Hi liz
First of all I’m so sorry that you are going through such an awful time. I send you my love and strength to cope and get through. You will cope and you will look back and realise what an amazing person you are.
My siutation with regard to you OH is similar to yours but I don’t have all the other complications you are having to deal with.
It’s a very lonely place to be when there is no support from the person who is supposed to be closest to you. It never occurred to me, when I was dx, that my husband would actively go out of his way not to support me and help where he could.
I’ve been to counselling twice. The first time was with a mental health counsellor who was brilliant. When she told me that the way my husband was treating me was due to nothing I had done and none of the awful treatment was my fault, it was like a huge weight lifted off my shoulders in that moment. I still re-live that moment when I’m feeling a bit down.
The second session of counselling was with a cancer counsellor from my local hospice. She really gave me the determination to deal with my situation and not expect anything from my husband and to detach myself and lead my own life. The result of that is that we now live in the same house but have our own social lives and look after ourselves.
I try to make my life as pleasant as I can for myself. I keep my distance and speak to him pleasantly about everyday things. .
I’m not underhand and am open and truthful about what I’m doing and where I’m going. That’s the way I am and I don’t intend changing my personality. It’s not the way I want it to be but life doesn’t work out the way we want so I do the best I can with what I have.
For me the sessions of couselling were ‘me time’ when I could pour out my inner feelings of disappointment, sadness and betrayal without holding anything back. In fact I had 6 sessions and the last session was the only one when I didn’t cry. The first one I cried for the whole hour but felt much better afterwards.
From each session I went away and thought about what I’d said and what the counsellor had said and tried to work things out in my head, once you’ve spoken your feelings out loud it’s like you’ve sorted them into order, they no longer go round and round in your head and you can deal with them so much better.
I found that weekly sessions were too often for me, I hadn’t sorted all my thoughts from the previous week and so I asked to have a session every 2 weeks.
My advice would be to go for counselling on your own to start with, I think that time for you to freely express exactly how you feel will be a huge benefit. Get everything out and rant as much as your like.
You can always go for sessions with your husband at a later date if that’s what you both want.
Sorry that this is such a long post. I was going to PM you but thought that my experiences may help people in similar situations.
Love to you. Feel free to PM me if you wish.
Love and huge hugs to you,
Jan xxx