Well done indeed to them cassie, I have some friends who also did the walk, let’s hope in years to come there will be a cure for this awful disease.
Rosie, your food sounds very nice and the cake too, enjoy the day today whatever you are planning?!
Have a good Sunday everyone, Wildpurl, hope your cottage had a washing machine otherwise I can guess what you will be doing today!
Wildpurl, our posts clashed, good luck with the washing!!!
Hi All,
My daughter is now tucked up in bed, she could hardly walk up the stairs ahh…
Evening everyone, well we did a six mile walk today and am now very stiff legged! But quite pleased with myself. Son came with us as he is still very, very down, girlfriend situation not much better, he spent the day with her, spending more money on her for meals out, cinema etc and she wouldn’t even let him kiss her or meet her new house mates- it really doesn’t bode well does it, son can see all this for himself, but can’t break away and is clinging on to whatever she chooses to throw his way, it’s very one sided, I feel utterly helpless.
Lisa, would love to meet up again, I have to work Tuesday, if I have an easy work load( will know Monday evening!) I can meet you at wistow Tuesday afternoon, if not then certainly another day, like you said, not sure how I ever had time to work full time hours either with all the socialising!
Rosie, sounds a lovely day! Yes you are right I would definitely loved famagusta and all the history, my aunt lived there years ago, I think it was after they were posted there when my uncle was in the R.A.F , yes I too miss my dogs when go away!
Wildpurl, hope you have caught up with all your laundry, certainly been a good day for drying, it’s been like a July day here! Apparently we are supposed to be having nice weather throughout October, that would be lovely.
Just got back from a lovely day in Oxford. Unfortunately our friends couldn’t make it at the last minute but probably just as well because I hadn’t checked out exactly what the exhibition was about. It turned out to be about the discovery of Tutankamums tomb and the process of recording rather than much about the tomb itself and although the artefacts on display were interesting there weren’t many of them. We were Ok with that because we were lucky enough to go to Egypt a few years ago and were able to dead our eyes on the treasures into the Cairo museum but I think our friends might have been disappointed.
Wildpurl, the British museum is my favourite place in London. I always tried to fit in a visit whenever I was up there for work. Another good place for Egyptian stuff is the Finders Petrie museum at UCL. Chaotically organised but some wonderful stuff. Glad you had such a lovely holiday. Commiserations about the washing. Perhaps thinking about your next getaway will help to make you feel better about this one being over. Seven finger nails gone now. Only three more to go. Im resigned to them all going now, just hoping that all the toe nails don’t fall off as well.
Lovewine. Well done you for managing your 6 mile walk. It’s good that your son felt up to tackling it; when you’re down exercise can be the last thing you feel up to. We’d probably all like to give this girl a good shake.
Lisa, glad work has gone well. I know what you mean about work interfering with social life. One of the few good things about all this has been the opportunity/necessity to do things and see people that normally take a back seat when you’re working.
Cassie, what a wonderful thing your daughter and nephew have done. It must have been very moving to see all those people taking part. Hope you enjoyed your food fair and whatever you brought home.
Rosie, your meal sounds delicious. Glad you managed a bit of walking. Hope you manage to get a better nights sleep tonight. How near are you to the RAF bases that will be used for the attacks on ISIS? Will you be able to hear them taking off? It is such a worrying development and one wonders what the repercussions will be on the countries taking part.
Jackie, thinking of you.
Joan, sounds like a lovely day in oxford- it’s most definitely one of my most favourite places, last year we went around Christchurch college and the church and it’s fascinating, plus I love " Lewis", and also " endeavour, so enjoy going in the " turf tavern" boddlian library etc !! And if course we always have a drink in the " eagle and child" and imagine the meetings Tolkien, Lewis etc had! I particularly enjoy people watching and eavesdropping on the oxford dons !
I also love the British museum, last year we all went to see the Pompeii exhibition there and it was really interesting, also love the Egyptology section too, Wildpurl, by coincidence my son downloaded Herodotus onto my kindle a couple of days ago as a recommendation, so will begin it soon. I also love the imperial war museum, would very much like to see the latest exhibition on the First World War, last time we visited we went into the holocaust exhibition and I was absolutely horrified and apalled at the cabinet containing the shoes of the victims and all the photographs etc, it really brought it home hard how truly horrific this time in history was and have found it hard to get it out of my head since. I followed a car with a sticker on back which read- " the more people I meet , the more I love my dog!" I think I agree sometimes!
Hi Ladies,
I had a lovely walk in the park this morning in the gorgeous sunshine we are having at the moment, best to make the most of it while we can, I meet up with a work friend who has a little dog very cute.
