Jacquie
Thats great! Glad you decided to come, will really look forward to seeing you there …sure that your family will be OK with that.
I am really worried about Allie as well. I saw Dawns post earlier that she was planning to mail her.
love to all
cathy
Hi everyone
Jacquie am glad that you can make next Thursday. Looking forward to seeing everyone again, and meeting the “newbies” that are coming along. LOL
I sent Allie an email yesterday think it was or might have been Thursday night actually, but not heard back from her. Am very worried, as normally she would reply or have posted and I can’t see any recent postings, Did any of us get her number when we met up, I didn’t and am gonna check my emails, but don’t think I have it.
Well ladies, hope you are ready for Thurs. Got my pics all sorted and printed, well only printed about 250 general pics and 100 pics of Sophies bippidy boppidy bo day. But need another album. Are you sure you want me to bring them along???
Hope you are all doing well this weekend, although weather pants here. Wishing I was back in Florida and now needing to focus on booking another one. Felt a little out of sorts last couple of days, bit of a headache, kids annoying me and tired probably everything catching up with me, mixed with the herceptin, Hopefully give myself a kick up the a**e and start to feel my normal self again.
Speak to you all later
Dawn
xx
hi well i am all set for thursday , really looking forward to it . hubby is sorting out my route , i fly to gatwick , gedt the express to victoria and thats all i know so far .lol .
Having a few red wines tonight but feel guilty as i was looking on the US site and it said alcohol is no good if ER POS . oh well i am sick of all the shit we keep being told so i thought i would ignore the latest research .
well hope all is well , dinner time noe , be back later
love Tracy xx
Damn damn damn - I wanted to come to the meet on the 24th and now I have to go to a meeting. I was really looking forward to meeting evryone. Is anyone going to th meeting on th 29th in Cambridge or on the 6th in London?
Barbara
Hi all
Very pleased to hear you will be at the meet, Jacquie, but obviously a shame we won’t get to meet you, Barbara. I’m now back working and have things in my diary for both the 29th and the 6th, so am not planning to be at either of those meets, I’m afraid.
Like you, Dawn, definitely worried now about Allie as it is so unlike her to be quiet for this length of time. Don’t have a number for her at all I’m afraid, so think we just have to wait.
I had a really busy weekend - took youngest back to uni and then went on to Lincs to stay the night with my parents in law. Saw my sisters in law (and their husbands) as well - so it was all go! And a (nearly) full day at work as well today, trying to work out what has happened in my time off.
Looking forward to catching up with everyone on Thursday.
Kay x
Hi All
Just thought would let you know have heard from Allies husband and things, unfortunatly, are not that good. Here is a bit from the email:
Allie has taken a turn for the worse and is going into St David’s hospice tomorrow.
The doctors ran out of options and have ceased treatment as anything they do now will only make matters worse. The secondaries in her brain are making it difficult for her to speak but she is in good spirits and well looked after. Its been a parade of visitors in her hospital room.
I know she derived a lot of support and friendship from messageboards. Please pass along her regards to everyone that knows her.
Obviously am devastated to hear this news, as am sure you all will be too. Have asked Jon about flowers to send Allie or anything else he might prefer, so will keep you posted.
Speak later
Dawn
x
Oh Dawn
I am so sorry to hear this. I had a very bad feeling about Allie when she went quiet as she had been so chatty supportive and helpful on this site. It is very hard to believe this in some way as we saw her relatively recently.
I am thinking of her husband and her family at this time.
love to evreyone else
Cathy
Am so upset about this - as you say, Cathy, it isn’t that long since we saw Allie, and it just doesn’t seem possible/right/real that someone so full of energy and of the joys of life, can be laid low by this awful disease that quickly.
Let us know what Jon says Dawn and we can sort things out on Thursday.
Love to everyone - and lots of hugs
Kay xx
OHH noooooooo i didnt even know allie had brain mets , i feel so so sad , why oh why .
so sorry for allies family .
