Bel
I have a juicer too. I like the fruit ones but know the veggie ones are better for you. Have you come across any nice, easy to do veg juice recipes you could share ??
Sam xx
Hi Pam
You have had a rough ride with chemo, but the more you have the better it can work its magic ?
I canāt have radiotherapy as have had chest radiotherapy when I was 20 and had lymphoma. Ironically itās the radiotherapy I had as a youngster that has caused the breast cancer. They used to use very high doses in those days which they donāt now
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Oops yes Iām ok thanks Pam had a few off days with my last t but itās day 5 today so hopefully start feeling a bit better. How are you doing ā¦ Think you are waiting for rads to start? Xx
Morning everyone
Just popped on to wish you the best for your rads appointment today Pam. Bit of a pain having to go everyday but not long now and your treatment will all be done ?. Hope everyone else is doing ok xx
Hi jaynemm
I was also dx with Tnbc last October . I am 48 as well. Not got any cancer in family, never smoked have the odd drink and was really fit ran 3 to 4 times a week so massive shock. Iām just half way through treatment had 4 fec , 4 t got surgery and poss rads after. I have paid private to have the gene testing because apparently donāt fit nhs criteria re age no family history, I have a daughter who is 25 so wanted to know Was hoping for results back before surgery but itās seeming a bit unlikely. Iām being treated at Stoke university hospital.
Iāve found this forum really helpful lots of lovely ladies all going through the same thingā¦ So very supportive. When is your next check up as you have finished all your treatment ? I asked my onc she said after treatment 3 months then yearly? I feel this is a long time to wait but I was told you can call direct to hospital for app if any worries. I think for us ladies when treatment has finished thatās when the anxiety sets in. Iām going to ask if there is any vitamins diet plan etc they recommend after my treatment ends. Well done for getting through it all? , Hope everyone else is doing ok xx
Hi Jayne,
Wanted to say hi as I had triple neg BC 13 years ago and have been fine ever since. At the time we had no family history so there was no reason to check for BRCA, but as one did subsequently appear I did eventually get tested and a year ago was found to have a BRCA 1 mutation. All of this - the cancer, the gene - is understandably upsetting and scary, especially at the time. But I wanted to reassure you that even if you do have a faulty gene and have had cancer itās still possible to lead a happy, cancer-free life. I havenāt yet had preventative surgery but will probably do so within the next couple of years - for now Iām having high level screening. Iām not thrilled about having to have these ops. But I know people who have had them done and have gone on to live happily and healthily despite it, and I trust I can be one of those too. Wishing you all the best.
Bel x
Thanks Janet bel and Amanda for replying, I really appreciate it and knowing weāre in the same boat is a help because you understand. I was treated at Leicester royal infirmary and once radiotherapy finished I was told I would just be called for my mammogram which is in August so kind of felt abandoned after
Months in their care. You read so much about diets and vitamins itās all such a minefield and Iām unsure what to believe. Work is a help and nice to have some normality it does stop your
mind from wandering lol. Many thanks again take care all of you x
Hello ladies, just thought Iād send you all a little message as Iāve been reading the last few posts. Iām 41, diagnosed with tnbc just as I turned 40. Had the usual surgery, chemo and radiotherapy, finished nearly a year ago now. Dealing with this does become easier with time, had my first mammogram just before Christmas which was clear. I went on a radiotherapy clinical trial which means I have yearly oncology check ups too (the main reason I did it! ). I do still have times where I become completely overwhelmed but this is few and far between now and I just try and live as normal a life as I can.
Hang in there ladies, youāre all doing great
Xxx
Oh just to add too, grade 3 no node involvment, not eligible for gene testing.
X
Hi Joanne thanks for your message, I think when Iāve had my mammogram I will feel a lot happier, although itās not due until August so got a bit of a wait! While youāre having your treatments you kind of feel protected and now itās over I feel scared itās going to come back. Reading all the posts on here it just shows how many lives are affected by this dreadful disease, Iām doing the race for life next month to help raise money for cancer research, my way to say thanks x
Good luck with the race 
Each milestone is significant, first mammogram etc. Youāll always have times when youāre scared it will come back but it will be less often
Keep strong xxx
Morning everyone
Hope everyone doing ok. Good luck with race For life Jayne my daughter has signed up with her friend for June.
