Hi everyone I was just typing a long text and it disappeared!
I am back home after round 4! It was all rather stressful as the oncologist had failed to tell us to go on Wednesday this week as he was leaving for UK in the afternoon untilnext week! Fortunately he had left the prescription for me. The blood nurse was a different one and she couldn’t get the canular in my vein she said why not and pulled it out and the needle was bent! I then had to endure her going into another vein!!! If I see her again I shall run a mile.
Sent the hospital meals away the thought of them maked nme feel unwell. Took a sandwich and yogurt and melon for lunch and later had the cake that came round with the tea and then sent hubbie to shop for a bag of crisps! Oh dear not very healthy but sometimes you need to eat what you fancy. I have just eaten a bowl of past and made hubbie stop and by some fish for tonight! Glad to hear everyone is coping with hairloss I have got quite used to my headscarves now. Positve for the day is is saves on shampoo and conditoner!!
Enjoy your good days, I am expecting to wilt later this afternoon. Oh I nearly forgot to tell you. Things hadn’t been going to well bowel wise toward the end of the second week so I stuffed 2 apricots and 2 prunes in my mouth before I went to the hospital. I don’t know which felt the most uncomfortable not being able to go or a churning stomach? x
Auw Rosie 14 not a good start to round 4. How horrid - if you had a needle phobia that nurse would defo do it for you wouldn’t she?! Not surprised you’re glad to be home - sounds like a very restless night! Yep you’re right - got to eat what you fancy - I’m usually like that - crave crisps & snacky things in the day & then like something really healthy & fresh in the eves for the first few days. Hope you can get a nice rest this afternoon & the next few days aren’t too bad for you,just do what you say to everyone else - keep thinking of day 6/7! xxx
Me … Low platlets so another blood test Tuesday and need to be at 100 for chemo or I will be pushed back a week. While a weeks grace sounds good it would only be added on at end. I’m at 68 so hopefully it improves.
Joy not ! Feel tired at the time now debating when I switch to tax not working at all rather than 1 week in 3
Off to book a facial as treat.
Sorry for moan. But to balance as a funny as I’m taking my top off for exam this morning forgot to hold down wig it flew off landed on oncologist very funny
Booksandwine, that also made me really laugh! Rosie, hope you feel ok so awful for you having to put up with that, hope side effects are not too bad for you.
Glad you are picking up kirstie77. Hope you manage to get out this wkend but maybe a walk to the pub should be avoided!
I agree with louise3721 - the head shaving really isn’t as bad as you think its going to be. I was so busy chatting & giggling that I didn’t even know she’d done it!
That is hilarious books and wine!! Something you will laugh about for years to come! Hope your bloods pick up,like you say the delay would not be welcome.
My positive is tomorrow night I’ll be ready in no time - just chuck wig on & av a good old giggle - they say laughter is the best medicine don’t they?! Xxx
Hi ladies hope all your blood levels perk up so we all finish this ASAP. Booksandwine re the wig is great fun. I put mine on then got very hot and itchy. I put it on my lap till my hubby pointed out that it looked like v long pubic hair.Obviously there is wig etiquette that we all need to learn.
Walked around local town in scarve really no one batted an eye and it’s a really leary scarve !! Think need to practice with wig any tips gratefully received because at mo looks like I have nits !
Hello fellow insomniacs. 2.30am. I have been mulling over Louise’s post about saying something positive alongside all the bad stuff. Some of my pluses about this FEC-ing treatment are: losing 10lb and going down a dress size so now able to fit into clothes I last wore 2 years ago (not a diet I would recommend but at least no need to go to slimming classes); husband doing most of the housework; guilt-free lying around reading and listening to music. I also agree that it helps to see the funny side.
That said I think the unique feature of this group is that we can feel free of any (self-imposed) obligation to be positive and and cheerful. I am fortunate that I haven’t yet been down in the depths (sometimes I think there must be something wrong with me) and indeed with one group of friends I communicate with largely by email I have deliberately tried to take a light-hearted, joking approach. But I am aware that this may change and I may feel the need to shout and scream to an anonymous group of fellow travellers on the same b…dy long road. Now Feel sleeping pill beginning to take effect so will close before I become incoherent.
