Recently diagnosed and had mx but each time I go and see the consultant the news gets worse and I fall apart for a day or so and then get my head around it and think, yes, I CAN deal with this. The latest thing is that 12 nodes affected and consultant just casually threw into conversation (hardly a conversation really - he just talks ‘at me’) that I’ll need CAT and bone scans before other treatments start. He did say he’s not really expecting to find anything and he is still treating it as curative but what I need to know is, is this just procedure? Has anyone else been sent for these scans and have they come back clear? From looking at this message board, treatments seem so different in different parts of the country. I am so scared. I try to keep positive (I hate that word, now - it’s been rammed down my throat so much just lately)and I am up-beat most of the time, but it’s times like this at 3am when I can’t sleep that I think the worst.
Sorry you have to read this rant ladies but I think many of you will understand xxx
Hi yes I have had ct scan and bone scan when was dx with prim mine come back clear I had no nodes involved try not to worry my onc does them as norm practice the nights are hard we have all been there best of luck try not to worry it will be fine xx
Hi CG it is horrible when you cannot sleep and these worries go round in your head in the middle of the night - bbut to reasure you, I think it is quite common to have these scans before chemo, especiay if you have nodes affected. I had the scans and they came back clear - although I was scared like you when told I needed it and worried until I had the results, afterwards I was glad that I knew everthing was ok if that makes sense! Sorry not had much sleep tonight!
Hi CG
I think this must be quite normal. I had a lumpectomy and 11 cancerous nodes. I have been sent for CT scan, bone scan, MUGA scan.
They all came back clear. Am today having 2nd FEC.
It does seem that different hospitals are slightly different. Try not to worry, I know thats easy to say, and in the early hours it all seems worse. Let us know how you get on.
Sending you HUGS
PoodlePatch, ProjectWoman and Laura64 - thank you so much for what you’ve told me. That’s exactly what I needed to hear. Its wonderful that we’ve got this site to get in touch with each other because although I’ve got friends and family around there’s just some things they can’t help me with. How did people cope with this years ago I wonder?
Hope you all have a good day, today. Love CG xxx
Hi CG
It’s normal to have scans if your nodes are involved, I had 7/14 positive and therefore was sent for CT scan and bone scan before I started Chemo. It is worrying as I remember being really scared of these tests and I spent a week not sleeping awaiting for the results.
Luckily they all came back clear (apart from a cyst on my liver) and was therefore able to start treatments immediately.
I finished all my treatments in March and I am now back to normality and awaiting for reconstruction.
TC Debs
Hi lazycat/Debs,
Thanks for getting back to me it really makes all the difference because I know you people really understand. It’s great to know that people do get through this and come out the other end.
Good luck with your reconstruction xxx
Hi Curlyglad,
Of course we understand.
I remember the time when my surgeon seemed to give me another piece of bad news everytime I saw him. It does terrible things to your head but somehow you get through it and your brain copes (with or without outside help).
I had 21 nodes involved and had CT scan of lungs and liver and whole body bone scan before starting chemo. They were clear.
I’ve just finished chemo & rads.
It was all much more ‘do-able’ than I thought it would be.
Best wishes and keep posting,
Kate x
hi CG yes i had a ct scan before treatment and after mx i too had node involvment, i was told it gives them a baseline to work from for future scans and is normal to have one xxx
Hi Kate and fairyqueen, thank you both. You’ve all lifted up my spirits again.
Have a good evening everyone xxx
Hi Hope 4444,
Really glad to hear you’ve finished chemo.
Hope this is the first step to wellness for you.
Dotty2xx
Hello Dotty2,
How lovely to hear from you!
You helped me so much when I was first diagnosed and I am now trying to do the same for others.
I’m just waiting for a bone scan result for a niggly pain in my hip and then hopefully I will be able to look to the future with hope.
How are you? I really hope you are doing well. Your posts always lift my spirits so much.
Thank you with all my heart.
Kate x
Hi, it really is quite normal to be sent for these scans, I have had BC twice under age of 40, and have severe arthritis so every little pain was a worry. They have always performed CT, and bone scans so it really is part of the course, but I realise it can be different depending upon where you live. Hope all goes well x
Hi Hope 4444,
Really hope that the bone scan results are clear, the pain could be anything. We still have the same aches and pains we always had before this horrible journey.
I doing well thank you. I know life will never be the same again, but it can still be good.
Let us know how you get on, and sending postive vibes to you.
Dotty2 xx (Christine)