We live in the Channel Islands, so only a 30 min plane ride to the mainland. His school is close to the airport, so he can come home for exeats, half terms and holidays. His first assignment was to write an essay entitled ‘my life in books’. That would have filled me with dread, but he seemed to enjoy it. I’m hoping he rings tonight as he was representing the school in a sports team this afternoon which, for my son is a real bonus as he is not a natural sportsman. Hope it went well.
TiJ, it is so frustrating when a post disappears into the ether and somehow it always seems to be the longer ones. You must must be so relieved that he has settled into his new school. How are you coping without him?
Glad that you are recovering your fitness levels. I have just been out for a brisk 20 minute walk and come back feeling very wobbly though virtuous. I don’t suppose it has made much inroads into the rather nice lunch I had with friends though. Did I really have to have the chocolate and orange pot? I need to get back some will power.
Rosie, hope you have enjoyed your lazy day. Good luck with the inflation tomorrow, it seems so unfair that it is making you so uncomfortable after everything else you have gone through.
Lovewine, when your children are young it seems such hard work and you worry about them constantly but when they are distressed you can usually comfort them. What I hadn’t anticipated was that the worry would go on as they got older but the comforting becomes harder. All you can do is offer a sympathetic ear but be sparing about the advice unless asked for. It’s a positive sign though that your son felt able to go into work. Hopefully once she is back in England things will be easier.
Jos, glad the op went well.m Hope you can keep the pain under control with painkillers. It sounds as if you will have a very good cosmetic result. As the swelling has gone down on my boob I am becoming very aware that it is now considerably smaller than the other one and the nipple is about an inch higher and retracted. The oncologist has also warned me that it may get smaller with the radiotherapy. I know it could have been a lot worse and I am lucky still to have both boobs but still. I wasn’t offered reconstruction at the time or soon after the op. I think the surgeon had to take more tissue than originally thought which is probably why.
Another grouse, about to lose the index fingernail on my right hand now to add to the two nails gone on the left and big toenail also loose. And I thought once chemo was over things would get better. Somehow it seems wrong to be grumpy at this stage but I am. Sorry.
Evening everyone, tij, sounds hard having your son at boarding school but sounds like he is settling well, you seem to be recovering your energy levels too , glad you enjoying your electric bike, I had problems too posting on the forum last night and gave up in the end.
Joan, chocolate and orange pot- how nice!! Am a firm believer in having a little of what you fancy- but indulging ourselves now I think a lot of what we fancy is needed more! I have taken off my dressings etc and looked at my wound and my boob has been moved and nipple repositioned and stitched back on! It looks better than I thought, but not breathing a sigh of relief just yet as may need further surgery when pathology results back, do you think surgeon will offer next year to give a better cosmetic appearance, that’s what my surgeon suggested.
Rosie, good luck tomorrow for further inflations, feel so sorry for you having such discomfort and problems, doesn’t seem to be getting much easier, surely doctors can do something about the inflations and associated problems? How frustrating. Hope your meal out was enjoyable and not too tedious if work related!
I am relieved to say my son appears to be a little less distraught today, no further contact with girlfriend which he is taking as good as at least she hasn’t ended their relationship, I really hope when she returns to the u.k next week she can see doctor and resume medication, but I can’t see it happening , so this rollercoaster will continue with their relationship! Wildpurl, think you have a point in saying family etc think we are stronger now to cope with their problems, must say I feel very drained after yesterday! It is much harder to comfort them as adults as you say Joan, I am surprised my bottom lip isn’t red raw from biting it shut yesterday !
Apart from that, have had a fairly quiet day, met friend for coffee which was nice as hadn’t seen her for ages and she loved my wig!!
Incidentally, have any of you had almost " post traumatic shock syndrome" now chemo is over? I have found that now the merry go round of 3 weekly bloods, onc appts and chemo I seem to look back on it all and feel very panicky at all that’s happened, almost as if when going through it my brain seemed to block it all out( along with most things!) and now seem to be having a delayed reaction .
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Joan and Rosie, grumpy step too for me - my big toe nail is very painful and about to fall off too, finger nails are dreadful, look brown still and have what looks like water blisters at the top of nail- yuck
Morning everyone, good to enjoy a glass or two of wine finally Rosie! Will be thinking of you today and your inflations!