I went for my 2nd round of Tac yesterday and met thd most amazing women…Beryl was 72 and had been diognosed 10 years ago initially with bc stage 4, they actually found the secondary before the primary site. Anyway she explained that she and 4 ladies had been asked to commence in a trial for herceptain, I am her neg but know some ladies are her pos. Her mantra was positive thinking ( when she said it, I thought heard it a million times, but because of her circumstances I listened, my thoughts before to anyone was walk in my shoes then try positive thinking!!)
Anyway she told me little story, bit way out but I thought lovely, Imagine you have 3 fire engines in your body and they have been asked to get rid of the intruder (Cancer)…then another intruder comes anxierty and negative thoughts, one fire engine has to leave to go and help your wonderful body elsewhere, cos thats what it does protects us. Wouldn’t you be better all 3 with the little blighter that’s cancer ? Although she is 10 years stage 4 she wont let cancer consume her life. Beryl has fostered for the last few years dogs from the local dogs hospice until they are retrained to be homed and is also widowed, she says she always has a project on the go and is looking forward to the next 5 years. As for the chemo she said it is the biggest positive I have in my life at the minute as its healing me, she said dont think of toxin but a wonderful friend that is swishing about clearing anything left. She was honest though, she said after treatment has finished dont feel scared carry on you got rid of the intruder, hey some come back, if it does keep it in the one room like I have, Beryls is in her bones… wonderful lady, hope its not too deep, really could do with a mini beryl for my pocket !!! When I went for chemo yesterday I wore my wig and was chuffed everyone was coming to have a look as they could not believe it was a wig, it did itch in the morning and was barely noticeable in the afternoon. Feel ok at the min but my SE with tac hit at day 3 the worst last time so fingers crossed. Have a lovely weekend ladies. Lou (ill stick to Lou on here as we have 2 Louises lol !! X)
Hi Lou, what a wonderful positive lady beryl is!! I also spoke to a wonderful lady with kidney/ spine cancer who was also wonderfully positive in a very grim situation- she gave me a tip- I suffer from anxiety attacks in the night usually: i was given citalopram from g.p to help but I wake and panic and think oh my god I’ve got cancer etc. she said it helps if you visualise a big wooden chest and you pick up each of your fears/ worries and throw them in chest and shut it hard and sit on it so none of worries etc can get out until you open it again- felt a bit silly but it worked for me!!
Louise wig and nits issue!: do you wear that funny stocking cap under wig? I find it very hot and itchy if don’t wear mine .
Eam28. Have a great night out tonight and have a large glass of wine for me!
Have a good day everyone x
Ladies the power of laughter and positive thought should never be under estimated. We all have the right to moan and to worry but we all need to keep our heads high and our hearts light xx
Rose so sorry you are suffering chin up I always know that I am on the mend when I can drink tea and eat Heinz tomato soup Positives well that’s a hard one but the best I can manage is that u feel better today than u did yesterday so it’s an upward trend x
Hope you are better today Rosie, think your on Tac the same as me and I have terrible constipation. Just keep an eye on your arm, im sure it will be fine but the chemo nurse warned me about pain around site and if it worsens to give them a ring xxxx
Wildpurl absolutely it’s vital we all have something to look forward to doesn’t matter how big or small. I bought myself a bright red expensive lipstick to go with my shaved head. I am planning a big holiday but can’t book it till this is all concluded but enjoying looking at lovely hotels. Xx
Hi Rosie can u get a pic(?) not sure spelling right - line put in I have v fine veins and this may be the option for me as each session of chemotherapy damages the vein x
Hi, Rosie, glad you are on the mend today- enjoy talking to your family! Treats and holidays are vital to have something to plan for. I treated myself to some nice clothes in the fat face sale and might look at buying a tassimo coffee machine as I gave a real craving for cappuccinos and hot chocolate!
Anyone got any pets, my black lab whos 8 cannot stop following me and staring in a sad way, he wont leave my side bless him. Shame I dont feel I can be that affectionate with him, he licks all the time and a bit worried about germs bless him, but hes a star xxx
xxx