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Such sad news! ? RIP Jinny xx
Hello ALL,
I canĀ“t believe how this tread has picked up since I last logged on. There are so many of youĀ that I am now lost with who is who. For some reason I canĀ“t get to be notified automatically when someone posts like I used to.
So sorry about Jinny, it really brings it all home. I think it was only a few months ago she said she was NED, or am I confusing people. RIP Jinny.
I am having an operation tomorrow, 3 lumps that appeared during chemo which I finished 4 weeks ago. They say the lumps are not cancerous but a reaction from my original op, maybe lymphatic fluid build-up. To be honest no one could really confirm what they were??? A bit worrying but IĀ“ll be glad to have them out and analysed. Feeling a little nervous and tearful today.
Bernadetteh - when I asked how you were a few months ago I was actually confusing you with Tiffany (tiff71) who so inspired me with her juicing etc. Now I remember that it was you who I tried to send a link to as you said you could not do chemo. I will post again straight after this with who I follow re. alternatives to chemo(in case they get deleted again).
Keep up the good work ladies.
Marina
Bernadetteh I follow
CHRIS BEAT CANCER
KRIS CARR
THE TRUTH ABOUT CANCER
all offer helpful advice and recipes etc.
Marina
Hi marina how are you? How is everyone else doing? Weather is so depressing, Iām due to go away soon but am starting to panic in case Iām ill and dreading the flight!! Jinny dying has knocked me, I also lost a close friend 2 weeks ago from lymphoma, Hard isnāt it xxxxxx
So scared Pam, xxx
Hi ladies,
I really do understand that you are scared. It is known thatĀ a TN breast cancer can beĀ challenging to treat.Ā But it can be treated.
I am by no means a medical person and a friend of mine has recently been diagnosed with aĀ TN breast cancer - so I have been doing a lot of reading and researching.
There is much knowledge out there, why a breast cancer may metastasis. That is why we are given chemo and the different types of chemo-Ā so that rouge cells, which may be on the way to another organ or be in our system, get killed off.
Those who have positive receptors, as you may know - have specific treatments to ensure that - should there be a cell left after treatment - it cannot āfeedā on what may make it grow. If that follow up specific treatment is not taken - then a receptor positive cancer can reocurr, as the elements it āfeedsā on may turn healthy cells into cancer cells again and it may be in a different part of the body.
It is may be more challengingĀ with a TN cancer. And there are successes out there, but as you may appreciate I rather not quote the figures, as they generalise and the latest I could find were from 2007. In general terms in 2007 the difference of a positive outcome over 5 years was 20% between a TN diagnosis and a positive receptor diagnosis.Ā
We are now 9 years further down the line!
Your oncologist canĀ advise you of your percentages, if you want to know.
It has to be said that research to encourage ones own immune system to destroy any cells it ongoing on a very urgent basis. You may have heard about immuno therapy and there are a number of trialsĀ currently ongoing to find out how effective it is for a TN diagnosis.
Hugs
Sue xxx
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Oh Marina, your post makes me so sad. Please donāt feel alone. I know it is not the same as having someone put their arms around you, but please know there are lots of people on here who will listen to you and offer support as you need it. I am still early days as only have my 2nd chemo next week, but if I can help in anyway please get in touch. Sending lots of love xxx and Iām sure you are just beautiful no matter what colour your hair is growing back!!xx
Hi ladies
I too was massively affected by Jinnyās passing and was feeling very negative but to give u all hope and some good news Iāve just come from the hospital to be told Iāve had a total response to chemo and thereās no evidence of any cancer! U can all do this xx
Warcol, so so pleased for you. Iāve been following some of your posts. What excellent and positive news. Xx
Hi AnnDaw, I asked my oncologist that question today. She said there is no way of knowing how well the chemo has worked as the tumour is already gone. They just work on the fact that the chemo works for a lot of people, so hopefully it will for us too. But only time will tell. Not quite the reassurance I was hoping for!!!xx
Thanks for all your kind mesajes, they have given me a boost. Cancer really does make you stop and think and I think I have to re-evaluate my life and change direction. Itās been a wake up call. It is so easy just to live along the lines of: work home sleep work ā¦ .
Well done AnnDaw for the nutribullet, I love mine.
I donāt post very often but read all the threads daily.I am halfway through chemo for an ER positive breast cancer.I often read the threads for TNBC as my mum has a close family friend who was diagnosed with TNBC Ā 7 years ago at the age of 52 and she had a mastectomy,chemo and rads and she has had no reoccurance!So it does happen.I have asked my mums friend to post,but she is a very private person and wants to move on with her life.I just wanted to add a bit of positivity to the threadxx
I donāt post that often, but have seen some the posts recently, and understand only too well the fear that many of you are feeling. I just wanted to say that I am a 14 year survivor of TNBC and, since my diagnosis in 2002, have had no recurrences. Iāve not had any new cancers either, despite carrying (as I learnt relatively recently) a BRCA1 mutation. So it totally can be done and please donāt lose faith. There is a book callled Surviving Triple Negative Breast Cancer, which Iāve not read, but sounds good and inspiring, which may be worth reading, especially if you feel like youāre drowining in fear. Believe me, I felt all the fear, but I also gathered as many positive stories about BCĀ survivorsĀ as I could, and I think this helped find a way through it. Since my diagnosis I have come across so many BC survivors (just through daily life). Including people with pretty bad diagnoses who are alive and wellĀ many years on.Ā
Love to you all
Bel xx
Ho Bel, that is positive to hear. Did you make any lifestyle changes like food work etc?
Marina
Thanks Bel. Iām on the right lines, just worried about going back to work. Itās not possible to go freelance so really having to think hard about this.
M
Just one more thing Bel, you say you juice everyday, is that instead of a meal or just a drink.? And what is your juice??
I"m much better thanks Anndaw. The mornings are the worst. Itās just I have to make many changes for my future and one I feel is leaving my parnter of 10 yrs and the prodpect of being alone again saddens me.
Thanks for asking
M xx
The other Anne here, you ladies sound like you are really doing well although Maria like Anne says donāt make any rash decisions now.
I hadnāt thought as far ahead as needing to change my diet, it will be quite a big change for me, but if thats what it takes, then so be it. I donāt have a really unhealthy diet, but it could be better and I am overweight.
Interesting reading about turmeric, I started taking it a few months back to help with hip arthritis, I really felt it helped me. I stopped taking it a couple of weeks ago knowing I need an op and chemo.
I hope in time I will feel more positive and be able to move forward like you all are. At the moment I am still feeling so upset, big knot in my stomach, donāt want to eat, donāt want to move from the sofa, I want to pull my head off and throw it away to stop my mind going into overdrive.
Did you all feel like this ladies in the beginning?
I am taking inspiration from you all, I know I have a fight ahead of me, trying to think positive, but I am finding it so hard just now. I donāt mean to be down I canāt help it.
Thank you ladies, take care all of you xx
Hi soscared (Anne) yes I think everyone feels upset at first, itās a big life changer and shock but 6 months on for me and Iām cancer free! Iām having a WLE and rads but the end of the tunnel is in sight!!
Laughing when you can, resting when you can and exercising when u can are all little things that have helped me! Keep strong and positive, we can all do this xxx