Oh Rosie, how frustrating. Do you know what the CT is for? You may have been referred for a CT of your chest, abdomen and pelvis to ensure that the rest of your body is clear of anything nasty. That would be done in the diagnostic radiology department. Whereas the radiotherapy department may also have a CT scanner that they use to plan the exact positioning of the radiation beam for the radiotherapy treatment. Sounds like you have got lost in the system. Perhaps they want to do a diagnostic CT before they make any decisions on the radiotherapy. Hope you get it sorted out.
I had quite a productive trip to the shops. There was a 20% off day in White Stuff, so I have to admit a couple of items were purchased.
My son rang at 9pm last night having just got back from London. He sounded exhausted but his housemaster was making something to eat which was kind, so didn’t get much of a chance to chat. Can’t wait to see him this time next week.
Hope everybody has a good day.
Hello Ladies,
I have been reading the thread on and off and am sorry to hear that things are not going well.
Lovewine, it must be heartbreaking to see your son so unhappy, I hope he finds the strength to either end the relationship it or set some sort of deadline to sort it out, get help or whatever it may take the longer it goes on the worse he will be.
Rosie I hope your cold is better soon, and the rediation therapy goes well, shame you have such a long way to travel.
I am going up to Norfolk today to see my eldest daughter and grandson, he is excited that I will be meeting him after school today, bless. We have a festival to go to and maybe a picnic on the beach if the weather permits.
I am a bit sore from the rads it looks like someone has ironed my right boob. No sign of eye lashes or eyebrows yet :( its now been eight weeks since the last chemo, so we will see, my hair is not too bad, slightly vampire like during the day and Ken Dodd in the morning when I get up, it will thicken up soon I hope!
Wishe you all well x Cassie
Hi Cassie, nice to hear from you. Like your description of your radioed boob, though not good about the soreness. I am also 8 weeks on from chemo with no sign of returning eyebrows or eyelashes.
Rosie, how frustrating about the radiotherapy. Hope your cold gets better soon. Glad the meds for that have helped a bit with the discomfort from the expanders. Would you be able to continue with painkillers afterwards.
Feeling even more knackered this morning. Entirely my own fault. Had two cups of non decaf coffee yesterday then started listening to the radio for the first results of the referendum and didn’t get to sleep until 5, despite a large glass of whiskey. And can’t lie around, going to lunch with son in laws parents so will have to have enough brain cells in operation to maintain a conversation.
Lovely to hear from you cassie,sorry about your ironed boob though, I was warned last week that radiotherapy can make the boob look deformed- it’s never ending isn’t it?! Have a lovely time in Norfolk with your family and I do hope it stays dry and not blowing a gale- thought my wig was going to blow off towards France when we went in august, but it didn’t budge an inch!!
Tij, sounds like a successful shopping trip! I love white stuff and also fat face too! In our market town they are next door to each other and sometimes the temptation is too much!
Joan, hope you managed to enjoy your lunch out!
Rosie, how annoying all this faffing around for appointments- it’s really dragging on now, hope you soon get rid of the cold!
Wildpurl, have a lovely time in snowdon I am so envious!! Will be thinking of you next week hiking up those mountains and enjoying the castles and the fabulous scenery, a very well deserved break for you!
Hope you get an early night after all the packing etc.
Hi Rosie, I have got mine wet in the rain lots of times! It just dries out like your own hair( mine isn’t real hair) . I feel for you having these blooming inflations, they really don’t sound very comfortable at all at least the last one is next week. White stuff and Fat face are clothing shops, selling casual clothes and nice pretty prints, very nice! Can’t believe how quickly the weeks are passing and your daughters visit is not that far away, annoying though radiotherapy will interfere with the visit though. You are getting more energy too by the sound of it, walking further and going into school etc, good on you.
