Any triple negative survivors out there?

To all the ladies craving sweet treats but still wanting to be healthy try this recipe. All natural / organic with no refined sugar. SUPER yummy!!! ?
Organicsisters.com.au - Raw Caramel Slice
Love and hugs to you all
Tiffany x

Thanks for the info Tiffany . Will have a look at the recipe sounds yummy xx

Hi pam hi ladies, I just seen that too on the news, Iā€™m not a big drinker but I do enjoy the odd glass of wine. Iā€™m doing ok but am so scared for my mammogram as its due in Feb, just so worried about it, hope u are all ok xxxx

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Hi ladies, today after huge dilemma had my second EC chemo. So worried about long term side effects as ONC was not much help, didnā€™t even agree with changing diet, juicing etc. Told her my hip hurt alot and she was surprised. Sending me for bone scan but I honestly just think it is a side effect. Also have constant tingling disconfort on the soles of feet and she also said shouldnā€™t happen with my EC dose.
I had lumpectomy with 3 clear nodes and really feel I am damaging my immune system more with this. Chemo reduces cancer it doesnā€™t kill stem cells.
Sorry to be so negative, just dreading these next 10 days.
Marina

Hi AnnDaw, you need a Masticating Cold Press juicer . I have a Champion brand which is just anazing and super easy to clean and reassemble.
Tiffany x

Hi Marina. Oncologists wonā€™t be helpful in recommending or helping with diet / alternative therapies etc. I read it is actually against the law to recommend anything but chemotherapy and radiation. Itā€™s not in the medical professions interest as cancer is a billion dollar industry. Do your own research, eat loads of healthy foods and veges, take your vitamins and supplements, exercise and use your intuition to do what you feel is right for you. Donā€™t let them put you off changes and asking questions. I even changed oncologists. This is your life and your right. I have chronic joint pain - shocking. My supplements help. xx

Thank you so much Tiffany. I went yesterday convinced I was going to say no and pull out but then just gave in, wasā€™t strong enouh. Of course loads of family pressure as nobody has done all the research I have done. Obviouly mine is a different situation to yours as mine was a lump and removed with clear margins. Will let you know how I get on.
Thanks again, Marina

Hi, Iā€™m new to this forum & I hope you donā€™t mind me barging into your thread. I could really do with some advice regarding my personal situation.

I was first diagnosed with tnbc Nov 2012 when I found a lump in my right boob. The lump consisted of 10mm of idc surrounded by dcis making the whole mass 20mm. I had WLE & sentinal node biopsy (no node involvement). I had six cycles of EC chemo followed by 25 rads.

I did question why I was not given a taxane based chemo but canā€™t even remember the reply I got.

Over the next couple of years I had various scans as I continued to find lumps in my right breast which always turned out to be cysts.

In June 2015 I saw my oncologist for a routine appointment & mentioned that there seemed to be a lump on my scar. I also mentioned that I had lost over a stone in weight in the last 6 months for no apparent reason. To cut a long story short I was found to have two new cancers in my right breast (17mm & 12mm), both tnbcĀ 

. I was told that they would perform another WLE which they did in October.

When I saw my oncologist he told me that he wanted to get some advice from another colleague before making a decision about further treatment but implied that he didnā€™t necessarily feel that chemo would help. He rang me some days later and told me he hadnā€™t managed to speak to his colleague & we had a chat about chemo possibilities. I told him that I would not be happy if they did not give me some kind of treatment as last time Iā€™d had everything and it still came back. Eventually we agreed that I would have 4 x cycles of Docetaxel and depending on how I tollerated it would determine if I went on to have 2 further cycles.

Iā€™ve now completed the 4 cycles and it has nearly killed me. I have questioned why I was given 156mg doses and was not convinced by the answer. The usual dosage appears to be 75 to 100 mg and that can be reduced if the side effects are severe.

