Any help to Lyphoedema sufferers?

Public Archive
1

I have read much helpful advice, as have so many of us, from Sara (Bahons) who will be so much missed on these forums and who was such an expert on lymphoedema. As well as the personal loss to her friends and family, we shall all miss her words of support and her wide knowledge on this subject.

At the risk of “teaching my grandmas to suck eggs” - I wonder if everyone with lymph. problems is aware of the British Lymphoedema Support Network? (easily found on the web)

I have had a lot of help from them over a couple of specific queries I had re my own breast lymphoedema;

Just recently they forwarded a query I had re shoulder surgery (having had no response whatsoever on the forums!) to the British Lymphology Society who also responded really quickly and were very helpful

Thought it would be helpful to pass this on

British Lymphology Society
11 Oldbury Road
Cheltenham
Gloucestershire
GL51 0HH

Tel: 01242 695077
Fax: 01242 695125
thebls.com

2

Hi topsymo

As you say Sara will be so missed on the forum her knowledge on lymphodema was extensive. When I first had my op she send emailed me a copy of her ‘Little lymphoedema bible’ which I would be happy to send on to anyone if they pm me their email address. It is also full of helpful tips. I am lucky enough not to have developed lymphodema (yet) and am sure her advice helped me avoid it so far.

Sorry didn’t see your post when you first put it on but good to know about this society thanks.

Anne x

3

Hi
Topsymo-thanks for posting that info. I have also found the British Lymphoedema Network useful, but was not even aware of the British Lymphology Society- good to have those details
C x