Any triple negative survivors out there?

Hi Suzanne
I ditched pixie a while ago lol. My hair was v long blonde and curly before. It’s grown back almost black . It’s still really short but no bald patches now . I hated the black so got it dyed blonde , that went a shade of orange so went to the hairdressers and had a bleach was on it. I am putting ash rinses on it and it’s not too bad now ?Feel blessed that it’s come back. How is yours doing?
I’m back at work next week doing 3 days to start with. Didn’t want to be doing half days as by the time I get there back etc it’s a full day. I a pm at opticians been there 27 years . Are you back at work yet? If I remember rightly you started your treatment a bit after me. I need to get back to save for more hols :sunny::sunny:.
Hope you are keeping well xx

You have made me chuckle about your hair, so glad it’s come back. I’ve got all over coverage now about half inch long, it’s brown with grey haha. I am coming off the sick on the 28th of this month, having 3 weeks annual leave then going back phased return from Christmas week for 6 weeks, not working any of Christmas of new year. I’m a midwife and I’m really excited but nervous to go back, xxxxxx

Hi there,
Thank you for sharing all your inspirational stories . I was diagnosed Nov 2014 right stage 1 tnbc 1.8cm IDC 5cm DCIS . Dec2014 Mastectomy clear margins sen node clear. FEC-T (6 cycles) 3 weeks rdx finished June 3015. PET scan NED beginning Aug 2015.
Did 2 follow ups so far (3monthly) with oncologist and breast surgeon. Just a quick chat “how are you ?” And physical exam . I wonder if this is enough ? What is your experience of these follow ups? How often did you get a scan/ mammo?
Cx

Same with me, however I hot one more appointment with consultant in December but just to see how I’m coping as I wasn’t last time I saw him, then yearly mammograms, been discharged from oncology team, however to ring them if any concerns xxx

Hello there. 5 years ago I felt desperate, trawling through sites like these looking for a glimmer of hope. I never found anything positive about TNBC and survival stories. Currently I’m a week away from my 5 year survival. I had a 2.5cm, grade 3 tumour along with DCIS to my full breast. I was 34 at the time.
So yes I’m a survivor and I hope this gives you a bit of comfort. Take care

Thank you so much Helen. Positive stories help so much xxx

I am also glad to read these positive stories as i am tnbc too and have times were i am frightened to death and wonder how other ladies get through this… i start my rads nxt week x

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Girls I’m having a bad day today, really stressing over this triple negative again, how do u deal with this anxiety and fear, I’m struggling right now, sorry for the moan x

Hi Suzanne
I’m back at work three full days now so that has helped I’m not thinking about it as much. When did you say you started back ? When I’m having a bad day I read all the positive stories that helps me a lot. Xx when I went for a check the breast care nurse said a friend of hers had TN with lot of nodes involved and she’s 15 years out xx

Thank u amanda, it’s so hard at times but I’m sure going back to work will help. My first shift back is 20th December, got a few weeks annual leave to take before I go back. I’ve cried all morning but have just shaken myself and I’m going to go out shopping with my daughter. How is your hair now, mine is coming slowly, much love Sue xxxx

Hi Suzanne
My hair is growing but very slow . No bald bits now and looks like a very short cut. People who come into work for eye test who don’t know about the illness have said … Oh have you had your hair cut it makes you look younger lol. I’m not keen but feel blessed it’s grown back . I’m going to get some of the fast shampoo and conditioner today from boots will let you know how I go with it xx

Thank you Suzanne AND whifield! Will patiently wait for my next appointment then and try not to worry too much .
And thank you all for sharing your encouraging stories .
Hope you are all well xxx

Hi all hope you are all keeping well? Can I just ask as any of u suffered with lymphodema?

Hi everyone
Hope you have all had a good weekend think winter has definitely come .
Samantha sorry you have to join us but you will get lots of support on this forum. Have they given you a plan for your treatment yet ?
Suzanne I have not experienced lymphodema but whilst at a wellbeing meeting last week I heard of a lady who had quite badly as well. She had reflexology and on the first session swelling was reduced by 2cm. She had a number of sessions after that and the welling remained reduced. I think it’s worth a try for those who are suffering .
Love Amanda x

Ah thanks amanda hope u r keeping well. Xx

Thx god i do self exam. In 34 yes old mother of 2 kids age 15,13 and I just remarried 2 yrs ago. I’m planning for another baby with my husband. Then I found a lump on my left chest in the end of September. So in October I went through mammogram, ultsound and biopsy. Finally on November 5 my doctor broke a news I’m breast cancer with TNBC. What do you talking about??? No one in my family have history of breast cancer or any other cancer. I’m the 1st person in my family. I cried like a baby, my mind spinning and no words and my life is end at time.
More test and more blood work. I got PET scan it show no spread to any other part of my body. My BRCA test is negative and no cancerin my lym nodes. I got lumpectomy on November 18. Now I doing better and feel positive. Life have to move on. No time for cancer. Fight fight and be strong. My chemo will be sometime in December.

Stay strong, be positive
Samantha

Just to add some TNCB respond well to chemo so that’s a benefit.  Small I know but we have to take what we’ve got.

 

i was very fortunate and nope this stands me in good stead as I had a complete medical response to chemo.  I was to.d this meant I was on a par with other types (grades) of cancer as it meant the chemo killed it totally fro where they took the lump out and my nodes showed they had turned to crystal.  The pat report is important so do read the, when you get them.

 

i just want to say there is some hope.

 

pam x

Hi jinny, if in doubt I’d say get tested. For your sake (you would be screened differently, or given the choice of preventative surgery) and the sake of relatives. When I was diagnosed we had no family history (soI never got tested) but several years on 2 cousins got diagnosed, and I learnt, to my great surprise, our family carries the gene. Luckily my cancer didn’t come back in those intervening years, and now I’m screened in the way BRCA carriers are, and am still clear (13.5 years on…). Bel X

Has anyone had TC chemotherapy for their triple neg cancer.? I have just had my 4th one and oncologist thinks it’s enough. It worries me because I expected to have 5or 6 cycles.  From what I am reading most of you have had FEC.