Wouldn’t give me Emend, asking me to take steroids for an extra 2 days, not happy as I hate them. Always feel really jittery on them x
Yeah they’re not nice - think they make me tearful & down for a few days. Mine where suppose to be halved last time but then they didn’t as said I’d be really poorly without them & I need them even more on next chemo! Xxx
My face is red Rosie, it does go away though when I stop taking them… my end date should be 1st August fingers crossed !! X
My last posting, on Thursday, seems to have gone AWOL and my network connection went down yesterday so I am now very behind. My only news is that I managed to get to my meeting and went bare, so was quite pleased with myself. Everyone seemed OK with it although one guy launched into a long story about how his sister had had breast cancer and everything which possibly have gone wrong with her treatment did! He’s a really nice guy and I thought sensitive so what did he think he was doing? My next chemo, the first of the TAX, is next Friday so packing the time till then with treats, going to see family and friends, going to the theatre. I’m going to try the ice pops idea this time because my mouth and lips have been really sore this time, even toothpaste stung like mad and other than continuing with the mouthwash the hospital couldn’t suggest anything. Rinsing with bicarbonate, as suggested by someone on this forum I think did help a bit. Had a unscheduled trip to the hospital yesterday with suspected cellulitis so now on antibiotics but they seem to have done the trick already as hand no longer swollen. The doctor was also quite reassuring about the clot, I was worried that the fact that my hand still swells up and my fingers go a bit blue means that the blood thinners aren’t working but she thought that was not unusual because the PICC line, which triggered the clot is still in place. When I mentioned blue fingers to the nurse she went into panic mode.
Rosie, so sorry you are back to your restricted diet. You sound amazingly cheerful about it. I hope you enjoy your celebration weekend. I envy you your pool. I do miss my swimming and still haven’t got onto the exercise bike. Perhaps today. I am full of admiration for those of you who are walking and running. However I didn’t do those things before this anyway. My end date for chemo is July 18th.
Not looking forward to taking steroids for longer this time. Like others I find I find I have great difficulty sleeping while taking them, and although sleeping pills help they don’t stop me waking up many times in the night.
Is anyone else plagued with a very dry mouth. It seems to get worse in the third week and drinking only helps momentarily. It’s a real pain at night. That and the bad taste in the mouth are the only side-effects which seem to get worse not better. I have discovered Haribou Tangfastics however, which are brilliant if rather addictive as well as being children’s sweets and doing nothing for my teeth.
Kirstie, so pleased that your job is secure. That must be such a relief to you.
Weeannie, love your post about cleaning your woodwork. And terribly impressed that you are doing that anyway. I’m not sure whether my incidents of forgetfulness are chemo brain or just simply senior moments.
Love wine, strange things also creep into my postings. My autocorrect comes up with some strange things. This morning it corrected my unscheduled trip to hospital to nunscheduled, which made for a rather interesting picture.
Finally, since this post is now long enough, good luck to everybody about to have their next chemo and hope those who have recently had one are feeling better.
Morning all,
Hope everyone has slept well and feeling as fresh as possible.
Had a bit of crash and burn yesterday. Managed so well till 4 pm, then felt really sick. Had to go back to bed for two hours to try and sleep it off. Funnily enough, was ok by 8ish. Just can’t fathom this chemo malarkey out. The side effects do seem to be increasing with every session. But only got 2 to and I know that some of you ladies are going through a lot worse than me, so just have to get in with it.
Hope you enjoyed your wine Kirstie,would love to join you, but just can’t contemplate alcohol at the mo. Hoping that changes once they’ve stopped fecing about with me.
Poor you Rosie. Was hoping that the tummy troubles would disappear for you when you started your new chemo regime. Here’s hoping that it gets better soon, especially for you enjoy your weekend away and your G&T’s? My end date is 9th July, so hoping to have a " thank fec it’s over" BBQ a couple of weeks later. Here’s hoping my aversion to alcohol has resolved itself by then.
loulou1262, I also get the red glow from steroids. Everyone keeps asking if I’ve been out in the sun. Absolutely hate it. I look like a flipping beet root. But small price to pay for keeping the nausea at bay. Hope that the tac is as kind as poss to you and that you don’t feel too bad over the coming days.