Morning Rosie, I have been awake since 5.00 a.m worrying about my son! Madam flew back last night and now at her parents in surrey- due to return to uni on Tuesday. My son has ordered flowers for her to receive today even tho she has ignored him all week! I am so worried about him, hes gone from a know-it-all, confident young man into a gaunt , very sad one. I hope she gets back on her medication pretty damn quick.
Anyway, I think me and O/H are going to have a difficult weekend with him.
Know what you mean about waiting for a decent time to go to bed with your book! I clock watch from 9.00 p.m !
Yes Fat face is an off name for a clothes shop! Doesn’t sound flattering does it! Am going to try and get some enthusiasm to drive into the city and might look in their shop! Do need some wellies though! Also have heard recommended a shampoo from “lush” that’s supposed to promote hair growth and I definitely need some of that! Will get some if a decent price, but not spending much on it as a bit sceptical!! But really fed up with wig and hats now too.
Hope food shopping day goes ok and not too tiring, maybe some chocolate in the trolley would be in order today, or a nice pudding!!
Hope you get rid of cough and cold soon, maybe ask for some antibiotics for cough? You don’t want a chest infection on top of everything else! Enjoy your day as best as you can. Take care . X
Have a lovely, relaxing, wig free week Wildpurl!
Rosie, yes I have been having a rather large glass of wine each night this week whilst listening to Son saying how devastated he will be if she ends relationship etc, etc! Chocolate is definitely in my purchases today!
Do any of you feel achey now eight weeks on from end of chemo? I am not taking any medication as am not oestrogen positive, but feel almost menopausal again and thought I had done with all that last year! I feel really ancient, sore knees, arms, back and just about everything!
Well off down the road to let my neighbours chickens out! They are away for the weekend and ime lumbered looking after them! The stress is immense as I am worried sick the fox is going to kill them! Letting them out in morning is ok, but shutting them up at dusk is a nightmare trying to count them in the coop, plus there is a blind duck who is very grumpy and won’t go in without a fight! Oh the joy of it all!!
Good day everyone .
Lunch with son in laws parents yesterday went well. Delicious food. They had also made a cake for tea so we didn’t leave till 5 . It was an experiment, an Italian recipe using chestnut flour topped with pine nuts raisins and rosemary which looked fantastic but tasted horrible! Forced down half out of politeness (not something I usually say about cake) then had to give up pleading satiety. I don’t think any of the others enjoyed it either but they managed to finish.
The couple we are go into Barcelona with are coming over this evening so I’m doing tapas. Another trip to Waitrose!
Rosie, what a shame the radiotherapy is likely to cut across your daughters visit. Hope your cough and cold improve soon. Sorry you had such a bad night. It will be good to get the inflationary completed but it sounds really uncomfortable.
Lovewine, sorry you had trouble sleeping too. I hope the weekend isn’t too awful but you are bound to be on tenterhooks wondering what is going to happen. I haven’t been troubled with generalised aches and pains just an achy shoulder on my operation side. But our bodies have been through so much it’s not surorising. I do still have the numbness and my eyes are still watering so I suppose it just takes a while for the side effects to disappear.
Tapas sounds lovely! Enjoy your evening Joan, I think you did very well eating half of the cake- must say the combinations sound rather odd for a cake, am with you Rosie , good trustworthy Victoria sponge, in fact I bought one from marks and spencer earlier ( part funds of sale going to macmillan cancer) and have just had a very large slice with a strong black coffee! Shame on me for not baking it myself but not great at sponge cakes! And couldn’t be bothered either!
Think you are right Rosie about the aches and pains being stress related , the body is continually tense even when asleep so it’s not surprising.
Yes it was very nice! Pity had to share it though!