My daughter immerged from bed at about 5ish this afternoon so I made her some well derseved dinner after her Shine Night walk of 26.2 miles, she has one large blister and some aches and pains but its to be expected, none of her group had any training or preperation, I did warn them. I am told the atmosphere was electric all the scientists from the Cancer research building came out in thier lab coats to cheer them on at 2am and they had set up a projector with a link to their twitter account with all the comments about the fund raising also the channel 4 building had some cheery signs up wishing all the walkers well. I will be great to see how much all these lovely people have managed to raise, my daughter surpassed her target and may well double it yet as some are not keen to donate on line. Wish you all well, should get off to bed soon as at work in the morning.
Morning everyone, cassie your daughter did so well, good on her and all the others who did the walk!
Rosie, yes I am hoping son starts to see sense soon, for his own sanity if nothing else, he is so worn down with it all now. She won’t discuss anything of any importance and think my son is very reluctant to push her in case he forces her into a corner and she dumps him, she definitely is calling all the shots in this very one sided " relationship". How are you today? Hope a little more comfortable!
Wildpurl, bet you have post holiday blues today, good luck back in the daily grind!
Happy Monday to everyone!
Jackie am thinking of you.
Hi Lisa, many apologies have to work most of tomorrow ready to catch up with herceptin jab on Thursday! Will definitely meet up at some point soon! Hope your job is going ok and you are settling in well back to some routine now, catch up soon!
Rosie, how annoying about the car, supposed looking on bright side it could have happened on the way there, hope it’s not too disastrous news from the garage, cars are a costly business!
I think you are right in saying you won’t feel properly comfortable until you get the implants in.
Wildpurl, hope you had a good day at work
Joan, how annoying about fingernails, just shows we get side effects from chemo all these weeks later.
Well I have had a very busy work day today, took jeggings back by the way and gone for a compromise and trying skinny jeans instead which I seem to be getting on with so far!
Hi guys,
Gearing up for my final chemo on Thursday, my little boy has started with a cold so praying I can avoid it couldn’t bear to get delayed at final hurdle.
Rosie after all you’re going through now the car breaks down wouldn’t blame you if you did a Basil Fawlty and beat it up with a tree. Hope you get some relief from the dreadful expanders soon.
Cassie your daughters effort is pretty stunning 26 miles is a very long walk. I always feel very humbled these days when I hear of people fundraising for cancer research etc as it feels very personal now. My mum and sister both did walks over the summer I was very proud of my mum she did two miles aged 86 and having had a knee replacement in 2007.
Lovewine hope your son is able to take the step of walking away from this girl. I remember having my heart broken back in my 20’s felt like the world would end but at least you csn start healing , thats why I hate it when people dont have the decency to be truthful and string others along it is cruel.
Joan sorry to hear about your nails hope the last three hang on in there. The afro sounds extreme funny how these things must play on our minds and come out super weird in our dreams.
Wildpurl looks like you picked the right week for your holiday as weather up here in north west due to get wet and windy not so great for climbing up Snowdon!
Jackie its tough being so far from family I am in same situation. It must have been frightening hearing the path results but hopefully the chemo did its job by stopping the nasty little blighters in their tracks so surgery could then get them all out. Are you to have radiotherapy too ?
Lisa you seem to be taking your return to work in your stride a bit scary that primary school kids are messing with fire alarms I wouldnt have dared do something like that when I was at school what are the parents reactions ?
I’ve not even started on the steroids yet and can’t sleep so annoying as I feel so tired. My mouth felt reasonably ok today for first time just as due back for next treatment. Think am going to try sucking ice lollies this time have resisted to date as with cold cap on last thing I fancy is an ice lolly but if it could reduce the severity of the yukkiness or shortened the time it affects me it would be worth it for the last cycle.
Hoping to get back on my horse in a couple of weeks time really looking forward to it but doubt “Mr Ed” will share my enthusiasm. He is however a gentleman and usually looks after me, we will be taking things pretty slowly at first.
Must say goodnight everyone and take care xxx
Morning ladies! Hope the car isn’t going to be an expensive, long job Rosie! Are you going into school this week? It’s not too long now until your daughter visits is it! How quickly the weeks fly past.
Tulamo, all the very best for your last chemo and I do hope you do not catch your little boys cold, what is the next step after chemo in treatment? Hope you get back soon to your riding, did you manage to ride at all during chemo? Well done if you did!!
Wildpurl, hope you have eased in slowly back to reality !
Lisa, cassie, Joan have good day, Jackie hope you are ok?
