Sorry about your drama in the night keyfeatures-hope alls ok now. I think the granocyte injections do the job-all my bloods have been well within the normal range (so far).
I have to say that Fec no 3 completely and unexpectedly floored me! Have been very sick and had such bad joint pains that I could hardly walk (as a 23 year sufferer of arthritis I thought I was pretty hardcore). I’ve also been in some dark places emotionally particularly in relation to my 6 year old who I’ve not really been able to look after on my own. Its hard not to feel guilty although I know its irrational. Haven’t been able to go back to work or even get dressed for a week which has been a pain
Anyway this won’t last and I keep telling myself that I’m half way through chemo now and looking forward is the only option. I don’t know if I’m the only one who is secretly glad (I mean in the relative sense) that this is happening when the weathers so dire and its approaching winter.
Hope you are all ok x
Sorry to hear that sukiem, must be really tough no being able to care for your child as you would want to. Have you got plenty of support around you? I seem to remember you mentioning your mum in an earlier post. I’m not at work at all so am mightily impressed by anyone managing to get through a work day whilst on chemo. I had some pain in my hips and jaw, worse at night and only for a few days each cycle, put that down to the granocyte injections. It’s not been as bad as yours sounds. Is it rheumatoid arthritis you suffer from?
I was glad about doing the chemo through the autumn / winter until I realised it meant being at the height of flu season - every time I go out I seem to be surrounded by coughs and sneezes! Never noticed how ill most of London is at this time of year before. I’m even more determined to move overseas for a good part of the year in future. We have some land we were planning to build on starting next year before all this kicked off. I definitely feel I need a more mediterranean climate! Still trying to hold onto the dreams I had before diagnosis.
Nicola x
Thanks Nicola-I have got support but I tend to run myself into the ground before asking for help which needs to change. My mum stays with me for a long w/end after chemo-bless her she lives in Lake District and is not keen on London. My sons dad is great too.
To be honest I’m doing a much diluted form of my job at the moment which normally is v stressful. I have a condition called Ankylosing Spondilitis-the irony was that the week I was diagnosed with BC I was told my AS was totally stable.
I think its important to hold onto dreams, aspirations and normality as much as possible. Where are you planning to build? x
a quick hello to the sept lot sukiem.keyfeatures,lollo etc. despite a few teary days im telling myself im bouncing back, have put another post out there about books, whether anyone has been given or found inspirition site, or messages that will give me something to read each day to get me through the bad ones.???
have asked my bcn on ansaphone. i would just like a thought book that i could dip in and out of.
have been down to the chemo ward re a itchy head, dont know what caused it, I thought it might be one of my hats, was given piriton and some coaltar shampoo which has been unavailable for months, what a pain, cant be bothered to go back down the ward, so hope the piriton works, might make me drowsy, well thats happening anyway.
love to all of you. did we have a september name??
annexx
Hi everyone. Just thought I’d post to keep the thread going. Went for FEC4 today, but it didn’t go ahead in view of my chemo-induced tinnitus. Straight to docetaxel on Monday now, which means I might actually finish early January if there are no holdups. Also had my ultrasound scan, but think I have to wait until I see the oncologist to get my results. Three more weeks, which is a bit frustrating.
wishing you all a good weekend with minimal SEs.
Hi Anne, hope your antihistamines are helping your itchy head. We don’t have a name for September. The birthstone for September is sapphire. Or it’s also harvest month. So we could be Sapphires or Harvesters?
A book of poems or short stories might be good to pop into? Will have a think about any specific ones with a more uplifting tone. x
The September Sapphires sounds ultra glam ( which is exactly the opposite to how I’m feeling/looking) x
Hi lovely ladies, just checking in, haven’t been on the computer for day. Had FEC No. 3 on Tuesday and have been feeling OK, had a couple of busy days but feeling a little achey and tired this morning and stomacj feeling uncomfortable. I’m very glad it’s Autumn/Winter makes had and scarf wearing so much easier.
Hope you all have a reasonable weekends and are able to enjoy it as much as you can.
