Wow am I ever grateful to find this sight with all you strong, amazing women. I was diagnosed in July 2012. Surgery done in September. I am a triple negative with a Stage 3 aggressive cancer. They took a tumour out of my breast the size of a lime and 12 out of 18 lymphnodes were positive in armpit. I have just had my second chemo of FEC to be followed by 3 sessions of Dox. Six weeks of radiation to follow. One thing I have noticed is this second time chemo I have been experiencing heart palpitations that are driving me crazy. Does anyone else experience these. I have a call into the oncol nurse. Thank you all for being here and sharing your courageous stories. We truly are never alone, but sometimes we need to seek to find others.
Hi i was originally diagnosed grade 3 TNBC in Jan 2008, had WLE chemo and rads, ok upto Oct 2012 when i was diagnosed with a recurrance and ? lung mets or new primary , waiting to find out ( see lung dr tomorrow!) . Who knows what the future holds for us but we have to stay strong and take our courage from these brilliant ladies on this site.
Sarah66
Hi,
i was diagnosed with tnbc in February 2011. Stage 1, grade 2 ish, on the cusp. No node involvement. It is now nearly two years since diagnosis. I had WLE (lumpectomy) and 3 weeks radiotherapy. I am now 64 years of age. I feel very well now, but it did take a bit of āgetting overā. I think it is the tiredness that got to me. I feel great! Chris x
Hi, my name is Shirley
In the days I had breast cancer it was a case of double negative because her2 was unknown. I was double negative Stage 3. Had segmentectomy because the cancer had spread around the lump into the lymph vessels. Then 6 weeks radiotherapy and 6 months chemotherapy. That was all 16 years ago. Have always seen a doctor with the least concerns I have had during that period and has always so far turned out fine. I have had an active and fun life post cancer.
I do not think about it much now but have just had a friend diagnosed so that is why Iāve come back to breast cancer care for information.
Good luck to all of you triple negatives.
I am at 4 years and 4 months!!! I had 3cm, grade 3, no nodes. I turned down chemo & radio as adjuvant therapies.
I was double neg 14 years ago they didnāt know about HER2 then. Have just been diagnosed with new primary other breast TN. On chemo at the min going to request double MX
Wendy x
Hi Iris
Did you have a mastectomy or lumpectomy to remove the lump? Just curious as to why you decided on no treatment after that? Have you followed a particular kind of diet or lifestyle since then? Sorry lots of questions as ive just been diagnosed and scared of reoccurrence!
hi new to this, diagnosised March 2012 grade 3 lymph involvement had 3 fec and 3 tax, mx and lymph clearance, then 20 rads, treatment finished in December, does anyone else feel glad treatment is finished but nervous there is nothing else, doing a BCC moving forward course which is great, but so far no mention of TN another 2 weeks of course to go x
It was put to me this weekend, by two different people, that I had had the option to refuse treatment.
I have triple negative, grade 3, stage IIIa BC, the tumour being min 8cm, and one node metastasis of .25cm,.
I had two surgeries, the second being total mastectomy due to positive margins. Now I am on 6 months of chemo, to be followed by 5 weeks (?) of radiotherapy.
I really do not feel I could have refused anything that might help eradicate this beast, but I feel absurdly upset by the suggestion. I donāt want to die. I donāt want my family to have that grief. I donāt feel I made the wrong decision, or even that there was really a decision to be made. Why then do I feel so disturbed by those conversations?
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Morwenna
Those comments were obviously coming from people that have been in this place right now how dare they say things they clearly do not understand.
I am a survivor. Had hormone neg tumour 14 years ago ( they did not know about the HER one back then) but this time I am TN. The way I see it as awful as the treatment is we do not have a choice we did not ask for this bloody disease (let alone twice) but at the end of all this we will get our life back and get back to something near normal. Trust me I have been there.
I remember saying to my Oncologist 14 years ago that he had an awful job telling people all this horrible news. He just replied to the contrary I make people well again and that is very true.
Ignore the ignorance of these people and I know it is hard to bite our tongue sometimes.
