Good news, start thursday, wound healed… 6 rounds of Tac not Tax which I think is a bit unusual?? Been round the chemo suite and looks ok. I have been sent home with steroids for tomorrow but cant remember the times she said to take them 
Hi Everyone!
I’m a newbie to the forums. I start my chemo tomorrow morning, can’t wait to get the first session over with tbh.
I was just wondering if any of you who have already started or have been through chemo previously have any tips for what to take with me, apart from reading materials, etc.?
I’ll be trying the cold cap just to see if it works for me and I’ve already been told that they will supply the conditioner and towels, but I wondered if a little fleecy jacket or cardigan might be needed if i start to feel cold with the icy cap on my head.
Any little tips or experiences you can relate would be very much appreciated!
Thank you! : )
All the best songbird they put the drip Canucks in my hand first one and I have small veins so they had me in hot water for a bit oligarch your similar a hot water bottle might help.
Take someone with you is my best advice Also you get given anti nausea drugs but I got horrible constipation so I’d ask for a prescription toe that.
All the best any questions issues just post.
I’m getting a picc line in tomorrow and no 2 is on Tuesday and day 15 I feel really good. All the best
Wildpurl. Glad the lgfb went well and good advice I’m on one 29th.
Day 15 hair is still there but funny ok weird losing ah hum pubic hair ! On a headstrong course on Thursday and collect my wig tomorrow fingers crossed it’s ok
Loulou hope you feel better soon. Kirstie glad your out of hospital.
Love to all
Thanks Jo x
Hi guys, songbird66 - I have my first treatment tomorrow, and I am going to give the cold cap a go aswell, I am not nervous at the moment just apprehensive of the unknown! Good luck hope it all goes well for you xx
wildpurl - I went to a look good feel better course today aswell, I know I don’t start treatment till tomorrow but I wanted to fill my day and have a little pamper session before it all starts, I really enjoyed it and would recommend it to anyone if they have the chance 
I bet you are glad you are home now kirstie it must feel like such a relief, fingers crossed everything runs as smoothly as it can for you now.
Thanks suzie68, in regards to telling children, I think it all depends on each individual child. I was very honest with my 8 year old son, once I knew what surgery and treatment I was having. I may aswell had told him I had a cold it bothered him that much, he just asked if I was going to die and I said ‘no’ after that he was fine. I do make sure I explain everything to him though like what my pic line is for and so on. In fact it was easier telling him than the adults lol.
Anyways sorry if I have let anyone out, I hope you are all feeling good.
Keep smiling xxxx
Morning ladies quick hair update, fec day 15 for me and think fair has started to go, lost quite a bit in the shower and even more while drying it while just using fingers, think bad hair days have just taken on a whole new meaning. Onwards and upwards xxx
Hi Joan I have young grandchildren am staying with 2 of them at the moment. Hope this finds everyone well.
Made the flight to uk! Legs felt a bit wobbly. My hair has started to fall out the shower base looked like we had bathed the dog. I bought my wig with me may need it before the week is finished!Thank goodness nausea is. finished!X
So I have now officially started treatment, was no where near as bad as I thought it would be. Ice cap was ok not too unbearable. I am having tc, one is a drip other syringe, whatever the syringe was made my nose feel like it was going to explode and running like mad ! The rest was fine, ice cap does mean you are there a lot longer started at 8.30 finished at 1pm, but hopefully it is going to help hair loss. I feel fine for now so hungry though apparently that is the steroids. Hope everyone else is having a good day xxxx
Well done Ashley the first one means one more closer to completing chemo
Full day at hospital today bloods picc line wig and oncologist all go for no 2 on Tuesday.
Re picc line any advice re showering is the waterproof sleeve worth it or suggestions. Re day use seems I need some kind of sleeve cover. Any advice appreciated
Day 16 and my hair is slowly coming out 2 to 3 strands at a time my wig is quite wiggy so will look to thin out.
Best to all
Loulou did not see your post when I was writing all the best for tomorrow be thinking of you
Kirstie agree re hair loss mine is slowly starting to shred and that has been the bit I have struggled with more. All the best
Hey all,
Glad you’ve had a good start Ashley 97! Make sure you do eat as you may not feel like it in a few hours!:(. Hope yours has gone well too songbird66.
Good luck for tomorrow loulou1262!
Jackie09 - hoping the worst bit is over for you now & beginning to feel normal again?!
Rosie14 glad the flight went well & nausea over - that’s the worst bit ever isn’t it?! Now you can enjoy you’re grandchildren:). My hair started falling out yesterday (day12) so getting it shaved off tomorrow.
So glad you’re home & well kirstie77! & yes its weird how when you feel better its like the best you’ve ever felt in your whole life! Hope you manage to find a wig you like. Mine still not arrived so will be wearing hats as of tomorrow.