Morning everyone, hope you get to speak to your dad Rosie, my dad is nearly deaf but hardly turns his hearing aid on, so end up with a sore throat from shouting! You sound like you had a busy day yesterday and a nice meal too- I love seafood it’s my favourite! Especially prawns. Well yesterday started awful with son really in a bad way, G/F back in Surrey Friday evening and he didn’t hear a word until Late afternoon when her expensive bouquet of roses arrived at her door( note the cynicism ! ) and she honoured him via Facebook with a thankyou! He perked up a little for rest of evening as it was a step up on being ignored, he helped me round up chickens and a very cantakorous blind duck last night which kept him busy, he also hoovered and walked the dogs too! Anything to keep him busy I thought! Really hope we get some kind of resolution in the week as he is totally worn down and so are myself and O/H , on another cynical note- she gas gone to London with her mother today to London fashion week, excuse my ignorance but my experience of genuine depression is you wouldn’t be remotely interested in doing this!
Anyway, lots of chores to do today- housework, washing, paying bills etc, etc.
Might sneak in a early evening drink at the pub though and an Indian takeaway!
Have a good day everyone whatever you are doing.
Thanks Rosie! She is back in Leicestershire next week at some point! Due to move into her student house, with the plan of moving in together next year- will see what happens! Must say if they do do stay together I am going to find it very difficult to be nice to her!!
Yes more waiting Rosie! Managed a glass of wine at the pub and now waiting the arrival of tandoori chicken from takeaway!
Hope you had a nice day and you are feeling a little better now? Hope you had some nice chats with your family and your dad is ok ?
Seems a bit quiet on today on here, so hope you are all doing nice things!
Morning Rosie and everyone! It’s quite a chilly morning here and have put my heating on for an hour ! So you have your fans on and me my radiators!! I hope your dad settles down a bit, it’s important for them isn’t it to be in their own home if possible. .you must be very worried about him. Not surprising that our age group is called " the sandwich generation " in terms of we are in the middle of worrying about elderly parents and also problems with grown up children! Seems like you and I have had these over the weekend! Am not surprised you are fed up with waking up feeling uncomfortable either, hope you get some relief at some point today!
Jackie, I too have been thinking of you over the weekend and hope this week brings better news for you.
Wildpurl, hope you are having a lovely time!
Joan, hope all Is well with you? Lisa, hope work is going well!
Tij, cassie and everyone have a good day too, cassie hope Norfolk was nice and you spent some good time with your family!
Morning everyone, thought I’d say hello. Hoping you are all doing fine. Lovewine it must be frustrating to see your son down in the dumps, you can only be there for him when it’s needed I suppose … I would be very tempted to interfere but I don’t suppose he’d thank you … I’d have made a rubbish parent if id have had children lol !
Rosie - glad to hear you are nearly inflated, it has been a long time but it sounds as though you are getting there, sorry you aren’t feeling great this morning, it’s definitely one thing after another sometimes which is very frustrating but you will get there …have you got a date to start radiotherapy ?
Wildpurl I imagine you are somewhere in snowdonia by now, wishing you a fantastic holiday.
Work is good, a bit weird but it’s nice to feel normal again although I won’t be full time until after half term so just got 3 half days this week, am trying to be sensible about it. I’ve just returned from a weekend in London which was fab, was lucky enough to have tickets to matilda the musical and wolf hall ( not musical but good all the same ) am now trying to tame my hair before work later. Lovewine I’ve been using a lush shampoo bar called new hair, don’t know whether it works or not but my hair is definitely growing quite quick, think I need a hair appt to see what can be done with it as it’s starting to look ridiculous lol how typical that I spend all this time not being at all bothered by being bald and now a bit of growth is stressing me out !!!
Well that’s it for now, hope everyone else is doing well and getting on with their days, have a good one all.
Lisa
Hi Lisa, funnily enough I was looking at lush shampoo online yesterday and wondered if worth buying some, think I might do now! Sounds like you had a lovely weekend, it’s so nice to get out and about and do normal things, well done you!
Rosie, sounds like an interesting day listening to the fan man and tales of corruption! I am still using the same shampoo too that I started in February! Have noticed some signs of life in eyebrows and leg hair!