Joan47, I too was plagued with a dry mouth. It’s awful and was the one thing that kept waking me up at night. Was drinking glass after glass of water, which meant I’d go back to sleep then waken up 20 mins later to go to the loo! Have been given an anti emetic to take just before bed time (levomepromazine) which seems to be letting me sleep for most of the night. Still waken up with a terrible thirst, but nothing like as bad as my last 3 chemo sessions.
Eam28 , I don’t know how you manage with all your activities and a little one to look after too. You’re obviously one of life’s copers, and I do so hope you enjoy you’re barn dance and wine tonight.
The sun is shining again in Aberdeen, so off to drag the pooch out for a walk before it decides to disappear!
Have a good day everyone.
Ann x x
Ow Rosie, what a bloody nuisance again and how boring to be on such a restrictive diet- have fingers crossed for your lovely weekend away, a nice treat you so deserve, and so lovely you married young and are together 37 years on - happy anniversary for 4th June xx myself and hubby celebrated our 25 th anniversary on Christmas Eve - thought we were doing well!!
Joan, glad meeting went well, takes a lot to see work colleagues etc after looking and feeling different and everything else we put up with! I think a few of us start Tax next week- must admit dreading it,
Loulou, hope you start to feel normal again soon, I also get a red face and chest, hadn’t realised it was steroids I thought it was the chemo itself ,
Kirstie, hope you enjoyed your wine and snacks!!
Weeannie- am just putting on wellies to walk my 2 border collies too! No sunshine here tho!
Eam, have fun at barn dance, sounds like great fun!!
Everyone else, enjoy the weekend too whatever you do- I had a major wobble last night after being quite upbeat for a few weeks- suddenly dawned on me again that I had CANCER and had a panic attack almost, felt really sad and longed for the days when I had hair and a normal life- I think it didn’t help I caught sight of a lovely photo in bedroom of me, o/h and our 2 boys when they were children on hols in Cornwall- I looked happy, healthy and had loads of hair! Now I look like a boiled egg!! These moods come crashing down like a black cloud - anyway feel brighter this morning thankfully.
My finish date for chemo as long as no set backs will be 20th July!!
Morning lovely ladies!
Auw Rosie so sorry to hear you’ve got the dreaded runs back - again! But like others have been saying - you sound like your dealing with it well & know what to eat now to ease it a little! Hope you enjoy your time away sounds perfect:) & wow 37years!! Congratulations & happy anniversary! My last chemo is 17th July so hoping I feel well for my daughters 2nd birthday on the 21st then we can have a double celebration!
Loulou the redness doesn’t last too long for me but sure it will next few rounds the more steroids I’m on! I’m not a sun worshiper so normally look like a milk bottle but my hubby said the other day ‘blimey you’ve caught the sun!’ When really its the lovely chemo!
Well done joan47 for going bald & proud to your meeting! Hopefully like kareoke - once you’ve done it once you’ll do it again & again!
Weeanie1 I’m having a bit of a ‘crash & burn’ moment now! Think the week has caught up with me so hubby has taken little one to the park whilst I have a lie down otherwise when I put her to bed tonight I’ll feel more like joining her than going out line dancing! Hope the sun is holding out for you. The walks up there must be amazing!
Auw love wine - we’ve all been there - don’t worry. This time next year you will be that person again:). Keep smiling honey & push through xxx
A neighbor stopped to ask how I was getting on yesterday & a holiday maker stopped & said she couldn’t help over hearing but just wanted to say she is 12 years down the line so was nice,unlike the delivery man the other day who said when I opened the door ‘ooh you look like you’ve been in the wars!’. Was too shocked to reply ‘so will you in a minute!’
Hope you all have a lovely weekend,hope you havnt got a hangover kirstie!;)
Xxx
Morning everyone, welcome Jos and weeannie, great to have you join us. Rosie I am really crossing my fingers and toes for you that you can keep everything down this time. My last chemo if all goes well will be 18th July, so I hope to be largely recovered from that cycle by the end of July. I am beginning now to see the light at the end of the tunnel and think that I will get through this. Last night we actually booked a holiday cottage in Wales for the end of September, we are going with my son and his GF and I’m really looking forward to it.
