Good morning to the latest April thread. I’m one of the 2012 Chemo Bunnies and wanted to hop in and wish you all good luck in your journey. As Southpool said the thread will be your best source of information, entertainment and just a place to post when you are feeling down or if you’re ok. The bunnies have gone from strength to strength and it was only because we had each other that we got through it all. Much love to you all xxxx
Morning everyone.
How is everyone feeling today?
Very good luck with your 1st chemo session on Thurs Rosie, sending loads of love.
Kirstie, I didn’t book an appointment with the dentist either. I have a ridiculous dentist phobia which, after all this, you really would have thought I’d have got over! I shall pluck up the courage and (maybe) do it today. Hope you’ve managed to get an appointment.
Loulou, hope the look good, feel better course goes well this afternoon and looking forward to hearing all about it.
Thank you so much for the reassurance Southpool, it’s really lovely to hear from people who’ve already been through it.
xxxxxxxxxxx
Hi I have had it confirmed that I will now start chemo in April - seeing Chemo suite on Thursday and Oncologist on Friday.
Took a while to get my head around chemo as I was to have had the operation first, but due to growth and unable to rule out something on my lung and possiblity of things on my right book - Chemo it is. I think I am ready?? - Keep getting told I am brave - half of me just wants to get started and the other half of me wants to stay buried under a pillow and duvet - probably normal !!!
Will be up in Mount Vernon which looks to be quite nice
I have shoulder length hair which I am looking to get cut in readiness - looked into donating hair but does not seem straight forward - any advice or has anyone donated hair?
Hi everyone
Got back from the Look good, feel better event this afternoon and it was great. What a selection of goodies including Chanel, Estee Lauder, Benefit and Clinique to name but a few. It was a small group of ladies and tea and coffee was provided. We practiced various techniques with make up application and everyone was really friendly, highly recommend xx
Hi Wildpurl
I’ve tried a couple of wigs and I was also surprised at how realistic they looked. I have very thick hair which is a bit wiggy anyway, so couldn’t really tell the difference!!
I visited the onc today and was surprised at the outcome and any thoughts would be appreciated.
They advised that initially my results were 1 node positive, 1 node micromet, this led to me having full clearance, fortunately no further node involvement. Today I have been advised the onc wants the micromet checking to make sure it is a micromet as the pathology report is not straight forward…they will then offer the following.
If the original report was correct I will be offered Fec, if they decide the micromet is now a macromet they will class me as two nodes positive and I will have Tac. I will find out next week and hopefully start the week after, is this treatment plan similar to anyone’s. I always assumed that as I was node positive I would automatically have Tac, im going to post on chemo thread as well and see if any ladies previously treated have been advised this.
Thanks ladies xxx
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Hey Rosie, good luck and hope all goes well, will be thinking about you today xxxx
Hello Girlies! I am starting chemo on the 3rd April. I was diagnosed 23rd Jan with invasive ductal, grade 3, her2 & ER positive. Have had two operations & now ready to take on the next stage! I am 28, married with a 20month old little girl:) xx
Hi Ladies
Looks like we all share the same concerns, I too am really concerned about my boys seeing me really ill. I have also had two surgeries and was not that bad afterwards, well not as bad as they expected! I initially told them I would be poorly whilst I recover and I think they think the worst is over, I keep having to gently remind them that I will be ill again (Hopefully not too bad!!)…Have any of you decided to use the coldcap? Eam28 do you know what chemo you are having? Im ready to start just waiting for my wound from haematoma to completely close, nearly there, should be starting two weeks tomorrow.