Hugs Nicola x
love the idea of September sapphires,
hope you have been having a nice weekend. it was bright and sunny here so i walked up to my High Street and got a nice sandwich made up from the deli. have worked through feeling rough and am starting on the ‘Say Bah to cancer’ book. will tell you if its good.
sdfmeg, is the scan something we get halfway through, or is yours before surgery?? if im nosy, dont worry about answering.
love to all
anne xx
Sapphires it is then. We may sometimes be blue, but we keep on sparkling. Would love to hear how you get on with the book Anne. I’ve got The Cancer Survivor’s Companion as my parents sent it for me - dipped into it but feel it’s a bit early yet as it’s really for when treatment has finished.
Nicola x
I will put that as my entry on my notebook. I may sometimes be blue but I can be sparkling. thanks Nicola
Hope we dont have so much rain this week, I will be forcing myself down to the seafront for fresh air.
good luck and thoughts for anyone with treatments this week. I just have the torture of having those plasters torn off when my dressing is changed.OUCHHHHH!!!
Anne xx
Hi Anne,
I am having chemo first, so more chemo cycles and scan half way through. Considering trying to corner BCN to see if I can get any info, as all radiographer would say was that it had changed and now I’m starting to fret about it. Not sure I can wait until my next appointment with oncologist.
sdfmeg - Sounds like a good idea trying to push for an earlier result. It would be better to have no answer than such a cryptic one. Hoping it’s good news for you.
Nicola x
btw sukiem - think I am joining you on the Real Housewives addiction. Definitely a guilty pleasure.
Nx
When is the real housewifes on? sounds like something interesting, will look back on the posts to see what you wrote.
emma, really hope you can ask for earlier answers,its like dangling carrot,and you are just left wondering.
good luck
love to all
took hat off in a hurry this afternoon and all thin hair was on end, looked like a weedy scarecrow. good job i was at home!
anne
Hi to all you Sapphires (how glam are we?) hope everyone is doing ok as our next lot of chemo is approaching. Number 4 for me on Wednesday and I must say i’m feeling a little bit apprehensive this time for some reason. I haven’t suffered too badly so far and have even managed to hold on to some hair with the help of the cold cap. Eyebrows are there but thinning slightly more on the left than the right for some strange reason. Apart from a very tender arm (apparently its called phlebitis) which the chemo seems to make worse I haven’t been too bad. Hope your all doing well and good luck to everyone having treatment this week.
Lol
Just thought I would check in to say I had my first TAX this afternoon and it went ok. I know the SEs can be nasty and kick in a couple of days on, but day 1 has been a nice surprise. FEC always left me feeling drained, reeling, and as though I was drunk. I actually feel normal at the moment. Wouldn’t have known I’d had chemo, apart from the hours I spent on the ward.
Anne - it’s on ITV2 after Jeremy Kyle - starts 3.40pm I think.
Hi gorgeous sapphires
I’m really glad that you are a real housewives fan Nicola as it was a big thing for me to admit!. The trivial arguments and backbiting are hysterical (the Orange County housewives are even better).
I know some of you may be having your 4th chemo this week-just wanted to wish you all well (and also would be really grateful to hear anyones experiences of taxotere-I have my first next week and am slightly nervous) xx
Hi Ladies
Just wanted to drop by and say good luck for round four especially those of you starting out on taxotere for the first time.
Sdfmeg did you get your scan results yet? I’m also having chemo before surgery (is anybody else on here doing that apart from Sdfmeg and me?) and had an MRI last week. I’m seeing the consultant tomorrow to find out what success the chemo is having. I’m really nervous about it - I think from having a prod it may have shrunk a bit but am of course completely paranoid that I will discover the chemo isn’t working at all and the tumour has grown.
Then EC no four on thursday…or at least that will be my plan if the chemo is doing what it’s supposed to do.
Am quite envious of those of you getting to watch daytime telly as with three kids under six that is a very rare option for me. Still there’s always Cbeebies to take my mind off things 
sx