I see surgeon on Monday, but results may not be back then, I really am hoping they won’t need to operate further! And yes hoping for a lull in proceedings until girlfriend returns next week!!
Working this morning and then a little shopping this afternoon, bird seed and cleaning products!!
Rosie, of course , you are off straight after your appt for your weekend treat! Have a lovely weekend and a very happy birthday! I hope it won’t be spoiled too much by all this discomfort and uncertainty, your daughter is right with her lovely words- not many people would have been able to deal with what you have had thrown at you this year! So try and relax if possible and enjoy doing nothing!
Hope your dad is doing ok too and stabilised.
A very happy birthday ?x
That sounds much more positive Rosie, at least he can be home, but have help too if he needs it.
Morning jos, yes I feel really fed up today too! My seroma has not drained away yet either! Am fretting now about results and possible surgery too, yes as we have been saying and Wildpurl too, I think it does seem surreal all the chemo etc and maybe it starts to hit us now! You certainly have had a lot going on too with your personal life, how difficult on top of everything else, hope you can offload on counsellor today! My nails look like they are nicotine stained too, and I am bloody fed up with wearing a wig! Definitely joining you in the rant !!
WIldpurl, hope you have a good day, enjoy your new bed! Have you bought new bedding for it!? Sounds like you are going to be busy again! Do you have anything planned for the weekend?
Evening everyone, Wildpurl hope you managed your sorting out and tidying up! You will be looking forward to some good nights of restful sleep! Enjoy petworth house and time with your daughter.
I went to our local town this afternoon and after buying the boring stuff I looked around the more interesting ones! Most have 25% sales on at the moment too! also went into the cancer research charity shop and found a brand new , very pricey pair of joules jeans ( still had label on them for £65.00) and I paid £7.00! So that went a good way to lifting my grumpy mood!!
Hope you are all doing ok, have good weekends whatever you are all doing!
Rosie, hope you got some answers today at your appointment? Enjoy your birthday weekend and right now I hope you are being spoilt and lolling around with a glass of something interesting in your hand!!?
Hello all! Sorry I haven’t been on since last chemo. Hubby didn’t think it was healthy for me & wants me to move on now that the worst is over. Have my last radio on Mon 15th!!:). Hope you are all doing well. I will scan over the last few posts & see what you have all been up to xxx
Eam, how lovely to hear from you, I have thought about you many times in last few weeks and hoped you were getting on with life and doing well! I quite understand your hubby wants to move forward now, it does all seem surreal which we were mentioning earlier. Last radio on Monday- well done!! Hope you had a nice holiday too!! X
Lovewine, glad your retail therapy helped to get you off the grumpy step a bit. I am with you about the post traumatic stress effect. I surprised myself by not being more upset and anxious about the diagnosis and although the chemo was challenging and the prognosis in terms of further surgery worrying on the whole I coped better than I would have anticipated. Now it’s nearly over it seems to be hitting me and I feel worse than before. I have decided to go back to the cancer care centre I went to earlier to try and get on more of an even keel. Hope youngest your results on Monday and the news is positive.
Rosie, happy birthday.mgreat news about your dad. Hope you are enjoying your weekend and that the surgeon is right that it will feel easier.
EAM. Good to hear from you and great that you are done. A pity that your husband didn’t think bring on this forum was good for you. Mine was rather hostile to it at the start, but came round to it and now recognises how much of a lifeline it has been. I suspect he thought that since I had his support I shouldn’t need anything else.
Jos, hope your counselling appt was helpful. You have had such a lot to cope with without the seroma reappearing.
Wildpurl, hope you enjoyed Petworth. We had hoped to get there when we had our few days in Sussex in August but ran out of time. Enjoy your new bed,
Joan, it seems then most of us feel the same regarding the stress we are feeling now, glad it wasn’t just me! I think we are expected to feel " better" now that chemo is finished!
Strangely, it was my husband that recommended joining this forum , after a particularly awful day when i was in despair not long after diagnosis, must say it has been a massive comfort and support to me. I am not into Facebook or similar things but have found this thread to be invaluable-thanks ladies!!
Just treated ourselves to a shop at Waitrose (gulp at checkout of course). Family lunch tomorrow to celebrate, again, husbands 70th birthday. Decided a cold buffet would be easiest and wouldn’t involve me in too much cooking. I have made a couple of puddings though - summer pudding and a walnut and lemon curd meringue.,not sure how the latter would turn out though since just as I was congratulating myself on dividing the mixture evenly realised I had forgotten to put the walnuts in so had to scrape it all back into the bowl! Still at least I feel I have made a bit of an effort.