Iā€™m seeing my oncologist in 10 days and I will be refusing any more chemo. My main questions are

  1. Has anyone ever had a local recurrence and not been offered a mastectomy?

  2. Has anyone had Docetaxel and been given 156 mg dose?

  3. Did anyone have EC for their initial tnbc?

Sorry this has turned into an essay

Ā 

Vicky

Hi Vicky,
I found 25mm lump quite high near armpit. Had lumpectomy and 3 clear nodes removed. Am going through 4 x EC followed by 4 x T. Then 22 rads.
Sorry canā€™t really comment on your situation.
Good luck and hope maybe someone else can shed some light
Marina

Thank you so much for all your replies. I do understand about the dosage being related to your weight but as I weighed 7 st 12 oz at the start of treatment it does seem excessive. My oncologist has a very good reputation but I agree that I need to get tougher and make sure that I get the answers I need. Once again THANK YOU.

Vx

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Hi vic
I was also just under 8 stone when I started treatment . I had 8 cycles altogether not sure of the dosage but it was fec d. I didnā€™t have any reduced and it was hard going . Hope you are starting feel a bit better now xxx

Hi ladies!! I am happy to see a thread of tn ladies! I was diagnosed end March 2015 and had neo adjunct chemo, lumpectomy and sentinel node removal and 10 radsā€¦finished end November 2015. So basically I spent most of last year in treatment. Ā I had my ups and downs, ended up in hospital on taxotereā€¦but did get a PCr result which is supposed to be the best you can get right!? Ā I am lucky to be feeling quite well physically ā€¦mentally I struggle and seem to still find it hard to accept whatā€™s happening whilst at the same time paralyzed with the fear it will come back. Ā I need your advice on how to move onā€¦the fact itā€™s triple negative stops me in my tracks. Ā Iā€™m also very happy to read about the diets you are all onā€¦me too :slight_smile: I look forward to getting to know you. Ā Is this an active thread ?Ā 

Hi Jrip.
I am glad you are feeling well considering your treatment.
The thing to remember about TN is that although it is more aggressive than other forms of breast cancer it also tends to respond better to treatment. With each year cancer free our chances of recurrence minimise greatly and after 5 years we have as much chance of it reoccurring as someone who has never had breast cancer being diagnosed.
I am stage 4. I have been in remission since April 2015. I donā€™t think about it. Iā€™m lucky to be here. There are still people worse off than myself. What will be will be and Iā€™ll tackle that if and when. I canā€™t live worrying about things that have not happened. I find meditation helps.
I wish you all the very best.
Hugs,
Tiffany xx

Hi jrip
Sorry you have to join us here but you will get lots of support. Glad you not feeling too bad after your treatment . I finished my treatment middle of last year and am back at work three full days a week at the mo. Iā€™m not half as fit as I was before but building it up slowly. Tiff love your positive attitude ā€¦ Brilliant xxxx Amanda

Hi jrip,
There will always be both negative and positive stories/outcomes for any illness out there. Iā€™d say try and surround yourself with as many positives as possible - seek these out, even keep a file of them in your email or printed out so you can reference them for days you feel a bit shaky (which by the way are normal - we are only human, and this isnā€™t an easy journey!). Iā€™m one to get you started! Diagnosed 2002, aged only 31, clear ever since :slight_smile:
Good luck
Bel X

Hi all, hope you are all keeping well. Iā€™m finding being back in work really helps me although I still have moments of shear panic. I looked after a lovely lady the other day who had tnbc in 2009 sheā€™s doing well, xxxxxx

Hello all, Iā€™m not sure if I have posted anything on this forum before but Iā€™ve been using the Aug chemo forum.

I was diagnosed with TNBC in July 2015, was 36 yrs old, have got two boys 7 and 12. The Tumour was 3cm, lymph nodes were negative. I had lumpctomy then 6 FEC-T chemo and now having radiotherapy (20 sessions). I only got two more to go and then all done.

Iā€™ll be back to work from Feb. I do have this fear of recurrence and there are days when I feel down. I worry about my kids but Iā€™m trying to keep positive and not to think about things. Iā€™m hoping going back to work will keep me busy and distracted. The only thing is sometimes people ask oh when are you going to get the all clearā€¦ Or oh how are you feeling? You look sooo good!!! I just donā€™t know how to answer.

Bel - reading your post is very uplifting! thank you so much for sharing your story.

Best wishes everyonexxxx

Hi tania so glad u r nearly at the end of your treatment, I found going back to work has helped me, what do u do? I think we all worry about reoccurrence, I also get asked are u ok now, have u had the all clear, n I never know what to say as I donā€™t want to jinx anything, I just say Iā€™m doing okay at the moment, I hate answering. Love sue xxxx