Anyone had surgery at East Grinstead?

Has anyone had an LD flap reconstruction at the Queen Victoria Hospital in East Grinstead? I am going to see a PS there shortly, and hopefully surgery some time later.

I’d just be very interested to hear of your experience.

Love
Bubs X

Hi Bubs,

I remember over past few months there have been several ladies who said they were having their surgery at East Grinstead. Tinfish, thetrumumshow and zsazsa and I think jennyg. If you do a search on Grinstead you can read their posts. I live just up the road from East Grinstead and any time if you need someone nearby do contact me.

dawnhc

Hi I am due to go on Monday for my mastectomy and immediate reconstruction at East Grinstead … Mr Nduka is lovely and very highly thought of, so if you are having him (as I am ) you are lucky… or so I have been told. I can let you know in a few days once I have had mine done!!
I am really wary because the hospital is very old and apparently its a centre of excellence for plastic surgery - you would think it was be some flash, glass fronted modern building - but it isnt… in any shape or form!!
I have met with Mr Nduka a few times in the run up to this sugery - he is a gentle and kind man but very professional at the same time - he is clearly very knowledgable about what he does! The breast care nurse was lovely when I was there but no one has called me , as promised, this week to see how I am feeling about the op.
hope this helps - if you need any more info I can try and answer - but I might be able to give you a better overall picture once this 7 hour operation is over with … . . . Im hoping I will be able to tell you it was great and I felt perfectly looked after etc etc
Jenny x

Hello dawnhc and Jenny

Thank you both for your comments.

How did it go, Jenny? Tell us all about it.

I saw Mr Boorman yesterday at East Grinstead - a very lovely man, in whom I have every confidence. They had a slot over Christmas (go in on the 23rd, have the op on the 24th) - some of you may think I am absolutely potty to be in hospital over Christmas - think of all that turkey swimming around in transparent gravy and overcooked sprouts - but I am not much of a Christmas fan, believing that it is now a “festival of greed”, followed sharply by a bout of depression for those who spend money they haven’t got on people they don’t like on things they don’t need! Sorry to sound like that, but I remember when Christmases were simple affairs and not driven by money and commercialism and you saw crib scenes on the high street and on Christmas cards.

I had a query (which I forgot to raise yesterday) and so I rang one of the breast care nurses whose card I was given, and she couldn’t have been more helpful or sympathetic. I think I will enjoy my Christmas there! And of course all my friends and family will be on holiday so there is no problem with transport and I shall have many visitors. And better still an excuse not to do any washing up when I get home (and just in time for the New Year celebrations and I won’t be able to drive either!)

What type of recon did you have, Jenny, by the way?

Love
Bubs X

HI Bubs …
I have a thread on this site entitled ’ mastectomy and immediate recon on 22nd Sept and totally terrified aged 38 ‘’ or some rambling title like that - you can see how I got on if you read through that…
I had a skin sparing tram recon and mastectomy. 11 hours of surgery!!! yes it was horrible but the nurses were absolutely lovely and were SO patient with me and everyone else. I couldnt fault the care I got.
I totally agree with the idea of going in over christmas - you’ll save yourself a fortune !!!
I know someone I got friendly with when I was in hospital there had Mr Boorman and I know he was fantastic - so you are in good hands.
If you want to ask me any more - please dont hesitate

Hi Bubs

Mr. Boorman is fantastic - I have so much confidence in him. Last January I had a mastectomy and a temporary reconstruction that Mr. Boorman carried out for me. It was a tissue expander that gave me shape until we’re ready to do the DIEP flap which I’ll have when I finish my Herceptin treatment.

My temporary reconstruction showed me what a perfectionist Mr. Boorman is - and what a lovely man. He’s a real gem! The Queen Victoria hospital is old but what superb reviews it gets over the important things ie qualitiy of care and treatment. Nothing flashy there but solid care. Suits me.

Christmas treatment sounds ideal - good luck to you!

Gill

Thanks for all your comments. My BCN used the description “perfectionist” when she referred to Mr Boorman so I feel completely confident. (Although I do appreciate that there will be a lot of discomfort afterwards - but as my lovely yoga teacher says “Pain is only temporary, but the glory is forever”)

Any handy hints re the hospital and what to take in etc? (I’ve been in hospital three times now - twice to RSCH in Brighton with neutropenia, and to the Princess Royal in Haywards Heath for the mastectomy, so I have no experience of the Queen Victoria). Apparently they don’t have Patientline TV/phone as they want to encourage you to become mobile and go and watch TV in the day room. Are you allowed to use a mobile phone? And what is the food like?

May be having surgery at Christmas could become a habit - have a different procedure every year, to tweak up whatever needs tweaking up, and by the time you’re 80 you’ll look 60! A pair of perky bazookas for Christmas will sure beat hankies embroidered with my initials, or a pair of slippers, or a pen and propelling pencil set …

Hi, Ive just come out of the princess royal from a masectomy. Dr Boorman also did my reconstruction. Ie had an expander put it. It looks pretty good! I was so scared of the moment I had to look down at the wound when I woke up. I didnt for a few days and when I did I was so pleasently suprised at how good it was. Its still hard dont get me wrong but thats enevitable. I was just so pleased to see how good the wound looked, not half as bad as I thought.

Good luck! Your in great hands!

Thanks, Emelf. Mr Boorman certainly seems to have a lot of fans out there.

Mine is a delayed reconstruction (I had my mastectomy last November, at the Princess Royal like you - aren’t they wonderful nurses? Were you on the Horsted Keynes Ward?) because I had to have rads and I have to say that for me I had to look at the scar as soon as I was awake from the op (that’s just how I am and I appreciate that others are different), and I must say how pleasantly surprised I was - a neat row of stitches my needlework teacher would have been proud of!

I just feel so incredibly grateful that there are all those clever and caring people out there to look after us through this s&*t disease.

I wish you a speedy recovery!

Bubs X