Yeah am OK - John off tomorrow and got the kids - not sure how pleased he is though - reckons I never told him I was going up town. LOL. Bit of bonding time with his children!!! Not all Sophie’s school is shut, but her class is one of the affected ones, so she is not going in tomorrow.
when i arrive at victoria would it be expensive to get a cab to st pauls cathedral ? or if so anyone know which tube i take ?
thanks xx
Hi Tracy
Victoria to St pauls will be about £15.
you can take district line to blackfriars or mansion house and walk from there - but even better- I just looked you can get a train from Gatwick direct to blackfriars ! So that would cut out the changes. Have a look at national rail enquiries if you have internet at home
Blackfriars is 5-10 minutes walk, I used to use that station for work at st pauls,
Cathy
Hi Cathy
You seem to be the font of info, I’m hoping to still come tomorrow, I am getting a tube to St Pauls station how far is Cafe Rouge and which way, as I have painful feet and don’t want to wander off in the wrong direction, do I need to look out for anything in particular.
Thanks alot
Jayne
Hi jayne
I know nothing at all, But I did use to work right next door to this place - so this is how I know it,
if you are standing in front of ST pauls, with the main steps in front of you (where Princess diana went in!!) the resturaunt is on your right, in Condor house, you will be able to see it. So you are 5 minutes away from it from St Pauls station.
Hope that je;[s
Cathy
Hi Cathy
Thank you
See you tomorrow hopefully
Jayne
Great, we are all ready. Looking forward so much to seeing you all tomorrow. Let’s hope the sun shines!
My middle child is off cos of the strike, but old enought to do revision at home. Thankfully the younger one is at school.
See you soon!
love Jacquie
thanks see you tomorrow .plane at 7am , airport at 615 . xx
Hi there,
It’s Ann. Ihave not been on for while as I have been in hospital twice. I got febrile neutropenia after my first chemo. First stay was 5 days and I got discharged. My husband went off for an important meeting in Amsterdam I said go, I will be fine. No sooner was his back was turned my temp climbed again and a friend and my son had to take me down to ER. So I had another 5 days on tramal, anti biotics and fluids. Looked 8 months pregnant complete with pop out navel due to the ascites. Could not even bend down to get my undies on over my feet, what a state. Anyway, back home now and tummy subsiding. Just about feeling like my old self again and felt confident to drive the car again.
My oncologist is so nice, but he is the only one at the American Hospital here in Dubai and so very busy. But he makes time for us all and is just so kind and also tells it straight. I am lucky. I am having a port fitted in my chest after 2nd chemo if I am strong enough. Apparently I was more ill than I knew, my liver was already starting to fail which is why he started the chemo so fast. I have started the fight and feel better I am on the road, so to speak. I wil have 6 rounds of Herceptin,Docetaxel and Cytoxan every 3 weeks, then will continue with maintenance doses of herceptin. I will have 2nd chemo on Wednesday 30th
Still have hair but freaked out 2 days ago when i was just idly fiddling with hair on my nape as I sat in the car and a rather thick hank of it just came out. The first time is just such a shock, isn’t it. But no good sitting and crying, have to deal with it. You girls did and I find you comforting.
Both my children are in uni in UK. I am 55 . I can still remember the stress levels for GCSE’s and A levels. Hang in there, it is tough but at the end of the day they love you for all the stuff you do for them at exam time and just tell you years later how great you were!!!
HI Carolina
Glad you are feeling that you are on the road for treatment, but sorry to hear you have ben in and and out of hospital. ask your doctor if they will give the white blood cell injections, it makes such a difference to blood counts, but it does cause bone aches so beware of that! I went through 6 taxotere with no neutropenia because of these>>but they arent the norm in all hospitals,
I think you will find the port helpful, at our meeting yesterday there were at least 4 of us with ports and we all agreed they were a big help, they have become really small so they aren’t annoying and they take away all the trouble with veins,
Its a shame you are over there - we had a nice meeting yesterday here in london and it was great to meet everyone again and see some new faces,we swapped alot of concerns, information and just general chit chat about non cancer things -I was knackered last night.
take care, love
cathy
Hi Cathy,
Yes, it would be nice to meet some kindred spirits. I am the only one here that has been refered to my oncologist by our lovely breast surgeon specialist here, so that means I am the only one with liver mets in our group. We are called Brest Friends (not allowed to call the group Breast Friends out here!)
He has told me I cannot swim whilst on chemo but I do not know if this will apply when it is just herceptin. Does anybody know , and can you swim with a port anyway?? I do not like swimming that much but it was so good for keeping fit and kept my muscles nice and stretched out after the last surgery and radiation.
