I have had a 3rd diagnosis 2 weeks ago this time a tumour on my aorta - inoperable. 1st diagnosis 1999 2nd in same breast 2003, now this. any one else? How does it work for you?
I’m sorry to hear this.
I’ve had abnormal tissue along my aorta for 18 months which is now diagnosed as cancerous and so has been for the last 8 months but has probably been so since 2006. It alone does not cause me any problems that I’m aware of but as this tumour stretches from the left side (aorta)of my heart then around my oesophagus and rests on the right side of my heart and my heart is damaged by herceptin, I can’t tell what causes what problem apart from the severe swallowing problems I have. Mine rests on my aorta and is not in it and they told me it would not invade my aorta.
Sorry I can not help you more than that but saddened by your news.
Kate
Thank you Kate! I have swallowing problems sometimes and am seeing the onc tomorrow so will ask if this is related.
As I understood last time the tumour is on not in my aorta - but it was a bit of a shock so I need clarification tomorrow.
I had 2 litres of fluid on my left lung which was apparently caused by the aggravation this tumour caused -?
He did make it quite clear that it was inoperable and life threatening - but I don’t understand how -? am I being thick here?
More after tomorrow :-/
Gill
Hi Gill
I havn’t had a tumour on my aorta but I did have a build up of fluid around my heart last year which was drained off. I was told this was caused by the cancer cells. I also had loads of fluid drained off my left lung which they then glued up and havn’t had any problems since.
I know this probably doesnlt help much but its interesti ng that you ahve had the fluid thing as well
Caroline
Thanks Caroline,
I have now been back to onc and my worries are confirmed - I can add bones and LIVER to the list.
I start chemo as soon as they decide which one, plus Herceptin or not.
BUGGER!
Hope you keep well - and Kate
Hi Gill,
Just wanted to say i’m sorry to hear about your seemingly neverending new secondaries diagnoses. You must be reeling.
How are you coping? What kind of weekend have you had? How are your family taking it?
I really hope you will see your onc very soon and start on some effective treatment - it’s always so much better once you have a plan of action and feel like you’re doing something positive about it.
Big hugs
Jacquie
Gill - so sorry to hear your ever ending list of secondaries it is so scary isn’t it.
Is this your first lot of secondaries as then you might be eligible for the taxxotere/avastin trial. Make sure you get biphosponates for your bones to strengthen them. hye forgot to start mine for about 6 weeks after diagnosis and it did make a diifference.
Hope you get some better news soon
Love Kate
Gill, so sorry to hear you have more to add to your list