This weekend I have just been to the gym, going to do some gardening next and tomorrow we are going to see a birds of prey display, all nice normal things!
Re the dry mouth, my onc told me that the chemo stops the root of the tongue producing saliva. I find I have a dry mouth for 7-10 days but gradually improving after the first week. Then I start to feel normal again.
And finally I think it is the not looking like me because of my hair that really can get me down. I can sort of live with it but I know it will take a long time to get back to what I used to look like and I can find that very depressing. Oh well.
Enjoy your weekends!
Wildpurl x
Evening ladies! Hope everyone is coping with their various symptoms. Rosie, hope your bottom is behaving itself tonight! It must be really debilitating having to rush to the loo all the time. Hope it settles down soon. Pasta always bungs me up!
I don’t want to speak too soon but I’ve had a pretty good day. It’s been sunny here so we went on a family walk to one of our favourite beachside cafés for lunch and then walked back, an hour and a half each way. Not as impressive as doing the race for life but feeling like a normal person at last.
The only thing that is concerning me slightly is that the area around my last cannulation site is quite sore. Seems more sore after my long walk than earlier today. Hopefully it will feel better in the morning. Really don’t want to have a problem with it as I am taking my son to see his new school and meet his new pier group next weekend. We are all really excited about it. Flights are booked, so will be gutted if there is a problem.
Morning all!, yes Rosie so nice to think its June today so we are closer to next month!:). Sorry to hear your still not 100% Rosie - a shame you have to miss your BBQ but like you say hopefully be all good for your time away:). Soup was the only thing I could it first round so everyone started making some but by 2nd round I didn’t fancy it so have quite a lot in the freezer! Hopefully I’ll have a craving for it in the next few rounds!
I am beginning to see the light as well wildpurl! Have always tried to keep positive apart from when the steroids make me tearfully & fed up but now we are all talking about are finish dates next month it feels good! Ooh how lovely to have a nice cottage booked - bliss:). I really want to book something too but until I have date for rads to start I don’t feel I can. Hoping to get some idea next round on Thur. Hope you enjoy your day out today:).
Sounds like a lovely,chilled out eve kirstie - just what the doc ordered!
Nice family lunch & walk by the sounds of it tlj63:). Glad your feeling normal & hope your arm is ok. Mine feels a bit tender at times & have only had one canula - well if you don’t count aneathatist for x2 ops,bloods & ct scan!
Last night was nice,just to mingle & catch up with people really! Lots of people meakly asked if I was wearing a wig as said it looked really natural:). Me & my friend had a pact - I would tell her if she was leaking (breastfeeding) & she would tell me if my wig was lop sided!
My little girl has just been trying to put her hair clip in my stubble & failing! Has put it on teddy now - he has way more hair than me!
Hope you all have a lovely day:) xxxx
Hi everyone, 1st June!- it does seem nearer now to finishing doesn’t it- Rosie I totally relate to O/H on computer and no interaction- mine is just the same too, sometimes I take myself upstairs to read as I feel like thumping him!! Really hope your tummy starts to settle this week ready for your weekend away.
It’s a lovely day here, might also go for a nice walk later and maybe a small glass of wine in pub garden would lift the spirits! Am going to give it a bloody good try!
Eam, your little girl sounds so sweet! Barn dance sounds fun, it’s good to get out when feeling well, of course next week we are in for dreaded Tax on Thursday- how are you feeling about it? I am a bit nervous coping with new side effects.
Kirstie, now weather picking up you can go off in your caravan, if you are good at sewing etc you can make pretty curtains etc- noticed in our local wilkinsons they had some really pretty, inexpensive crockery etc for camping/ caravan !!
Tijj, I had sore hand and arm last time , seemed to be worse when tired too- haven’t had it this time, chemo went ahead, how exciting for your son to be meeting new friends at new school, how proud you must be!