Iām sorry to hear your daughter has got to go through it all again dee. Sending her a big hug. Iām off to hospital this morning to see surgeon re op in May. So scared not been in hospital before, well only to have my daughter. Iām hoping he will agree to double masectomy , this will mentally be better for me.
Hope rads going ok for you Pam ? From what others have said it seems easier than chemo.
Bel your post gives me hope you are doing brilliant.
Hope everyone else doing ok Sarah, Janet & joanne( sorry if I missed anyone )
Xx?
Morning everyone
Another lovely day. Had my appointment with surgeon yesterday, he said there are three tumours. I was originally told one. For this reason it has to be a Masectomy . He said I can have immediate reconstruction with implant but the rads may change its shape. I have decided to go with this just wondered if anyone else has had reconstruction with implants before having radiotherapy xx
Dee I was feeling quite low yesterday after my hospital visit. I went on breastcancer.org last night there is a section on triple negative ā¦ Long term survivor examples . It give me a little boost ā¦ Hope this helps xxx
Hi everyone
Had a tummy bug so not been on here for a few days.
Sorry you feeling a bit low Pam I was like that last week. Picked myself up a bit today as it was my daughters birthday and we had a lovely day. Not too long to go now Pam x
Hope everyone else doing ok ?
Hi Pam sorry you are feeling low at the moment. Donāt feel alone we are all going through this together same thing same feelings. Iām sure you have a lovely family and friends as well. Have a look on breast cancer.org there are alot of positive stories on there . Hope your rads go ok. Off to hospital at 10.30 for pre op assessment and still in bed , so got to dash. Pm me if it helps. Hope everyone else is doing ok ?
Hello Ladies
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It has been a while since I came on the forum but see there has been lots of activity recently.
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I am 54 and was diagnosed with TNBC in Dec 13. Ā The tumour was small but Grade 3 and no nodes involved. Ā I had lumpectomy then further surgery to remove a small area of DCIS followed by radiotherapy. I was offered chemo but declined as the percentage gain was small and after lots of discussions with oncologist, GP and breast care nurses I felt the possible benefits of chemo just werenāt worth it weighed up against the awful side effects especially given there was no evidence of spread.
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I had my first annual check in February and the mammogram was clear. Ā Next week I am going to have some reconstruction - lipomodelling - to (hopefully) fill in the shrinkage caused by surgery and rads.
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Like everyone I have had an up and down year. Ā Despite being a fit and healthy person everything seems to have āgone to ratsā ā¦ Iāve developed a bad back (nothing serious but annoying), terrible mood swings and at one point was convinced I had endometrial cancer but after lots of tests the docs are putting everything down to the sudden stopping of HRT and the menopause! Ā Although I try not to worry about every little niggle you just canāt help it. Ā I have also lost a good friend and colleague to lymphoma - she was diagnosed at the same time as me and seeing what she went through has almost made me ashamed that so far I have got off lightly (I know that sounds wierd but hope you understand what I mean).
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My experience is that TNBC is not widely understood except for us poor souls who have found out about it the hard way. Ā There have been many advances in breast cancer treatment over the years but we are all in that difficult situation where there is nothing concrete we can do to protect ourselves. Ā Even the experts do not really know - they just throw the standard treatment at it and hope it works. Ā When I read Tolliebelleās post it really made me sad - how awful to have a clear mammogram and then 4 months later find out the cancer has returned. Ā
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I feel angry sometimes and refuse to get hung up on every theory going. Ā I try to eat a healthy and varied diet and keep up with the exercise I love however, I wonāt stop enjoying a glass of wine or switch from my shampoo and shower gel to paraben free varieties in the vague hope it may have some effect! Ā TNBC is a lottery and we ladies have drawn the short straw.Ā
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I wish all you all well in your treatment.
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JulieĀ
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Fantastic news Dee! Wishing her all the very best with surgery & treatment. Bel x
Hi ladies, found out today there is a trial for tnbc called Olympia, looks like only available to those who are brca positive. Looks like it is an oral drug given straight after standard treatment for those of you going through treatment at the moment. Worth an ask when you see your doctors xx