Have been quite busy at work today, but i am being strict with myself in limiting my hours and never working past 5.00 p.m, pre cancer days I used to work until late evening some days, I now realise I was working much too hard, but when you are self employed it’s so easy just to keep doing it!!
Hello ladies,
Just a a quick hello day 12 post chemo 5 fewer SE’s than last time but still got horrible mouth dont know why I find it so hard to tolerate certainly not worst thing to have but it really bugs me. Hair had a bit of a fallout flurry too nowhere near as drastic as with the FEC but has made me feel like I am almost bald on very top of my head with a comb-over. Weirdly one of my friends said to me I must be delighted at how much hair I have at this stage of my treatment ! It looks ok from the back then again so does the rest of me !
Got enough energy to brave Smyths toy store sale today got very excited when I found some “Peter Rabbit” figures my little boy loves the animation on tv and re-enacts the stories so our downstairs loo is now Mr Tod’s lair where he cooks bothersome bunnies in my vegetable steamer. He will love having the figures to play with, his birthday is 2 weeks tomorrow, he will be 3. He told me tonight at bedtime I am his best friend I love him so much it hurts. Hope the chemo has seen off this horrible disease I have to be here for my baby.
Lovewine very jealous of your wine and curry (though mine would have to be veggie) I cant wait to enjoy foodand wine again.Re your son, s girlfriend she doesn’t sound depressed rather more like someone who wants to break up but ddoesn’t have the decency to be honest about it. Could be doing the girl a disservice but time will tell. Your son needs to know where he stands so he can start to deal with it but if she won’t even talk to him and uses Facebook to thank him for the flowers the poor lad mustnt know what to think. Hope he gets some answers soon.
Rosie don’t know how you cope with those awful tissue expanders they seem to do everything very fast in Cyprus I thought the point of the expanders was to slowly stretch the skin over time so implants can then be fitted so inflating yours every couple of weeks must be putting tremendous pressure on you, like Wildpurl was saying hers were inflated every few months. Hope you get some relief soon at least the weather will be getting more bearable some time soon. Hope being back home gives your dad enough of a lift that he feels stronger soon.
Lisa you’re obviously happy to be back at work , getting back to a bit of normal. Hope your workplace is more considerate than mine and let you take it slowly.
Looks like Wildpurl got lucky with the weather should be a lovely holiday.
Really need to go and get some sleep, apologies for not mentioning everyone but I am such a slow typer would be up all night doing it properly xx
Morning everyone, sorry my whole post has been lost! Catch up later, hope you get sorted with rash Rosie, be thinking of you.
Wildpurl, what an achievement to climb snowdon only a couple of months after chemo! Most people couldn’t do it at all, well done you. Enjoy your trip to a castle, I like Harlech castle and Harlech beach, hope the weather stays good for rest of week for you.
Rosie, at least nothing sinister, I did wonder when reading your post earlier that it may be shingles! It just seems one thing after another doesn’t it!
Tulamo, glad your side effects are not as bad this time, how sweet your little boys words to you- the best years are between 3 years and about 6, before they start to become cheeky! It doesn’t seem long ago my 2 sons were that age!
Well I had a very eventful day- just at the door leaving for work at 9.30 this morning and postman delivered a letter which I always spot a mile off as a " hospital letter " I expected it to be an appt for a couple of weeks time for either radiotherapy planning or herceptin and lo and behold it was a radiotherapy planning appointment for 9.20 on 23rd September-today!, so I had already missed it! I rang hospital and they said if I could come in straight away they could do C.T scan , tattoo and planning, well it was chaos but managed it! And I didn’t even have time to fret! Saw oncologist too who was pleased and said when did I want to start herceptin, I said as quick as possible so first loading dose next Friday 3rd October, radiotherapy for 15 sessions starts Tuesday 7th October! So feeling quite unsettled now I am home and drawn breath! Think it’s the speed of everything today!