Hi Taran. I know exactly how you feeling. My daughter was 18 months when I was diagnosed, I was so scared that I will never see her growing and going to school. That was something what’s scared me the most at that time. And now my daughter is almost 5 ?. And I’m cancer free ??. So be strong and believe that everything will be ok
Thank you, it is good to read some positive things. It’s so easy to get swept up in the negativity of it. I’m positive outwardly, but inside I’m so scared. I just want to get started on the chemo now and get the next stage of this started. I hate the waiting around, it gives too much time for thinking!! xx
Hi Taran, sorry to hear you’ve been diagnosed, and just wanted to say hi as I’m 14 years post diagnosis and fine :-). At the time I didn’t really realise triple neg was supposedly worse than not being triple neg so I never thought about that aspect of it much - though believe me, I did plenty of general worrying about the whole thing, which is totally normal, I guess. Wishing you the best of luck with your treatment. And please remember, it is totally possible recover from this and go on to live a great life, even though I fully understand that might be a bit hard to believe right now.
Love,
Bel X
Bel, thank you so much for posting. 14 years post diagnosis is amazing!! I hope one day it can be me saying that to someone else. Until then it’s just 1 day at a time!x
Taran I am also from South Wales, what part do u live in and are u on Facebook xxx
Wow Suzanne, where abouts are you? I’m in Pontyclun and am on Facebook yes x
I’m from nantyglo near ebbw vale, have a look for me in Facebook Suzanne Baugh
Suzanne are you a midwife too???
Can I join your thread too please. I got told my cancer was TN on Friday too and start chemo next week then surgery and rads. They do seem quite positive but I’m in shock and denial big time. I’m 37 and have an amazing 18 month old daughter. Annoys me that everyone says ‘oh you’ll be fine’ because I genera hide my feeling and am strong but they are not going through the emotions!
Hi, I’m sorry you are joining this thread too. There’s so much support here though, it’s a good place to be when you find yourself diagnosed. It’s so difficult for people to know the right thing to say isn’t it. I’ve tried to accept that they mean well, and really there is no “right” words in this situation. My favourites so far have been “sorry to hear your under the weather” as if I’ve got a cold!! And “that’s rubbish news” which is such an understatement I didn’t quite know how to reply!! But at least they have given me a laugh now I remember them!!
I’ve got young children too and it’s such a worry dealing with all of this and them. I have my oncology appointment this morning and should be told when I’m starting chemo but hoping I might be joining you with starting next week x
Hi Anon sorry u find yourself here! But I hope this group helps, where are you from? It turned out Taran and I are both midwives who work for the same trust but in different hospitals, mad isn’t it!!! I was diagnosed a year Feb I had a lumpectomy then chemo and radiotherapy, I had a 2 cm tumour and 5 out of 13 positive nodes, atill scared and worried most of the time xxxxxxxxxx
Pam, I have an appointment to have my hair chopped on Thursday. But I didn’t know about the nail varnish so thats a great tip thanks! Any dark colour? Fingers and toes? My toenails are permanently painted but will get my finger nails done before starting too!
netti I feel the same way, that it’s like an early death sentence Really trying to just focus on getting through the treatment and not letting the thought of recurrence into my mind as much as possible. But it is so hard. I’m seeing the oncologist this morning so I’ll quiz her on the trial that might be coming next year, and see if she has any news on that for us. Have you told your children yet? I hope that went ok. xx
Hi netti, where are u from xxx
I am from South Wales, your not too far away, not that my geography is much good mind. I’m not too bad I’m back at work now but still have this constant worry which makes me very anxious and scared. Are u having chemo before surgery xxxx
Absolutely xxx
Yes I had lumpectomy first, I don’t think it matters how they do it, as long as they do. Do u work love xxxx
Yes my treatment finished end of August and I went back to work in December phased return, if I’m honest work has been my saviour although there’s no way I could of worked during treatment, I had 11 months off. I’m 46 now was diagnosed just after turning 45. I’m feeling okish but worry about every ache and pain and terrified of reoccurrence, but as u said one day at a time xxxxxxxxxxx
How are u doing pam xxxxx
Well I thought I was doing ok but I’m absolutely terrified tonight and not in a good place, I’m so scared of it coming back pam really scared xx
hi everyone, i was dx with tnbc on the 27th may, and still waiting to start my chemo, i am seeing the chemo nurse this morning, this afternoon i go for a muga scan, it seems such a long time to be waiting, feeling anxious and scared, i am 58 hope this is not a bad thing.
I have spent a good few hours reading this forum, all of it so positive, i look forward to talking to you, and listening to your advice.
Pam.