Tracy.
Me too, so shocked, as she seems to have gone downhill so suddenly. I didn’t realise she had brain mets - is that a recent diagnosis? We haven’t even had our second meet and now she won’t be there - too too soon for this to happen.
I sent Jon an email just sending love in case he can read it to her, and telling her we’ll miss her and be raising a glass to her on Thursday. I agree definitely to send some flowers from us as a group.
I got my results today. If anything my liver tumour’s shrunk another millimetre, and certainly not grown, so Doc very happy to continue with the current regime indefinitely. Gave me a thorough exam to allay all my niggly worries eg lumpy boobs, and all’s fine I’m happy to say. I feel really lucky. Still had to wait two and a half hours for herceptin to arrive from pharmacy (nothing changes!!) but feel lucky to have that at £20,000 a year, today.
love to you all,
Jacquie
Jacquie
I am thrilled for you, what a relief, £20,000 a year is a bargain for this ! glad you had a good visit.
it really highlights how totally unpredicatble this disease is, how quickly this has happened to Allie, and how others have great results from drugs and can maintain it…
Looking forward to our meeting shall I book a table ? Do we have an agreed number?
love
cathy
i will be there .x
Jacquie, I am absolutely delighted for you - think we all need a bit of a lift after the news about Allie. It is such an unpredictable, random disease but it is definitely good to hear that the drugs are working well for you. I have scans/blood tests the end of next week (onc appt the following Fri) so really hope that they will show the drugs are controlling things for me as well… Am finding it all really quite difficult at the moment though and lots of things feel a real mental struggle - think it’s to do with going back to work and this pretence of everything being ok and “normal”.
Thanks for offering to book the table, Cathy - think we are 7 but may well be wrong! I should be there shortly before 11.
And I too am really looking forward to it.
Lots of love to all
Kay xx
Hi All
Jacquie that is fab news for you about your scans, you must be well pleased. Lets hope we get more good news.
I am still coming Thurs, and my train is same as last time, gets to Fenchurch St about 10.35 I think and so will be at Cafe Rouge at 10.50 if can grab a cab easy enough!!!
Sent you emails about flowers for Allie - not sure if you have read them. But suggested £10 each and pay me back thursday. Only included myself, Cathy, Jacquie and Allie. Let me know soon as if this acceptable. Then will organise them.
Hope you all OK after this horrid shock. I had no idea that Allie had brain mets either and think must have come on really quick. Am struggling with it all to be honest today and last night. Very emotional and the old brain thinking what if, and any headaches, or aches etc, am getting all worked up. Know I have to calm down, as at the end of the day, what will be will be …
See you Thurs.
Love
Dawn
xxxx
PS. Tracy hope the flight ontime and OK.
Hi Dawn
Yes of couse thats fine, sent you a mail on your private address. i am afraid I know exactly what you mean, its a combination of utter shock for Allie and her family and a horrible reality check for us, anyway on a lighter note I have just spoken to cafe Rouge and booked a table under my name at 11 AM. So its booked for 7 people on 24th under name of Monroe.
love
cathy
Hiya
Well have ordered flowers, got a basket bouquet and will be delivered tomorrow. They look lovely in the pic. Hopefully bring a smile to Allie’s face and let her know we are thinking about her.
Take care all
Dawn
xx
Thanks for organising this, Dawn. K xx
yes thanks dawn , count me in too . i have had one awful day today cried buckets when i dropped my youngest to school this morning , kept thinking how many more times will i be doing this as each new term starts . my mum is staying with us a t the moment still and i just let rip about this horrid disease.
The shock of allie has really got to me also and she has been on my mind constantly .brain mets are so scary and a thing we all dread .
well will be there thursday , big day out for me , lol.
have had some news about spheres from another hospital i have to send them a disc of my scan ,
see you soon ,
love Tracy xx
everyone still ok with the teachers on strike over there ?
I am still OK, hope everyone else is, although my sons school is basically shut down.