They did give me a white blood cell injection the 2nd time I was in the hospital. I woke the next day feeling like a new woman!
Hi Caroline,
Yes, I swim regularly with my port (and Herceptin). I kept swimming through chemo as well. I just avoided grubby school pools during the second week of each round, and went to a posher part of town with a clean new pool. My onc was fine about it but the chemo nurses were a bit twitchy!
It is a shame to hear you are on your own out there, but that’s why this site is so good. You can find other people in exactly the same niche as you.
Need to go to bed - still whacked from last Thursday, and a long day out in London on Saturday…
love Jacquie
Hi Everyone
Well this is a very sad day and I haven’t got much too say at the mo, as no words can say how I feel really. No doubt you will all have seen my post about Allie and I am absolutely gutted and destroyed that she has been taken from us. This disease is so f*****g s**t and knows no boundaries at all. All the lovely innocent people that die from it and like us suffer from it, yet all the awful, bad, dangerous people that walk this earth go scot free. Makes my blood boil and I really wish there was something I could do or say to make myself and everyone feel better.
Hope you all have a lovely weekend, well as good as one as you can.
Take care and thinking of you all.
Lots of Love
Dawn
xxx
Dawn
Hope you are doing OK. Have found this news quite difficult even though I knew she was in the hospice. Its shocking how quickly she was taken from her husband and her family. She was a lovely person, very funny and vey unassuming, obviously full of life and initiative and lots to live for. Its a bastard, Thinking of her husband and her family at this time.
love
Cathy
Hi all
Am also gutted by this news despite knowing she was in the hospice - it seems to have happened so quickly. Just got back from a walk with hubby and had actually been talking and thinking about Allie whilst we were out and then got this news.
My memory of Allie will always be of that wonderfully warm, happy person laughing as she came into the restaurant in January to meet us all. Just relieved to hear that she was still able to laugh and talk upto a few hours before she died.
Kay xx
Hi Dawn
Just wanted to send you a hug, my thoughts are very much the same as yours there are some horrible people who just do horrible things to people that don’t deserve it and we are trying to cope with this … disease life just isn’t fair.
I hope you have been able to enjoy this weekend with your family.
Love Beli x
Hello All
Hope you have enjoyed the bank holiday weekend with your families.
I recovered a bit of my balance after the news about Allie, but I am still very sad about her and how quickly this happened.(and dawn i know exactly what you mean, I struggle with that alot) I managed to do some work in garden and feeling quite reasonable, also seen the in laws who seem determined to pretend there is nothing wrong (or maybe they really are oblivious - it could be as they are tied up with some other family things, really crazy things!!) Hope you all enjoyed the reasonable weather this afternoon.
I have got lots of aches and pains from the arimidex at moment, really in fingers and ankles just as Manon said. It seems to come and go which is a bit of a relief, does anyone else have any tips on this?
Tracy - hope you are doing OK, let us know when you hear back from the spheres man.
Kay -thinking of you getting your results on friday.
love to everyone.
Cathy
hi everyone , sorry havant ben around alot i got in a mess so my hubby packed me and my younger daughter charlotte off to stay on the campsite over here in our motor home with tent attached ,( no internet there ) . iwe have been there since last sat and just popping home to leave the older 2 boys 17 and 18 some shopping etc , so am here now and thught i would log on .
i was so so sad to read about ally, just so unreal this disease is so unpredictable and i am sending love to her family .
i think the stronger anti dep may be kicking in now as i have lifted a little ( or that could just be away frm home )
i think of you all so often and hope you are doing ok esp you kay with your latest tests .
still no word from the spheres guy yet , maybe he is so busy or he is going through them with a fine tooth comb eh ? ummmmmmm. well time will tell .
k better go grab some clean undies etc and back to site . will log in friday to see how things went kay .
love to all Tracy xxxx
hello Tracy
Glad to here you are feeling a little lifted, it could well be just being away from home, but probably a bit of both. i always feel a bit better when I am at work I think because I am rushing around alot,
This was a good idea of your husband to pack you off to a campsite, it sounds like alot of fun, hope you and your daughter have great time
Creaking along here hope everyone is keeping ok.
love
Cathy
Tracy,
Glad to hear you’ve been away with your family - I thought you’d been quiet. Hope the anti-deps are helping, so the improvement continues when you get back home and you keep on the up and up.
Thinking of you too. Is the weather good? we’re having a heatwave and it’s lovely,
lots of love
Jacquie xx