Any triple negative survivors out there?

Not happened to me …yet but hear its quite common. You may need a special cream. I would ask bc nurse or your rad dept. Last thing you need is an infection x

Hi Suzanne,

 

I know the feeling of losing that security blanket too, but it will get easier to deal with, I finished treatment last July and it has taken quite a while to get my confidence back, just be good to yourself and take each day as it comes.

I also had skin breakdown with rads and the nurse from radiotherapy unity provided HYDROGEL which was excellent, it seals and hydrates the skin so ask for it, I had massive improvement in just a few days and its also very cooling.

 

Sending hugs

Wyn x

Hi Suzanne
Didn’t happen to mine, mine was just very red and rashy like prickly heat and quite sore. I do think it is quite common though. Like the other lady said I would ask the bc nurse they should be able to give you some cream for it. My last one was mid July and it looks just like normal skin now. Hope you get some help with it ?x

Thank you for sharing your story…gives us all comfort…im headed to surgery August 28th and still have not confirmed double mastectomy or single.

Thank you for sharing…every story is truly appreciated and well received. I am battling with decisions on which route for surgery and my surgery date is 8/28

Well all my treatment is now finished so trying to remain positive, very sore at the moment. Pam how did u get on today been thinking about u.

Sue xxx

Well done for getting through your treatment sue xx glad you got through today ok Pam xx when is your next check up will it be yearly now ? Hope everyone else doing ok xx

Ah dee how amazing is your daughter, sounds like she is doing so well n I wish her all the very best xxx

Hi Dee
Glad to hear your daughter is half way through I was thinking how she was doing. I’m pleased she is able to work through it I have been off work since I was diagnosed last October . I will be going back end of October and am fitting some holidays in before I do lol. This week I have put pixie away yipeeee ( that’s my wig by the way ) I have about inch on the back half inch on the top. It’s come back really dark , thought it would be grey as I’m 48.
Hoping everyone else doing ok xx

Hi amanda thats made me laugh calling your wig pixie. Am doing ok although I’m still worrying a lot of the time just trying to keep myself busy. I got an appointment with my consultant a week Monday and that is stressing me out wondering what he is going to say, just hoping its a follow up post treatment. Have u anymore holidays booked before u go back to work? I never thought I would say thus but I can’t wait to go back to work xxxx

Hi Suzanne
Glad you are keeping busy I’ve found that is the answer. I’m going to Dubai with my daughter in 2 weeks always wanted to go and then lanzarote with partner for a week . Also a few of us ladies on this forum who started chemo together are having a meet up in September so that will be nice. Your welcome to come along think it’s going to be Manchester . I’m just in m and s having a snack and drink being very brave without pixie but no funny looks so far :))) x

Ah that fab amanda, I would love to meet up but I live a long way from Manchester, I live in Blaenau Gwent in South Wales so will probably give it a miss but thank u so much for asking. Lovely to hear of u off on your travels, sounds amazing xxxxx

Hi ladies, I’m 36 yrs old and I was diagnosed with grade 3 TN bc on 13 July 2015. I had lumpectomy and SEN, tumor was 3cm with clear margin and lymph nodes were clear. I am now on 6 FEC-T chemo. I had my first one 2 weeks ago and now due to have the 2nd cycle next week. My onco didn’t say much about the Triple negative. Reading posts here is reassuring but there are times when i worry so much about what if… I have two boys 6 and 12. I just want to find out how you ladies distract yourselves from getting all these negative thoughts. I’m trying to be positive but it’s hard at times. Does Having clear lymph nodes means better survival chance? I know i should be just thinking about treatments at the moment but sometimes I worry about recurrence. Are there any treatments if it recurr? Would really appreciate a response and any tips on how to stat positive abd get on with life. Thanks

england.nhs.uk/wp-content/uploads/2015/09/ncdf-list-sept15.pdf

 

Bad news today for BC suffers.  Do lobby your local MP about drug funding.

 

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Hi all I’ve had a bad week been stressing so much it’s so hard at times. Did anyone else suffer with watery eyes? Mine are dreadful constantly watering at the moment, if so any suggestions on what I can use please. Pam how are u? Dee how is your daughter?
Talsgee sorry to hear about your diagnosis but no lymph node involvement has to bee good, it’s a horrible time but the girls on here are a great help xxx

Meant to say eyes are worse outside, and amanda how are u xx

Thanks Suzzane.

Aww Pam I’m sorry to hear about redundancy, the worry is awful isn’t it, I got appointment with my consultant tomorrow and I’m absolutely terrified as to what he’s going to say xxxx

Morning everyone
Sorry to hear that you will be made redundant Pam I’m hoping that much better things are on the horizon for you xx
Suzanne my eyes watered it drove me crazy as I normally wear contacts so had to go back to specs. You could try snotears ( I work in opt) . Mine stopped when my eyelashes started to grow back. Hope your appointment will go fine Tom . If it’s anything like mine they will check your skin after the rads and see you in 3 months.
Talsgee I hope you are doing ok with your chemo. It isn’t easy but you will get there . I just have to plan each day to make sure I’m doing something to keep my mind active. If I don’t I get quite anxious I’m hoping in time this will lessen.
Dee how is your daughter doing ?
Amanda xx

Hi all, Dee so glad to hear your daughter is doing well, she’s so strong.
Went to see my consultant yesterday he seemed pleased with everything, he just said no tablets as it’s not fed by anything, told him I have been stressed but he just said I need to get on with my life cos no one can predict the future I could get run over by a bus lol. He did say it’s got a high chance of coming back in the 1st 2 years then the chances drop dramatically but I said I have to get thro the first 2 years, scares me so much!!! He wants to see me in December just to see how I’m coping then it will be yearly mammograms. Pam have u had the results of yours yet xxxxxx