Hi there, I haven’t found a thread on this, though I am new to the forum. I was diagnosed last October & began on capectabine - just finished cycle 7 & having an extra week off due to blistering of feet & very sore hands despite lots of creaming. Why does the phone ring when you’ve just done them? I was very annoyed today when told that the ‘lab’ hadn’t done the markers despite doing the other tests. 3 weeks ago they tested for ovarian cancer though the form clearly stated CA153. Repeat blood test on Friday & marker test now highlighted in yellow, so here is hoping they get it right this time!! They had been coming down steadily & even took a hit during 1st cycle. Monica
dont like to see unanswered posts but sorry i cant answer either… i have a TNBC lung met which been using taxotere as fertiliser rather than weed killer.
i suspect its not a very common place to get TNBC mets hence the dearth of replies… however one of my friends who had lobular ca has abdominal mets so there will be people out there with them… just maybe not TN.
very encourage to hear your on cycle 7 of cap as im starting soon and thats given me a bit of hope.
fingers crossed for your bloods… my consultant doesnt use TMs… but i think they all have their own ideas. anyway im hoping its been good news xxx
Lxxx
Thanks for your reply - once again the lab failed to do the markers so after I left the chemo nurse rang them & gave them a piece of her mind!! They apologised but she said it was not good enough, they had failed in their duty!! They will report on them from now on…At the end of this cycle I have a week off as I am away in France for a few days with lots of friends. Then I see Oncologist for result of CT last week & hopefully markers. My hands & feet are much recover after previous week off, now wearing treking sandals that give good support with added comfort from memory foam insoles given by the foot clinic.
Bumping this up in case there is anyone else with one of these!!
My tumour is lobular so as my Onc. says I am complicated especially as I have a bone ‘condition’ that won’t harm me but gets reported on the CT scans. He is keeping a close watch on the activity of the fibrous tissue surrounding the tumour as it could impede my right kidney. See him again at end of the month by which time I will have been on a ‘chemo holiday’ for 23 weeks!! I feel quite well, just the niggly ache which increases if I use a long stride. So I go as quick as poss with short steps.
Tumour markers were down to 600 - having started at 1,800 last October at the beginning of August they had risen to 894 but not yet back on Cap. as we need to see the trend.
Monica