radiation on that breast. Against my Oncologist"s advise, I thought my chances were very good of no return. Well, here I am again 6 years later with stage 1 ER+ in the other breast. This time I will try the medication and see if I can tolerate it.
Good luck to your wife and you on this crazy journey we are on.
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