Jos, glad you found your appointments useful. It makes such a difference having decent explanations. And finishing up in the pub sounds just the thing.
Rosie, commiserations on losing your post. So frustrating.
Afternoon everyone, hope you enjoying your weekend Rosie, and yes felt great getting a bargain!
Joan, I love waitrose, but only pop in for " treats" and special occasions like you!! The food is lovely, if I luckily became wealthy I would do all my shopping every week there! Enjoy your buffet tomorrow and your puddings sound delicious.
Wildpurl, hope you enjoyed petworth house, glad new bed is comfortable too!
Thank you all for your well wishes,concerns & encouragement as always! Sounds like you are all doing nice things & eating lovely food. Every time I have just a cup of tea I think how nice it is to enjoy it with no sore mouth etc!
I had a couple of ‘melt down moments’ when I finished chemo - getting myself worked up over things that are silly so I think hubby just wanted me to take a step back from it all.
The holiday was great thank you love wine!:). I was a little disappointed when we turned up - the caravan & site was a bit rough! But I was off to radio every day by 8.15am & then we would be out all day doing lots & my little girl loved every minute so if she’s happy we’re happy!
Yep last radio tomorrow!!:). Herceptin no’6 on wed. This year is going a lot quicker than I thought it would!
Off to get soil & a couple climbing plants as spent the whole day tidying the garden yesterday. Have a big raised flower bed to fill when the time is right. Hope you all have a good day xxx
Morning everyone, Rosie, sounds like you are having a nice time and enjoying nice food! I am getting really fed up now with the constant hospital trips that cause so much anxiety- scans, heartscans, blood tests and now tomorrow waiting for path results, just seems to be a constant build up of worry!
Eam, you sound great, so good you have last radio tomorrow! Have you found any side effects with herceptin? Hope to start mine soon! Good luck with plant buying, must say I have discovered gardening to be very satisfying, watching things grow, at least you have something to show for the hard work, unlike housework!
Wildpurl, hope you are having a nice weekend with your daughter, Joan, hope you are ok too! Enjoy your buffet!!
Have a good Sunday everyone, not sure what I am doing yet as at the moment my backside is firmly glued to the grumpy step!
Sounds like you have had a nice time wildpurl & hope you managed to rest!
Hope you have perked up a bit love wine? It does get a bit much doesn’t it. I call the hospital my 2nd home now! In 28 years the only time I had been there was to have my little girl. Now we’re all part of the furniture! I haven’t found any side effects at all with the herceptin & the radio has been a breeze. Just irritated the healing process a little. Its all the traveling & childcare that’s the worst part of it for me.
Garden looking lovely after nearly 5 years! Still a lot to do but feel better now the ball is rolling. We went out blackberry & sloe picking afterwards.
Some people where meantioning wigs. I wore mine last wkend as I was a bridesmaid & it will prob be the last time as I went commando 2 weeks ago. Hair is very fluffy & about 1cm long! Still not much in the way of lashes & brows:( xxx
Hi rollicarpit,good luck for tomorrow starting back at work!:). I have a meeting with mine 1st Oct. The only side effect I have found with the tamoxifen is the hot flushes in the evening but got used to them & they where worse during chemo so can cope with that. Also seem to have a dry cough but don’t know if that’s to do with the tablets or not! Good that its cured your headache though! Xxx
Good luck Lisa tomorrow, hope all goes well! Normality beckons!
Jos, totally understand your need to move on, let us know how things are going now and then, it’s so nice when everyone is feeling stronger, enjoy your last few days with your sister! And good luck in returning to work too.
Eam, I did in fact cheer up, went for a walk and then stopped in a country pub with a lovely view overlooking beautiful rolling countryside with hubby and dogs of course! Felt quite uplifted and glad to be outside in the fresh air, also picked loads of blackberries too!
Rosie, hope you had a lovely birthday weekend?
Tulamo, hope you are not too bad after chemo.
Wildpurl, hope you enjoyed a quiet day, also work won’t be too tiring next week.
Joan, hope you enjoyed your day, especially the puddings!
Tij, hope your son is doing ok at his new school, Jackie too, hope you are healing well,
I think I will be posting and reading on this thread for a while yet!!