Tij, hope too you had a lovely weekend with your son, sad to see him go off again though, but great that he settled in well.
Everyone you that I missed hope all is well.
Morning all, back to full on work yesterday, still adjusting! The good news is that my boss has agreed to my reduced hours, which will hopefully kick in at the start of November.
Sorry to hear about your car Rosie, hope it can be fixed as it sounds like a real workhorse! Also sorry you are still in so much discomfort and hoping that things do improve.
Lovewine, how difficult for you to see your son so unhappy, but I daresay he will reach the right decision in his own time, it sounds like he is aware of the situation but still in denial if that makes sense.
Tulamo, totally understand about not wanting anything to delay the final chemo. I was paranoid! I think you will be OK though. Will be thinking of you.
Thinking of you too, Jackie
Hi ladies
Hope everyone is feeling ok and not on the grumpy step.
I’m in the middle of a week of hospital visits. I saw the oncologist yesterday, the surgeon today and will be going back for herceptin injection tomorrow. Everything seems to be going to plan so far and now have a date in November for the removal of my implant port. The surgeon and oncologist can’t decide how to manage my follow up. Oncologist offered me a CT scan of chest, abdomen and pelvis in 6 months time. The surgeon felt that was not necessary and suggested a breast MRI instead. Curious to know what regime everyone else has been offered.
I had a good trip to the UK with DS2 and then we returned home to a lovely weekend with DS1. He has now returned to the UK and won’t be back home now until half term. It felt very funny leaving him at the airport to get on a plane without us. He was completely knackered when he got home on Friday, so hopefully we managed to recharge his batteries over the weekend enough to keep him going for the next few weeks.
Hope the car is fixed Rosie. Lovewine, I hope your son’s troubles resolve, sometimes the thought of the breakup is worse than the reality.
At last something that isn’t as expensive as you think Rosie! Still could do without it though. How nice to find someone local you can meet up with who has been through the same thing and with the problems with expanders too, I am sure it will be a big help to you to hear her experiences. I have horrible brown nails too, they have all got deep ridges in them too, even with nail polish on they look awful.
Tij, I have my first herceptin on Thursday! Have to see oncologist just before my second injection too and then I think every 3 months! Not sure what follow up care is offered here, havnt heard anything about scans yet! Hope your injection goes ok without side effects, I have to stay in for 2 hours after it, what about you?
Lovewine, I’m on my 6th herceptin injection. My injections are in my thigh. The first time I had to wait 6 hours on the oncology unit in case of an allergic reaction, the second time 3 hours and now just half an hour. I have mine once every 3 weeks and a heart scan once every 3 months.
I seem to wake up early too Rosie! I read for a while in bed and drink coffee but can’t get to sleep again! Very annoying. I think here herceptin was given intravenously until recently and now as Tij says it’s in the thigh, I know compared to out other things it’s not too bad- but now fretting about going tomorrow and hope I don’t have an allergic reaction!
On a lighter note, we have been invited Friday evening to have a meal in local restaurant with about 10 family members ( some I havnt seen since sons wedding last September!) , 2 aunts in particular are very emotional and found my diagnosis very hard to deal with- not been a barrel of laughs for me either really!!! O/H really hopes they don’t start crying which I have to agree- I banned all crying right at the beginning from mum, sister etc- I told them if ime not bawling then I don’t expect you lot to be either!! Of course I do in private and know they do, anyway need waterproof mascara just in case and have nothing to wear!!!
Lovewine, don’t worry about an allergic reaction. The nurse told me she had never seen anyone react to it and you only had to stay for along time for the first injection to comply with the new licsencing agreement as it was a realitively new way to administer the drug
Yes Rosie, exactly what I was thinking too!! My appointment is 12.00 tomorrow, so thought before I go into hospital I might detour to local shopping centre and find something to wear!!
Still ongoing problems with son, he is now very sad and mourning the relationship they had instead of the one sided , cruel one that’s he’s got now, she’s now announced she is going travelling after uni next year- no mention of him going too!
Thanks for the reassurance tij, hope yours goes ok today too!! I always fret at something new and of course hospitals!!!
Hi Rosie, no it’s just the older members of family going- mum, dad me /O/H ,sister , brother in law and elderly aunts!! Think it would depress him even more surrounded by the elderly, crying aunts!! Yes I am trying to get him excited about Rome, but he’s not getting enthused as yet, he leaves on 30th of October, so not sure what will happen in the meantime! I have ordered a dress in the sale from marks and spencer to arrive Friday morning so hoping it will look ok, still may have a look around shops though tomorrow before hospital appointment!