Think I’m becoming a hypochondriac!! Having posted a while ago about numbness on stomach (which did prove to be from pressure from bone mets as rads sorted) and then agony when I couldn’t get out of bed with a bad back - too much spring cleaning!! - I have developed another odd sensation and am wondering whether it’s realted to spine mets or just one of those strange things…
For the last week I’ve had the feeling of a burning sensation from my waist and across stomach area and on my back - it seems to be where my thunder-knickers are but I haven’t changed my washing powder or anything and there’s no redness/rash/spots etc. Did wonder if it was too tight jeggings after eating too many cakes but it’s not that. Also googled it re possible shingles but as yet no rash etc from that so I’ve ruled that out. It’s a bit like the feeling you get after you’ve sunburnt yourself a tiny, tiny bit too much. Otherwise I’m fine and enjoying the sight of the sunshine at last. Do get some backache but that’s normal for me.
I haven’t put any cream or anything on as there are no outward signs of anything and CT and MRI scans within the last 3 months ‘only’ showed the bone mets that had spread a little bit and for which I had a rads blast. Surely it can’t have made another vertebrae collapse so quickly…Oh, no numbness or tingling in legs so that’s a good sign I know.
So any suggestions, ladies???
Thanks, Liz
Hi Liz,
From time to time I have the burning sensation. I would describe mine as how it feels if you scald yourself and the ‘burning’ pain goes on for quite some time. This like the tingling/pins&needles is nerve related. The areas affected would depend on which vertebrae are affected by the bone mets. I get the sensation in my upper & outer thigh which ties in with the problems to my lower spine and it comes and goes. I had quite a long spell of it last year, but this year so far it hasn’t occurred.
Dawn
xx
Thanks for replying Dawn - can always rely on you !!!
Yes, it is a bit like the sensation after a burn but it is more annoying and odd feeling than painful at the mo, thankfully! Hope I’m not speaking too soon…My spinal mets that were treated were higher up my spine but they did mention an area lower down that showed on the MRI and I think this would tie-in. I had wondered if this could be somehow nerve related as the onc told me about radial/deferred pains etc.
Anyway, am off on hols mid April so will see what it’s like when I get back and if it’s still there, I’ll mention it at my checkup due the week after my return. My couple of weeks lazing around in the sun will do me more good than anything else !!!
Liz xx
Hi Liz
I had a spell of this burning/stinging/tingling sensation across my upper back and shoulders last autumn. I also wondered whether it was shingles, diabetes, collapsed vertebra (like you do 
), and next time I saw my onc I mentioned it to him. He sent me for immediate tests, which came back clear, so I’m guessing mine was nerve related and linked to spinal mets, but not as serious as it could have been. It hasn’t recurred. Hopefully yours will disappear too.
Emjoy your hols. We’re off camping for the easter weekend. Will be lovely if the weather continues like it’s been today …
Alison x
Hi, hope you are all enjoying blue skies. I’ve been told because our vertebrae can close up a bit…mine did on hormonals, better now I’m on chemo, nerves can get a bit ‘mashed up’ so to speak. I have also had the burning sensations, fleetingly, and have not had them for ages but they have always happend when I have had no detectable active cancer (from marker results) and while my bones were healing.
x
Hi
Lizcat… I asked for another bone scan because I had pains in my shoulder and spine, burning kind of pains.
I saw doc yesterday I have no sign of bone cancer except for one rib met and it was a spot in the middle Of my rib not near my spine and at a spot at the edge of my illiac bone. So the pain I have must be linked to wear and tear and getting on a bit…!!!
Problem is every pain and we know what we all think… I know we have to be monitored alot, but I suppose logically a bone met has to be a certain size to show on a scan and also to start causing problems and I am no doc but I should imagine that would take a good few months after a scan that showed clear areas…but we worry about everything, as any normal person would in our situation…
I’m going on a scan free holiday and going to enjoy myself for a bit, fed up with worrying!!!
Txxx
Thunder knickers??? No wonder you looked comfortable yesterday Liz???
Sue x