Wildpurl - those lgfb courses sound so good! I really want to try & go to one even though quite far away from me! Sounds like it would be worth it! Hope works going OK
Hope you enjoy you’re busy day tomorrow books and wine:)
Hope you’re grandchildren don’t wear you out too much tomorrow night suzie68!
Hope you’re mums getting on OK bumblegirl? Has she rang the bcc helpline?
I had my Hickman line put in yesterday. Hubby’s just bought a picnic basket with all the plates etc so hopefully use that this wkend:) reminds me of Mr bean!
xxxx
Lou-lou, they told me with breakfast and lunch but no later otherwise I’d be up all night (which I was anyway so presumably if I’d taken them later I’d have been out dancing.
Kirstie; you must be so relieved to be home. Let’s hope next round is problem-free - well apart from the unavoidable side effects. It’s good to know that your clot cleared with medication. I’m keeping my fingers crossed.
Joan
Me again, just wondering if anyone else is having TC or no anyone that has had it ? As I really don’t know what to expect hairloss wise, I know everybody is different but I really would like an idea of what and when to expect it, I have bought the organic shampoo and ordered 2 cotton hats just in case but you really could spend a fortune without needing to. FEC seems to be the most common treatment ? Xx
Good luck tomorrow loulou and I hope the rest of you that started this week are feeling ok.
Hair coming out thick and fast now and just need to get through day at work tomorrow and night with the grandsons and then it’s coming off over the weekend but I will have a glass or two of bubbles to say goodbye to it. I think there may well be a tear or two (they will be my first since diagnosis in jan) and then it will be onwards and upwards to FEC 2 next week. Stay strong ladies and I hope you all have an enjoyable and relaxing eater weekend sxx
Goodmorning all sorry can’t make individual comments on my phone eyes too tired ! To all those having chemo this week hope all goes well. Am so glad to read Kitstie is home i am sure the next round will be better. I am having tac hairloss happening big time week 3 but I have had 2 rounds! Feeling. cold in England having to wear warm clothes !x
Ashley not sure what you mean by tc so can’t comment I’m starting to shred but still look like me hair wise and I’m on day 17. I’m on fec at moment next will be tec? So many anagrams
I’m off to a headstrong course will let you know what it’s like
Susie great idea re wine and hair think by this weekend I will bight the bullet have wig while it needs thinning will be good to have on hand
Joan thanks re sleave advice just got one from boots this am my partner wrapped me in clung film for a shower quite funny nB Medical things by one get one half price still got to live a barfin. Re the comments i think we are all amazing ladies in our own right and love reading how we are all dealing with this esp as for many it’s a huge change in a very short space of time and I love all the personalities that start to come through I also need the forum as while my partner is amazing it’s really pretty much him and I in the country as all our family and most friends are overseas. I was only diagnosed in feb and initially like bumbles mum I did not want to look at any forums or deal with any part. I was to have had surgery first and naively thought no chemo so getting on this thread and sharing fear fun ideas and support and thanks for the support back has really helped. I am less freaked re hairloss now than I was even a week ago. It’s a journey that oddly neigh at the end I may even feel greatful to be on
Wishing all of you the best for easter
Rosie you rock flying to the uk go girl.
Hi everybody, hope you are all enjoying the sunshine. I’ve just dragged my boys on a walk on the beach. They’re like taking dogs for a walk, you have to give them treats if they cooperate. I bribed them with a burger and ice cream from the beachside burger van.
I’m day 14 and soooo bored. I think I need something like some sewing to keep me occupied during my immunosuppressed phase. Can’t wait to get out and about again. However, in the scheme of things, if that is all I can complain about then things are really not too bad. I only hope I am not speaking too soon.
Seeing onc on Tuesday for bloods and discuss how I got on this time. Hoping they will have sorted the anti emetics for my next cycle on the 25th.
Hope everybody has a lovely Easter. Keep well
Hey all, had my hair shaved off today and it was fine. My best friend held my hand & we had a right giggle. If we had been at home & not driving we may have had a drink like Suzie68 is planning! So hat & a little scarf around to accessorise looks fine until my wigs all turn up & u may only wear it when I get dressed up for going out anyway. My little girl hasn’t even batted an eye lid! Sounds like we’re all doing well & ready for round 2! Hope ashley97 & loulou1262 doing well after today xxx
Hi everyone
Just popped in to let you know all went ok yesterday, very tired in afternoon but steroids kept me awake until 8pm. I went to bed and only woke the once. Face is very flushed and had a severe hot flush in the night. This morning a few stabbing pains in random places but not been sick yet…although I feel queasy. Hope everyone else is ok and ill be back on later xxxxxxx