Wonder how Rosie got on, hope your ok
Take care everyone
Louise xxx
Hey ladies I have a random question I had my WLE and snb on 12 feb and haven’t had a period since, I am regular like clockwork every 21 days, sometimes even sooner, periods for the last few years have been totally horrendous and now nothing, haven’t started chemo or tamoxifen yet, has anyone else experienced the same ? Sx
Thanks loulou that does make sense pod to know I’m ‘normal’ whatever the hell that us these days! Lol xx
Thanks Rosie I have put in a request thanks for that, have you got a hat for your head then or a scarf I may have to find a hat :0) good alternative and worth a try x
Hi loulou1262, I am having 6 sessions of chemo every 3wks. It will be FEC for fist 3 then T along with herceptin for the last 3. I hope you get a start date soon. I hope they still go ahead with mine - my arm has been filling up with fluid ever since surgery so has been drained 4times but my nurse said as its not infected hopefully they can still go ahead. My little girl hasn’t got a clue what’s going on which is prob a good thing. Think she’ll notice soon enough though:(. My oncologist gave me a book to read to her called ‘mummy’s lump’ - might be good for your 9 yr old? Or he may find it babyish? I’m just not looking forward to my little girl going from pillar to post as she’s not old enough to go to pre school or school everyday. She will keep me busy if I feel up to it though!xx
Hey Rosie14, I’m glad its gone well for you so far! I spoke to a girl that lives near me today - she had chemo a few yes ago & said she felt fine afterwards so cleaned the house from top to bottom then felt awful! Keep us updated (if u feel like it). This time next week I will just have had mine:) xx
Hi kirstie77, yes I suppose I am a spring chicken! You are young too dear:). Well done you for planning to do the race for life! My mum,two sisters & two nieces are doing it this yr too - hopefully I will join them next yr!:). This may sound silly but how did you get in touch with a MacMillan nurse for financial advice? I am currently on 8 months stat sick pay ( I was advised not to work through due to risk of infection as I am a support worker for adults with learning disabilities). My husband is now working away on a job to get extra money for us - just when I need him the most! Xx
Hi EAM
Here’s the link to the Macmillan website where you can find the financial support details:
macmillan.org.uk/HowWeCanHelp/FinancialSupport/FinancialSupport.aspx
Take care
Lucy BCC
Thank you x
Hi Ladies
Hope all is well… I’ve had one of those run away train days ( as my hubbie calls them) This is when every niggle or pain I feel in my body, even if it only lasts 2 secs, goes back to my cancer. Hope these days diminish in time as tbh I do my own head in !!! Anyway, hope you are ok Rosie and the SE are not too bad, just think, you will be the first to finish:smileyhappy:
On the financial front my BCN has told me when I visit next week she will give me a macmillan grant form to fill in which is available to everyone. Both myself and husband work and we will still qualify, ask your BCN as any financial help is better than none.
Having nice glass of red tonight, cheers xxx
Still ok ladies went to bed at 9.30pm last night got out 4 times to toilet but it was only the liquids that they had pumped through me the day before so that’s acceptable! I am finding it best to eat little and often if you feel just a lttle possibly imaginery pang of nausea it takes it away! Try to keep your mind off side effects starting and have a goal for the day. Not cleaning the house from top to bottom though!!! I am finding puzzle books good. Hubbie is being very supportive at mo and cooking and washing up and I am making the odd cup of tea and feeding the dog. I am lucky I am 58 and my 3 children are all grown up with partners and grandchildren. I take my hat off to you all dealing with children at home and do wish you all the very best for your treatment and that it will be gentle on you. Remember ladies this is not for ever we can get through this time in our lives !!
Rosie so glad you’re feeling ok and the se have not been too bad, did you eat before the chemo? I’m sure it’s probably better to eat than not? Kirstie WLE is a wide local incision (lumpectomy) and snb is sentinal node biopsy. Well done in your fundraising that is amazing, I haven’t written my fundraising page yet for the breast cancer walk, partly because my diagnosis is not common knowledge although quite a few people do know. I just got sick of saying it to be honest and I don’t really want people to treat me differently. I will man up though this weekend and create my page as nobody can donate if they don’t know! Have a lovely Mothers Day tomorrow all great news on the grant front oh and I finally got my period btw xx
Hi everyone
Rosie, hope you are ok and your symptoms are not too bad…Hi Whirlpool, sorry to confuse but no, they have decided on fec × 6 if my second node is a micromet and 6×tac if its a macro (over 2 mm), will find out weds. I was concerned that it was just the fec when I had node involvement, but on speaking with the bcn she said its not just about node involvement but the way the cells were growing, if there was any vascular invasion, there wasn’t. I suppose I will just have to trust my onc, he has over 30 years experience.
Booked for my hair cutting to shoulder length before I start the cold cap and going to visit a wig shop in Leeds next week to get some ideas incase it fails. Found a great product for roots if anyone has the dreaded grey!!
Good luck with the line tomorrow kirstie and let us know how it goes. Have you requested it as my bcn said I wouldn’t be offered anything unless I had problems with my veins.
Fingers crossed my wound is closed Wednesday so I can crack on,
Take care everyone xxxx