Hi
Sorry that sounds like a bizarre question, but hopefully you know what I mean!
Was diagnosed with DCIS in LH breast on 29 December 2011, had a WLE at the Churchill in January and was going to have RT, but then found out the pathology was bad and can’t have radiotherapy due to having other medical conditions - also have two lumps they are monitoring in RH breast (i’ve had lots of lumps and have always ‘got away with it’ before). So surgeon and oncologist have advised double mastectomy with immediate reconstruction (probably in May) and I then have to have my ovaries out as well (prob in August). So it’s all ‘a bit much’ really…feeling scared and lonely right now…
I’m new to Oxford so didn’t have a chance to make many friends before this happened, and I’m deferred now from my uni course (I’m 39 and was studying acupuncture), my family are pretty much estranged from me and I don’t have a partner. So I’m doing this on my own and am pretty desperate for people to talk to and some local company - it would be lovely to meet some local women who are going through this or have come out the other side, particularly of around my generation - it just happens that my local support group (which isn’t local enough to be honest) are much older than me.
Is there anyone out there???! Xx
Hi gingerbiscuit
Welcome to the forums, I am sure some of the other users will be along to support you soon. In the meantime I just wanted to mention the live chat sessions held every Thursday from 9 to 10pm.
Here you can talk with others in similar situation to your self on line in real time. Each session has an on-line facilitator and a clinical nurse specialist present. If you are interested in joining just log on next Thursday at 9pm and click on the live chat link at the top left hand side of the page.
Best wishes Sam, BCC Facilitator
Hi gingerbiscuit
I am nowhere near you, but just wanted to give you a hug and say Hi. I remember how lonely I felt when first dx, when I was 38. I am a long way from my family and although I had a lot of friends where I live, we all, including me, had young children - mine were 4 and 2. I had surgery, chemo and my rads were a flight away from home in a strange place, where I was totally alone. Coming on here was a lifeline, and you will probably find that too.
I went on a Young Women’s weekend with breast cancer care’s ‘junior’ arm, The Lavender Trust and it was wonderful. Not that I wanted anyone my age or younger to have bc, but it was great to not feel like the only one. Everyone at my clinics, hospital appts and chemos etc was a generation older than me. I met a lovey lady at my rads who has a daughter the same age as me, and you will no doubt meet people along the way too.
I went on to have my ovaries out 2 years after primary treatment.
Everything that happens to you makes you feel different as a younger woman. My friends here have no idea what it’s like to be post menopausal at 41, etc etc.
Good luck
Kinden
x
hi kinden
thank you so much for the hug and the understanding - was a bit worried i was moaning too much! thanks, it really helped. xx