Xx
You know that irritating saying ‘if life gives you lemons make lemonade’? Saw a much better one yesterday on a card ‘when life gives you lemons get out the gin and tonic’. So I did! First one in months… Lovely. Thanks for the suggestions about dealing with a dry mouth. Dashing off now for day with friends in, hopefully, sunny Devon. Hope everyone enjoying their weekend as much as possible.
Morning everyone
Wonderful thats its june, thank goodness… Hope your tummy does settle Rosie and you can have a little of what you fancy I have enjoyed a glass of vino most nights from day 10 to 19. I just think its only one glass of red and makes me feel kinda normal. My breast care nurse said its fine just dont go overboard, relax and chill when you can. Im day 3 of 3rd round and this time can tolerate tea, strange things these taste buds. Like EAM said about the soup I also craved it last time but not so bothered this round, also gone a little of eggs. Well think its going to be nice here today in Yorkshire, just wondering how quickly do most of you get out for a quick walk or exercise? X
Hi loulou, I try and get out for a walk with my dogs every day, even day after chemo, it is a real effort sometimes, but strangely when you come home you seem to have more energy!- think you just have to do what’s right for you, chemo nurse said at beginning that a gentle walk a day is very good for mind and body!i interesting about the wine, my onc told me off last time I went … Said I shouldn’t be drinking small glass nightly, but only once/ twice a week, thinking of all the chemical crap in our veins I think a small glass wouldn’t make much difference!!
Sorry Jackie you are feeling down, it’s much worse too when you are alone. At least last day of steroids, tomorrow you may feel much better! Think we are all having off days now- fed up with it all I would say!! Take care. Xx
Hi ladies been enjoying normal but the FEC ing chemotherapy starts again Thurs so Zombieland here I come. Nice to hear so many are on the home straight Although jealous because I don’t finish till Aug. My veins are sore this time and I am hoping that the Onc will be able to help with the tiredness and sickness Honestly round 2 knocked me off my feet for over 2 weeks.
Had lovely day in the garden and a meal out. Fab. Getting tins of vegetable soup ready for next week it’s one of the few things that taste normal.
Jackie, so sorry you are feeling rotten. Which steroid are you on? I’m on Dexamethasone and although it badly affects my sleep I haven’t felt weepy. It might be worth asking your oncologist if there is an alternative. But I guess it also may be the particular circumstances this time, being on your own and being disappointed that your mum couldn’t come down, plus constipation and losing more hair! . Sometimes even small things are enough to bring on the tears and those aren’t small things. Constipation in itself is horrible and one of the SEs I most dread. Have you tried the go-cake-the recipe was posted on this thread a while back and several people have found it effective. If you can’t find the recipe -this has been a very active thread-I have copied it down and can let you have it. Thanks for the tip about bio extra and dry mouth; seeing oncologist today and will ask.
Hope you are feeling better today Jackie and have managed to sort the constipation. Ive not been since Thursday and having never suffered from it before treatment ever, I cant believe how uncomfortable it can make you feel. That sounds like a good plan Rosie, sometimes I do think we know our own bodies more and have to trust our instinct. Kids are back at school today after half term so will be a little quieter instead of loads of 9 and 12 year old boys bouncing up the garden !! Anyone taking any vitamins that have been oked by their onc? I am eating fairly good but being over halfway I want to do as much as possible for other symptoms for when we finish and if any similar go onto hormone tablets xxxx
Hi Joan
Could you give me the recipe or advise what thread the Go cake recipe is? Think I need to try it, feel like a brick is sat in my tummy. Thanks xxxxx
Hi loulou, I found a recipe very similar to go cake - if you google all bran cake - it’s the Kellogg’s recipe, although for some reason it’s listed ingredients twice! I am rubbish at baking and I made it yesterday and it’s delicious and foolproof! I put prunes and mixed fruit in it and it worked in the toilet department!!
100g self raising flour
300ml milk
275g mixed fruit/ prunes
150g caster sugar
100g all bran
Mix in a bowl the bran, sugar, fruit and milk and leave to stand for about half an hour
Put oven on at 180 or gas 4
Sieve in flour and stir well
Pour mixture into loaf tin and bake for about an hour
Delicious!!