Hugs
Wendy x x
Hi it didnt enter my head to refuse anything i was offered, wanted everything to be sure Iād, for me Iād covered all bases, but i feel itās a very personal journey, sounds cliche, but as long as you feel youāve done whats right you then thats all that really matters, good luck with the rest of your treatment xx
Hi I am new to this site, Im 38 an was diagnosed with triple neg last may . I have had chemotherapy, double masectomy an radiotherapy, but now I am finding it hard to move forward . I am living in fear that this is going to come back. I also cannot come to terms with having triple negative ā¦ this forum as given me a glimpse of hope . Does anyone know what I can do to minimise the risk of it coming back . x
Hi I was diagnosed in 2008 (almost 5 years) with tnbc - 7.7mm tumour (small less than 1 cm) no nodes or vascular invation grade 2. I was aged 55 at diagnoses, I am now 60, had wle and rads (canāt remember how many). I was never offered chemo as this was considered over treatment by my onc. You can imagine how scared I feel when I read on here that nearly all tnbc have been offered chemo to maximise there life expectancy. However, regardless of treatment, you can never take this disease for granted, no matter how many years you survive. I remember reading recently that a lady had survided 20 years with no evidence of secondary disease, but it still came back. I must admit, I have read the secondary site several times, only because I have to be realistic as breast cancer can never be considered a curable disease and maybe one day my cancer will return, as so many do. Five years on, you may wonder why I am not putting out the flags or having some sort of celebration, but the only thing I ask my self daily as I am sure every women on this site has asked, Why did I get it in the first place. I just hope that one day our daughters and granddaughters will be able to say, Remember when women use to die of breast cancer. Sorry if this sounds like a rant.
Hi i was diagnosed in Mar 2012 with triple negative bc had lumpectomy, 6 months chemo, fec and tax, 28 ses of rads, age 40 i go next week for my 12 month mammogram, the only thing i can suggest is try eating really healthy lots of fruit and veg, little alcohol and excerise, i too am very anxious about triple negative. Stay postive i know its easier to say then actually doing. Take care x
hi Lea, I was diagnosed in August 2012 with TN and have had a mx, 6FEC-T and will be having 25 rads in March. My surgeon recommended two things - being as thin as possible without actually being underweight, and lots of exercise. Iāve always had a good diet (lots of fruit and veg) but am now also trying to cut out processed foods. Iāve also stopped drinking alcohol. I think trying to reduce stress is also a good idea
Marigold I was diagnosed with TN in November and am on my 5th Fec with 15 rads to follow.
Iām 68 years old, weight 7st 7lbs, donāt drink, am a vegetarian, never eat processed foods and am extremely activ e. Iām a dog trainer and owner of three dogs so Iām out every day in all weathers walking and training for competition work . I really do think itās written in our blueprint when weāre born. If itās in the blueprint then you get it.
spot on boarder collie
I do think your genetic make-up determines whether or not we develop cancer. There are so many people including those in the medical profession who dole out advice on diet etc.l, too thin, too fat, the list goes on. Please remember that there are so many women out there who do eat healthy, they exercise, and do not do drugs or alcholol and by all accounts should never be at risk of developing breast cancer yet they still do. Please donāt beat yourself up. If breast cancer is going to return, it will, regardless of the lifestyle you lead.
Hi, I was diagnosed with TN just before xmas 2003. It had spread to my nodes and had so much vascular invasion it was off the Ricther scale and expected to come back during chemo. That was nine long years ago and it has never come back I had 4xFEC. 4xTAX and 6wks of rads. I let them throw what they could at me and it worked. May my luck rub off on you all.
Josie xxx
Forgot to say mine was 2.4cm but just 1cm when I
had the biopsy 3+wks befre the op!
I was diagnosed in December 1.5 IDC grade 3, 2 nodes out of 12 and possibly vascular invasion but decided not to delve into that so not 100% sure. I got my diagnosis in french so didnt understand it all and probably for the best. I keep visiting this site when im crushed with fear and it always reassures me to read the successes of our amazing long term winnersā¦ You give me the hope i need when all seems lost. TN comes with its own bag of fear and its rubbish!! This disease took my mum from me way too young and iāll be damned if my one year old will lose his mummy so youngā¦ No no no! Please keep up the positive news its a lifeline xxxx