I’ve got tnbc locally advanced I’m havin neo–
Adjuvant chemo grade 3 tumour I can’t make head nor tale of this advise needed pls xxxxx
I had the same diagnosis last July and went onto 3 FEC 3 TAX chemo. They said I had 2 x Grade 3 tumours of 50mm (which is big as I am not big breasted). I had a mastectomy in December and in the post op biopsy they could only find one Grade 2 tumour of 8mm so the chemo had shrunk the tumours considerably to the extent that one had gone altogether! Although the Oncologist said that they would not normally give radiotherapy for such a small tumour, because they were so big to start with and because triple negatives can’t take hormone treatments afterwards (tamoxofen or herceptin etc), this was the only treatment available and recommended and so I am now having 20 sessions of radiotherapy every day. I wanted it too because breast cancer appears to be in my family and I am having genetic testing too. The statistics for recurrence of triple negative bc are worse than others but I am just trying to be positive and take each day at a time.
Lots of hugs and you can always phone the help line or your Macmillan nurse with any questions.
Jan
x
Hi purple42
It sounds like you’re feeling a bit confused at the moment. As Jan has mentioned please do give the BCC helpline a call on 0808 800 6000. Here can talk things through with a trained member of staff who will be able to offer you support and information. The lines are open today until 2pm and Monday to Friday 9 to 5pm.
I hope this helps.
Best wishes Sam, BCC Facilitator
Hi purple
I’m a TNBC too… But didn’t have neoadjuvant chemo, I had mine after surgery… I have a brca2 gene mutation and have had BC 3 times to diff primaries… One hormone positive grade 1 and then 3 years later a TNBC grade 3 then a recurrence of the TNBC in my chest muscle nodes 2 years after that.
Getting my last of 6 taxotere and carboplatin chemo on Thursday and then getting assessed to see if I can get more rads.
Good luck with your treatment.
Lulu
Hi I had chemo first am tn they give you that to shrink the tumour for surgery I had a v gd responce on chemo feel free to pm me we have a tn thread if u wld like to join us tc Laura
Thanks Laura xxxxxx
Where is ur tn thread Laura 
xxxx
Hi it’s on the left hand side of page i can’t get the link up if it don’t work I’ll post y coment in it
Here the TNBC recurrence thread that Laura mentioned…
share.breastcancercare.org.uk/forum/viewtopic.php?f=10&t=28071&p=634524#p634524
Lulu x
I am another TN as well - mine was locally advanced (according to pre chemo scans, which are not always accurate though). I had neoadjuvant chemo - 4 FEC - then surgery. They stopped my chemo as my tumour was long gone by that point, and decided to operate. I had breast conserving surgery and a full axiallary clearance. There was no cancer cells found at operation!! Nothing left, and nothing in the nodes, just a small amount of scarring in one. I then had 20 rads.
My response to chemo was dramatic. I went from an egg to something I could hardly feel in one cycle. I stopped being able to feel anything 2 days after my second chemo. I was diagnosed breast feeding, so when I stopped my tumour was so easy to feel, embarrassingly so.
Some TN tumours can be very chemo sensitive. I had a metal marker coil put in mine in case it vanished so they could still remove the area to prevent recurrence.
Manny what a fantastic response.
Lx
I am new to this forum (today in fact). I had neoadjunvant chemo when I was diagnosed back in Sep 2009. I had a 2.3 X 2cm grade 3 TN tumour in my right breast. They said as they only had chemotherapy to treat TN cancer then they could monitor response to each round of chemo by regular MRI’s. They said they could then ‘tweek’ the treatment to ensure the correct and most effective treatment for me. That seemed to make perfect sense (and still does). Unforuntately, after epirubicin / cyclophostomide then Taxol (forgive spelling) I had no response and treatment was withdrawn after four rounds of chemo. BUT that was me. Apparently many TN cancers respond very well to chemo. I also think that I did benefit from neoadjuvant because at least I was not subjected to chemotherapy treatment which was not working. I think all those who are diagnosed with TN breast cancer should be offered neoadjuvant chemotherapy.
hi manny my lump is 7,5cm i had my first chemo in feb and i have to say i cant feel my or find my lump i have had a bit of rough ride on the chemo im also havin the neoadjuvant chemotherapy.
well wot a rough 2 weeks ive had, after 2 fect enden up in hospital with d n v bug yuk was in there for 4 days
came home felt ok then this monday started with a high a temp of 38 so ended up back in, bloods dropped to 1.2 so wasnt let home till today had to have the picc line put in as veins are poop and im covered in bruises , should have had 3rd juicing today but its had to be put back a week,
i also got a lumpy head lost all hair now but stilll got my eye brows n eye lashes,
ive booked in the feel good luck good but cant get in till august.
good luck to all u ladies havin there chemo and hope ur havin a better time of it than i am xxxxxx