Hi all, well really wish I wasn’t a member but unfortunetly the dreaded C word has become part of my life. Was told I have breast cancer on the 15/08 and have undergone surgery to remove 2 lumps and the affected lymph nodes. What I really cannot get to grips with is that mine is hormone neg and her2/neu neg and I cannot find any info on it. Anyone else in the same boat? I will be seeing the oncologist on Thurs to see when chemo starts, but would like to know a little before then. Feeling really low but have to go as I have two little babies (one is 2 and the other 8mths) and bottles to do.
kind regards.
Hi
Sorry you have had to join us on here, but you are not alone and will find heaps of support from everyone on here. Sorry can’t help with your question on her2/neu neg, but there will be plenty of people who can.
Just wanted to let you know, I was dx in July with bc and secondary liver and started chemo on 8 August. Had second chemo on 29 Aug, and it is doable, and although we are all petrified about it, it is not half as bad as we think. I have also not had any side effects only hair loss, and have been doing really well. I am 39, but have a daughter who is 3 and a little boy who is 10 months on Thursday, so know how you feel with regards to them etc. They will be your rock I promise, and give you the strength to fight this and get through it. And they keep you smiling. If your kids are anything like mine I don’t get a moments peace and no time to sit and dwell.
Once treatment started I felt a lot better. I get my low days but so does everyone. But just wanted you to know that whatever you feel, we are here to help you. Whether it is to cry, rant, scream or just moan, come on here and you will get loads of response.
Try to keep positive (hard I know), but we will all help you and let us know how you get on and how you are.
Take care
Love
Dawn
xx
Hi Katie,
Sorry you’ve had to join us! There have been loads of postings on here from people who are triple negative which is what you must be (oesrogen, progesterone and HER2 negative). I suggest you read back through the old postings. I’m hormone positive so I can have drugs like tamoxifen, which wont work for you. It seems that triple negatives respond really well to chemo though.
I wish you all the best
Love Julie x
See the post on ‘non hormonal cancer’, other ladies with trple negative have posted there!
Julie x
Hi
I am triple negative (negative for Oestrogen, Prostegen and HER2). So chemo surgery and rads are the only treatment options available to us. Being HER2 negative is not necessarily a bad thing as although Herceptin is supposed to be a great drug (if you require it) - I was told it brings HER2 positive people back to the same level as us neg people with regards to our prognosis. I must admit I googled Triple Negative when I found out my dx, scared myself silly as alot of info was stats (bad if taken out of context/quoted wrongly) and also lots of out of date info.
I have stopped worrying about my type/stage/grade etc. and I am just dealing with the reality and battle of getting through chemo at the moment - not nice but going OK. Take one day at a time - make sure you ask your Onc loads of questions and if you are a sucker for info like me, make sure you tell them as they don’t volunteer info easily!!!
You might wanna check out BCPALS website as they have a Triple Neg forum.
Take care
Ali
Thanks everyone,
See the onc tomorrow for first time hope he doesn’t fill me with dread like the consultant. Will get start dates for chemo. Had 17 inches of hair cut of on Mon to be prepared for the worst, was okay until my 2 yr old got really upset and said for mummy to stick it back on, can this bloody C get any worse!!! I will chk out all the info.
Thanks
Hi
I was diagosed with grade 3 IDC end of July, due my 3rd chemo on Friday -went for chemo first as have lymph node involvement and because my little boy was just 7 weeks old when I was diagnosed so I felt chemo was easier while he was so young. I’ve also got a 2 year old and as you know, then are stilll babies too. This is the hardest thing we’ll have to deal with in our lives, and we’ve got our babies too so double hard!! …they’ll get us through it though.
My little boy has been so brilliant about my hair ‘going’ -he won’t let me even think about cancer -just get on with life, and there are so many good days where I’ve felt completely normal and thats really lifted me in last few weeks.
I’m also hormone neg but will find out about hep status on Friday -guess that means that our options are more limited, will wait and see.
Let me know how you’re getting on
Hannah
Hi Hannah,
Sorry to hear that you are in the same boat. It makes me so cross I am not coping very well at the moment as cannot get it out of my head that I may not see my little boys grow up. I just feel really cheated as this should be the happiest year of our lives and it has been snatched away from use by this cruel disease. I find it really hard when my eldest boy says really sweet things and I get upset. I feel like I am living in a bit of a false world as I try and be happy for them but feel so very low inside. I have not asked what grade my cancer is I think I am to worried but have been told that it didnt appear at first like a usual breast cancer but they have said it is aggressive and was in 11 of the 21 lymph nodes they removed, the lump was actually a cyst that contained cancer sells. Saw onc yesterday and start my 8 doses of chemo on the 25th and then 6 wks of radio. Not to worried about that as long as the bloody thing doesn’t reoccur and that the small nodule they have found on my lung turns out to be nothing to worry about. Sorry had a bad day. Hope your chemo went well today
Lets beat this bloody thing together for all our little babies.
Cx